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Still Coping...


Guest imsohungry

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Guest imsohungry

Hey everyone,

It's been awhile since I posted. I'm still trying my best to be gluten-free as often as possible. But it is so hard right now. As I stated in another message, my mother has been diagnosed with colon cancer and I am worried about her. She has started Chemo. and radiation, and she is very fatigued. My seizures are happening like crazy...I'm just stressed. But anyway, enough about all of that...

I got an A this term for my class! I'm afraid that I haven't been that good at being gluten-free though...and gosh, my bowels are showing it too! :rolleyes:

I MAINLY wanted to tell you all hey! :P So, ya'll take care! -Julie


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McDougall Apprentice

Hey, you are celiac and eating gluten? I hate to say the obvious but that is a very very bad idea, maybe you get away with it for a little bit but it just is not worth it I promise you. Best thing you could do to help your Mom right now is stay healthy and stay gluten-free. Take care I hope you and your Mom get better.

KaitiUSA Enthusiast

It can be hard but once you get off of it and see how much better you do it really isn't that hard to avoid it.

Think about the risks of cancers, diabetes, and other serious things....that scares me to death and that should scare you away from gluten.

Think about it...is your health worth risking for a piece of pizza?

You will not like the consequences in the long run...it's a very bad idea to stay on gluten.

Hope you and your mom feel better soon :D

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      Thanks for your reply Scott! A long time ago I realized I didn’t fit neatly into uncomplicated celiac disease. Over the years I’ve been diagnosed and treated for SIBO, pancreatic insufficiency and diagnosed with Stage 2 liver fibrosis. I think all the complications occurred because of the refractory celiac disease. When I hit menopause my gut issues seemed to calm down and because I was stable I made the mistake of not following up with my gastroenterologist. Then other autoimmune problems flared and I tried the methotrexate. It worked like a charm for my skin condition… then my sigmoid colon ruptured. Strange but my autoimmune skin condition remains in remission after 6 months off the medication. We have a very long waiting list to get back into see my GI doctor… I was an emergency referral but am still waiting 6 months after the perforation. I need more surgery to fix a fistula that has formed and to reconnect my colon… I have a colostomy at present. I became a dietitian who specializes in bowel diseases but have never met anyone who’s had so many complications with celiac disease. I have a brother and son who also have been diagnosed. My mother had 4 autoimmune diseases including a vasculitis that eventually resulted in her death and it was my father who had the HLA DQ2 gene. Think I inherited some tendencies from each of them. Thanks again for your response… it feels a little lonely dealing with GI issues when I work so hard to remain gluten free.   
    • HelenH
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    • Scott Adams
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