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Can I Cheat?


jat237

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jat237 Newbie

I just had an endoscopy today to confirm Celiac. The biopsy results aren't back, of course, but the doctor told me my esophagus, stomach, and intestines were all inflamed. He's pretty positive I'm celiac.

I'm almost completely asymptomatic. It would help me face the overwhelming thought of going gluten-free if I knew that I could splurge just once in awhile on freshly baked bread or a piece of cheesecake or a slice of pizza.

Given that gluten doesn't make me feel sick at all, what are the risks of an occasional cheat?


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Mother of Jibril Enthusiast

Don't do it!!!!!!!!!!

The major risks of cheating if you have celiac disease are cancer and other autoimmune disorders. Be grateful that you're not debilitated by your symptoms and move forward on the road to health!!

And by the way... it's not that hard to make gluten-free pizza. This forum has TONS of great ideas for alternatives to any food you might be craving. Plus... gluten is addictive. Once you've been gluten-free for a while you might find that your cravings are greatly diminished.

Lisa Mentor
Given that gluten doesn't make me feel sick at all, what are the risks of an occasional cheat?

The potential risks could be life threatening eventually. No, you won't die from a piece of cake or slice of pizza. ;)

If you are officially diagnosed with Celiac, it's an autoimmune disorder. It's not the amount of gluten that will hurt you, it the fact that the gluten make your body attack itself, thereby causing damage.

You may not be symptomatic when you consume gluten, but I can assure you that there is a major war going on in your intestines.

There are many disorders associate with uncontrolled Celiac. Diabetes, lymphoma, fibromyalgia or any type of arthritis. Gluten can cause ataxia which can cause neurological damage and some pretty serious malabsorption can make you talk funny and walk into walls or forget where you're driving.

SO...it's your choice to weigh the risks ;)

Welcome and read some posts here. It will be helpful to learn from other's experiences.

Takala Enthusiast

Why would you want to cheat, when there are good gluten free versions of all the foods you just mentioned ? You can either bake them or buy them. I just made myself some quick pan flatbread for lunch for a treat.

There is so much other stuff to eat, you won't feel deprived or hungry.

The risks are, once you go off, as you readjust, you might then feel much differently when you do deliberately eat a large amount of gluten. I consider myself on the low end of reacting, as I don't react with the violent gut issues from a crumb as some do, but as I became more acutely aware of my reactions as I became stricter with my diet. ( I get neurological symptoms and it flares my arthritis and gives me kidney and vision problems )

My physical discomfort and resulting brain fog is acute enough that I am highly motivated to stay away from other people's food !

The risks are you will very likely develop a secondary condition that will make you miserable, but what condition we don't know.

jat237 Newbie

Thank you all for the quick and helpful responses. Your optimism is encouraging, but at the moment I'm having a hard time coming to terms with the lifestyle change. I am a MAJOR foodie and absolutely adore whole grains. The fact that I can make or buy substitutes for some of my comfort foods is encouraging. But I just can't imagine that a gluten-free pizza is going to rival Papa John's. My family is steeped in food traditions, almost all of which are going to become taboo, and I fear the substitutes will just make me miss the real thing all the more.

I guess I'm experiencing the early stages of grief! :) Can others relate?

happygirl Collaborator
My family is steeped in food traditions, almost all of which are going to become taboo, and I fear the substitutes will just make me miss the real thing all the more.

I guess I'm experiencing the early stages of grief! :) Can others relate?

Yes - we can all relate. We all went through this too!!! No one is born knowing how to cope and adjust to the diet. But, with trial and error, a good attitude (and yes, pity parties are allowed), and support, you can do it.

I think you'd be hard pressed to find a good amount of families on this board who AREN'T steeped in food traditions. You learn to substitute things and it will become second nature. You will still have pastas, cookies, birthday cakes, pizza (okay, maybe not exactly like Papa John's), stuffing on Thanksgiving, etc. Truly. We all do.

I would highly recommend a great book to help explain Celiac - "Celiac Disease: A Hidden Epidemic" by Dr. Peter Green.

lizard00 Enthusiast

I don't know, the pizza I made over the weekend was better than Papa Johns to me. (Maybe I should mention that I never liked Papa Johns! :lol::P )

You are not alone, we all had to go through this. But committing to it and absolutely not cheating is really the only way you are going to be well and stay well, whether you have symptoms or not.


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cat3883 Explorer

The longer you go without it the less you want it. Obviously you have some symptoms or you wouldnt have had an endoscopy done. Feel lucky you don't feel terrible. I think my symptoms started slowly but by this October I was very ill. I will never intentionally eat gluten again. Never Never Never

puggirl Apprentice

Hi there... Yeah i wouldnt recommend cheating.. Let me tell you, on thanksgiving I ate a BREAD ROLL a small little bread roll and havent been the same since...... My body did not like it. it wasnt worth it. From now on Im going to be stronger and resist the urge to eat the "Good Stuff" I need to find a good gluten free bread. and I really want to make a home made pizza someday. DONT CHEAT its not worth the agony.

Fiddle-Faddle Community Regular

Believe it or not, there really are recipes for gluten-free versions of the things you love that are JUST AS GOOD as the gluteny originals.

These include pizza, cake, bread, cookies, muffins, biscuits, pancakes, and brownies.

The premade gluten-free ones you buy at the store taste like styrofoam. The homebaked ones take much less effort than you'd expect, especially the breads (no kneading required, just mix, dump, and bake!), and really do taste fantastic.

And the best part is, they are NOT addictive the way the gluteny ones are for us. REALLY. They totally answer the craving, but they don't make you want more and more and more.

Hang in there, and heal. It gets much, much better than you'd ever dream.

And if I can do it, anybody can.

Green Eyes Rookie

Really it isn't so bad once you get started eating gluten free. I too wasn't having big issues. It was a total fluke (well maybe not totally) that I was even diagnosed. Talk about a blow, it was.

You will also find that once you go gluten free you will have a reaction to eating gluten. If it is small amounts over a period of a few days (like taking vitamins once a day for 3 days) I finally get a little upset stomach. If it eat a larger amount of gluten - I "react" in about 30 minutes.

There are advantages to this, but also big disadvantages. Sometimes you don't know you have gotten a little bit of gluten but it still does the damage. That's why I'm insisting on getting re-testing to see if I am doing okay.

Best Wishes,

Jennifer

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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
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    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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