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neylonas

By neylonas
in Coping with Celiac Disease

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neylonas Rookie
neylonas
Posted

Can you give me your opinons about being dairy free initially? I read that I should go dairy free for at least a few weeks as well before I will see real results. I am only 2 days in and craving something sweet, but aside from fruit or peanut butter I feel like there are not many options. So far i have been eating fruits and veggies, plain meats, and peanut butter. Any other ideas???

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Lisa Mentor
Lisa
Posted
Can you give me your opinons about being dairy free initially? I read that I should go dairy free for at least a few weeks as well before I will see real results. I am only 2 days in and craving something sweet, but aside from fruit or peanut butter I feel like there are not many options. So far i have been eating fruits and veggies, plain meats, and peanut butter. Any other ideas???

I just found this link. It's not dairy specific, but may be helpful to you in your beginnig days:

Open Original Shared Link

Dairy is not required to eliminate, only if it seems bothersome to you.

ang1e0251 Contributor
ang1e0251
Posted

In the beginning, I made the peanut butter cookies that have no flour (old recipe) and that helped my sweet tooth. Also full sized Snickers, not minis, are a good pick me up when you're short of time.

I like pudding made with soy milk and jello.

converge Apprentice
converge
Posted

peanut M&Ms B)

SGWhiskers Collaborator
SGWhiskers
Posted

Chocolate Soy milk. Plain or Vanilla Soy milk in your old recipies. Soy ice cream with nuts. Even better is the new coconut ice cream. Nuts are a nice snack. Avacado is so creamy.

With adjusting to soy milk, it helped to put a sweetener in the plain. I didn't care for the Vanilla. I LOVED the Chocolate. It also helped mentally to think of it as nut juice rather than milk. I also needed to get Beano. You know what they say about beans. Soy milk comes from soybeans. Oh, if you can find it, they make soy nog this time of year. Mmmm. And Soy Latte.

Earth balance has a soy butter that is good. Mashed potatoes made with soy. Some people can handle a little cheese before they add back dairy fully. I'm allergic, so I'm off milk/eggs/gluten for life. Gluten is the hardest to navigate. Eggs are what I miss the most.

Since I can't have milk or eggs, I satisfy that creamy texture craving with beans. Refried beans are the easiest. Old El Paso are gluten-free, but I think they might have disguised MSG.

Hot Chocolate from scratch.

cyberprof Enthusiast
cyberprof
Posted
peanut M&Ms B)

Most chocolate has milk, except for SOME types of dark chocolate, so peanut M&Ms are out if you want to avoid dairy.

I second the flourless PB cookies. Avoiding gluten-free baked replacements (that have alternative flours in them) early on in the process helps healing and makes the healing easier.

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    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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