Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Gonna See An Allergist Soon


mr. moore

Recommended Posts

mr. moore Explorer

i really want to have an offical diagnoses because i felt like such a weirdo avoiding pasta and chip dip and looking at the ingredient list like im monk. but do i have to make myself eat bread before i go? ive been gluten free for 4 days now...thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lizard00 Enthusiast

For the allergy testing, no, you do not have to be eating gluten.

To be tested for celiac, you do. So if you think the allergist would run celiac tests, then you need to be eating it.

ravenwoodglass Mentor

Celiac is not an allergy it is an autoimmune disease. However sometimes an allergist can be helpful for folks that have a false negative on the panel. But not because they are testing for an allergy but because they can guide you through a true elimination diet. That is a long process but can be helpful.

Have you had a celiac panel done? If so what were your results? Even a positive only one point into range is a positive. Your first step if you haven't done it yet is a celiac panel and you do need to be consuming a full gluten diet for it to be accurate.

mr. moore Explorer
For the allergy testing, no, you do not have to be eating gluten.

To be tested for celiac, you do. So if you think the allergist would run celiac tests, then you need to be eating it.

see im just s damn sure i have it, but i want an offical little paper that will make me rest easier, plus to show peopl im not making it up. but if i end feeling better then i should just write up my own piece of paper with a celiac diagnoses and forge a doctors signature.

ravenwoodglass Mentor
see im just s damn sure i have it, but i want an offical little paper that will make me rest easier, plus to show peopl im not making it up. but if i end feeling better then i should just write up my own piece of paper with a celiac diagnoses and forge a doctors signature.

Forging a doctors signature on something could get you in serious trouble. Is there a reason you don't want to get the celiac panel or see a GI doctor? An allergist is really not likely to be able to diagnose you easily. The elimination diet he will have you do will take months and if you think your diet is restrictive now wait till you get your starting diet point. You will start out with 5 foods and the doctor will give you a diet list to show him what foods you eat every day. Your starting point will be foods you rarely eat, for most of us that means foods we dont like. My starting diet had turkey, sweet potatoes, peas, pineapple and cranberry juice. That was it. No salt or seasoning of any kind, no butter or margerine, no beverages other than the cranberry juice and water, no coffee, no tea. I had to eat only those foods for a month and then start adding other foods in one by one once a week. If you can handle a diet that is that restrictive for a few months then the allergist may be able to help you. Otherwise please start with the celiac panel and/or a visit to a GI doctor.

mef Newbie

Even if you get the diagnosis you want, you're still going to have to go through the same behavior. If the diet makes you feel better, keep doing it. My mom doesn't have celiac, but going gluten-free has improved her health.

While I know you were being facetious, please don't forge any medical documents. That can get you into a world of trouble.

Amyleigh0007 Enthusiast

My allergist was very helpful when my Celiac tests came back negative and my primary doctor brushed me off. She seemed more informed about Celiac and gluten intolerance then my primary doctor. She dx me with gluten intolerance based on a positive response to the diet, family history (my son has Celiac and bowel issues run in my family), and my past history (IBS dx at 14). Although it's not a Celiac dx I am happy that she was so understanding because I was like you. I needed a paper stating my dx to feel like it was "real". That sounds stupid but it's the truth. Good luck at the allergist!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Amber M Explorer
see im just s damn sure i have it, but i want an offical little paper that will make me rest easier, plus to show peopl im not making it up. but if i end feeling better then i should just write up my own piece of paper with a celiac diagnoses and forge a doctors signature.

I am another one that came back negative on the celiac blood test and biopsy. I had the diet from the allergist and the gene test. I am "gluten sensitive", so bear in mind that you may be either.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,810
    • Most Online (within 30 mins)
      7,748

    rdwells
    Newest Member
    rdwells
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.