Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Colonoscopy/endoscopy...checking For Celiac

wilem008

Recommended Posts

wilem008 Contributor
wilem008
Posted

Tomorrow I am going in to hospital for an colonoscopy and an endoscopy. (I have never had these procedures done before) They are testing for celiac amongst other things.

Today I am supposed to be on a clear liquid diet - Water, juice, jelly, clear soup etc.

The trouble is: Its only 11:20am and Im already starving, feeling light headed, dizzy. etc. Ive been known to faint from lack of food.

How do I survive the rest of the day (im at work)?

Have you ever had to do this? How did you cope?

Thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nutrifoodie Apprentice
nutrifoodie
Posted

Usually when you do a colonoscopy they give you this special drink you are supposed to down. I makes you go, umm, alot of number two down there. Usually you have to go to the bathroom so much that you cannot be far away from a toilet. Most people that are doing prep for colonoscopies STAY home. However, it does not sound like you are doing this, which is odd, and you are only on 'clear liquids' criteria. (From my experience, which we won't get into) I would say GET OFF WORK, stay home, don't go far away from a toilet, drink all the liquids you can (it will make the procedure much more comfortable) to flush all the stuff out of your colon, AND REST! You are going to feel/become extremely weak and hungry.. that's just they way it is without food. It does get to the point though where it levels off and isn't soo bad as the first 12 hours or so. Good luck, get off work if you can. I hope someone else can help you more than I.

wilem008 Contributor
wilem008
Posted
  • Author

Thanks for your help and advice.

I am required to drink all the laxitive mixture and have been adviced to be near a toilet...im dreading that actually. But I dont start that process till 4pm today. Thats why ive been at work.

They day hasnt been to bad. The hunger has started to level out now.

I plan to spend the night resting and get an early night to bed.

Thanks again.

Wilem

spunky Contributor
spunky
Posted

Good luck!

This is why I didn't go to a doctor, but just limped and grappeld my way through my own diagnosis... I CANNOT go long without food before I get sick. And purposely causing diahrrea... I just can't do that.

That's why I'll never have a real diagnosis... it's just too brutal... too barbaric... they ask too much of people who are already down and out.

Good luck ... I hope it all works out easy and nice for you.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,197
    • Most Online (within 30 mins)
      7,748
    Liburna
    Newest Member
    Liburna
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.