Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still Coping...

Guest imsohungry

By Guest imsohungry
in Coping with Celiac Disease

Recommended Posts

Guest imsohungry
Guest imsohungry
Posted

Hey everyone,

It's been awhile since I posted. I'm still trying my best to be gluten-free as often as possible. But it is so hard right now. As I stated in another message, my mother has been diagnosed with colon cancer and I am worried about her. She has started Chemo. and radiation, and she is very fatigued. My seizures are happening like crazy...I'm just stressed. But anyway, enough about all of that...

I got an A this term for my class! I'm afraid that I haven't been that good at being gluten-free though...and gosh, my bowels are showing it too! :rolleyes:

I MAINLY wanted to tell you all hey! :P So, ya'll take care! -Julie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


McDougall Apprentice
McDougall
Posted

Hey, you are celiac and eating gluten? I hate to say the obvious but that is a very very bad idea, maybe you get away with it for a little bit but it just is not worth it I promise you. Best thing you could do to help your Mom right now is stay healthy and stay gluten-free. Take care I hope you and your Mom get better.

KaitiUSA Enthusiast
KaitiUSA
Posted

It can be hard but once you get off of it and see how much better you do it really isn't that hard to avoid it.

Think about the risks of cancers, diabetes, and other serious things....that scares me to death and that should scare you away from gluten.

Think about it...is your health worth risking for a piece of pizza?

You will not like the consequences in the long run...it's a very bad idea to stay on gluten.

Hope you and your mom feel better soon :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,889
    • Most Online (within 30 mins)
      10,442
    drjay
    Newest Member
    drjay
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Unsteady in my new diagnosis

      By trents · Posted

      @drjay, your mixed test results experience is exceedingly common for someone having been consuming reduced amounts of gluten. A Marsh scale score of 3 indicates "significant villous atrophy" according to a quick google search I did and the biopsy is the gold standard diagnostic test anyway, not the blood antibody testing. It doesn't look like a "total IGA" blood test was ordered and without that we cannot tell if you are IGA deficient. If IGA deficient, other celiac IGA antibody scores, such as the tTG-IGA, cannot be trusted. They will likely be artificially low. And given the fact that there is significant improvement in your symptoms once you went on a strict gluten free diet, there is no doubt in my mind that your doctor's diagnosis of celiac disease is the correct one. By the way, welcome to celiac.com.!
    • drjay
      Unsteady in my new diagnosis

      By drjay · Posted

      About 2 years ago I got a referral to a GI because I was experiencing gut pain, bloating, and some other not so fun symptoms. He scheduled a colonoscopy and that came back fine with the exception of very small healing ulcers in my TI. I have a family history of stomach ulcers so I was prescribed a round of antibiotics and then placed on a PPI w/o an endoscopy to confirm. I think I may have convinced myself it was helping for about a year but I likely just acclimated to how I was feeling. Fast forward to January and my symptoms had gotten to be persistently unbearable and nothing was helping except some minor pressure relief from gasx. I get another appt with the GI and get an endoscopy done. There’s no ulcer so I stop the PPI and we do a SIBO test which comes back negative. The Dr orders a Labcorp celiac test immediately after he gets the biopsy results w/o the gluten challenge thing. I already don’t consume much if any because I suspected I may be sensitive to  gluten.  They grade the biopsy Marsh class 3 but my lab tests are weird and listed below IgA 11 (weak positive is 19) IgG 5 (weak positive is 19) tTG IgA 3 (weak positive 4) Positive for DQ2 and homozygous for DQB1*02 but negative for DQ8 My GI did diagnose as Celiac but the blood test makes me unsure. Even though I’ve been unsure, I immediately went on a strict gluten free diet. Yesterday makes 12 days and it was the first day with a normal bowel movement in last several weeks. Anyone have similar experience? 
    • knitty kitty
      Struggling with gluten challenge and not sure it’s worth it - looking for advice / experiences / encouragement

      By knitty kitty · Posted

      I found these articles interesting. Among people already diagnosed with Celiac Disease, the HLA DQ B1*02 allele is present in about 95%...... Carrier frequency of HLA-DQB1*02 allele in patients affected with celiac disease: A systematic review assessing the potential rationale of a targeted allelic genotyping as a first-line screening https://pubmed.ncbi.nlm.nih.gov/32256023/   Total IgA levels can be affected by the same HLA DQ B1*02 allele..... Total serum IgA levels and HLA-DQB1*02:01 allelic status https://pubmed.ncbi.nlm.nih.gov/37725324/
    • Scott Adams
      Struggling with gluten challenge and not sure it’s worth it - looking for advice / experiences / encouragement

      By Scott Adams · Posted

      This new company claims to offer the most comprehensive genetic tests on the market for celiac disease, and we'll be doing a product review article (sponsored) on them soon.
    • knitty kitty
      Is Thiamine Deficiency the Beginning of Celiac Disease?

      By knitty kitty · Posted

      @Mari,  I found Dr. Derrick Lonsdale and Dr. Chandler Marrs' website hormonesmatter.com most helpful in learning about thiamine. https://hormonesmatter.com/talking-about-thiamine/ I thought these might interest you... New insights on genes, gluten and immunopathogenesis of celiac disease https://pmc.ncbi.nlm.nih.gov/articles/PMC11283582/ Celiac disease: From genetics to epigenetics https://pmc.ncbi.nlm.nih.gov/articles/PMC8790554/ Keep me posted on your progress!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.