Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gene Test Results


Amber M

Recommended Posts

Amber M Explorer

My Gene tests are below with my signature. Is there any experts out there who can give me further explanation of the number stuff and the subtypes? I understand I do not have Celiac, but gluten sensitivity and they said I have gluten sensitive genes from both parents and my children will have at least one. I have gluten ataxia and lower colon problems. I have read and re-read the gene info and I feel like I understand, but then I don't. Especially the subtype number thing. Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

You and I have the same genes. I had ataxia, vertigo, migraines and neuropathy. GI was minimal.....just going 6 times a day.

My ataxia is nearly gone, vertigo is getting there, but the migraines, neuropathy and frequent BM's are all gone. :)

I am not a gene expert, but our genes predispose us to gluten sensitivity, grass allergy and a few others.

One of our genes is protective of T1 Diabetes. Genes have good and bad points.

Amber M Explorer
You and I have the same genes. I had ataxia, vertigo, migraines and neuropathy. GI was minimal.....just going 6 times a day.

My ataxia is nearly gone, vertigo is getting there, but the migraines, neuropathy and frequent BM's are all gone. :)

I am not a gene expert, but our genes predispose us to gluten sensitivity, grass allergy and a few others.

One of our genes is protective of T1 Diabetes. Genes have good and bad points.

Cool! I take daily med. for the migraines. I don't dare to cut down and find out yet, but will in the near future hopefully. My vertigo is getting better. The numbness, tingling, twitching is gone some days and rearing its ugly head others. My bowels are up and down. You see I had severe constipation from gluten the last two years, after years of Dia. I still ache all over some days and my lower colon is bad right now. If it doesn't hurt, its spasming or ice cold, like a cold spot. I will be having a colonoscopy soon. I had an apt. on Dec. 8 with a new doc. that just got changed to Dec. 22, so now I have to wait again! My head is clearing, I talk better and the literal "Haze" visually is better.

I was reading on the Ataxia, kind of scary what it does the the base of the brain. No wonder I couldn't walk straight. That is getting better too. I was getting so discouraged, I really felt like I might be slowly dying there for awhile. I was giving up because I couldn't seem to get help from the medical community. No one around here seems to knows much about it.

I ate chocolate chips in gluten free cookies this week and I don't feel to well the last few days. I think it was the "soy licithin". I had read it was of "no consequence" to persons with soy allergy because of the way it is broken down. ( I've had that for 30 years) I know I have not eaten gluten. What do you think about the soy licithin? My usual gluten symptoms seem worse right now. Could soy do that?

ShayFL Enthusiast

I avoid soy. I make all my own food from scratch. I cannot eat chocolate at all. I get severe rebound depression. I have challenged it so many times and always regret it.

Any food can cause symptoms, you just have to eliminate/challenge to find out. It is no fun, but can be rewarding when you nail it down.

My genetic sister, you are on the right path. My migraines were the first to go and have not returned. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - ElenaM posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      I think I am gluten intolerant

    2. - JulieRe replied to JulieRe's topic in Related Issues & Disorders
      6

      Oral thrush question

    3. - Ceekay replied to slkrav's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Gluten free beer ?

    4. - Rejoicephd replied to JulieRe's topic in Related Issues & Disorders
      6

      Oral thrush question

    5. - Scott Adams replied to oscarbolduc's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Advice while waiting for testing


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,894
    • Most Online (within 30 mins)
      7,748

    catsrlife
    Newest Member
    catsrlife
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • ElenaM
      Hello everyone. I am Elena and am 38 years old. I suspect I have a gluten intolerance even if my celiac panel is ok. I have the following symptoms : facial flushing, Red dots not bumps în face, bloating abdominal distension, hair loss, depression anxiety even with meds and even bipolar. Fatigue extreme to the point of not being able to work. All of these after I eat gluten. Could I have non celiac gluten sensitivity? Thanks anyone else with these symptoms?
    • JulieRe
      Hi Everyone,  I do appreciate your replies to my original post.   Here is where I am now in this journey.  I am currently seeing a Naturopath.  One thing I did not post before is that I take Esomeprazole for GERD.  My Naturopath believes that the decrease in the gastric acid has allowed the yeast to grow.    She has put me on some digestive enzymes.  She also put me on Zinc, Selenium, B 12, as she felt that I was not absorbing my vitamins. I am about 5 weeks into this treatment, and I am feeling better. I did not have any trouble taking the Fluconazole.  
    • Ceekay
      I'm sure it's chemically perfect. Most of them taste lousy!        
    • Rejoicephd
      Hi @JulieRe.  I just found your post.  It seems that I am also experiencing thrush, and my doctor believes that I have fungal overgrowth in my gut, which is most likely candida.  I'm seeing my GI doctor next week, so I'm hoping she can diagnose and confirm this and then give me an antifungal treatment.  In the meantime, I have been working with a functional medicine doctor, doing a candida cleanse and taking vitamins. It's already helping to make me feel better (with some ups and downs, of course), so I do think the yeast is definitely a problem for me on top of my celiac disease and I'm hoping my GI doctor can look into this a bit further.  So, how about you?  Did the candida come back, or is it still gone following your fluconazole treatment?  Also, was it awful to take fluconazole?  I understand that taking an antifungal can cause a reaction that sometimes makes people feel sick while they're taking it.  I hope you're doing better still !
    • Scott Adams
      I'm so sorry you're going through this—the "gluten challenge" is notoriously brutal, and it's awful to deliberately make yourself sick when you've already found the answer. For the joint pain, many people find that over-the-counter anti-inflammatories like ibuprofen can help take the edge off, and using heating pads or warm baths can provide some direct relief for the aches. For the digestive misery, stick to simple, easy-to-digest foods (like plain rice, bananas, and bone broth) and drink plenty of water and electrolytes to stay hydrated. It feels like the longest month ever, but you are doing the right thing to get a clear diagnosis, which can be crucial for your long-term health and getting the proper care. Hang in there; you can get through this! This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.