Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Feel Sick. It's Been 7 Days.

mr. moore

Recommended Posts

mr. moore Explorer
mr. moore
Posted

i feel so damn crummy right now. 7 days since i've had my favorite comfort food. My bones hurt and i feel like i have a cold. worst is i told a friend that i went three days without gluten, had a cracker and that my stomach hurt and i fell asleep. he was like "well dude thats what happens when you don't have any food in that group for days". i hope this all isn't in my head! i, thinking of quitting. but im gonna see a GI doctor. you woulnd't believe the BS, i have to just TALK to him the first time, so he knows my symptoms, even though all i want is the straight up lab work. im paying the guy to tell him what i already know and i don't like that seeing as how i owe so many doctors money in the first place. should i go and still do it? even though my family probably thinks its all a waste.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ShayFL Enthusiast
ShayFL
Posted

Going gluten-free "before" labs can get you a false negative. If you want proper Celiac testing you MUST eat gluten beforehand for a good few months to hope for more accurate testing.

It is VERY COMMON to feel like crap for a few weeks while you are "detoxing" from gluten. Yes, it is a toxin. And it is addictive as well. It fits nicely into our opiate receptor sites in our brains. That is why it is "comfort" food. It is a drug.

So ride it out, the yucky feelings will pass. It took me a good 6 weeks before I actually started feeling BETTER than I had in MANY years. Some feel better sooner. Hold on!!

OR eat gluten for awhile and get tested.

mr. moore Explorer
mr. moore
Posted
  • Author
Going gluten-free "before" labs can get you a false negative. If you want proper Celiac testing you MUST eat gluten beforehand for a good few months to hope for more accurate testing.

It is VERY COMMON to feel like crap for a few weeks while you are "detoxing" from gluten. Yes, it is a toxin. And it is addictive as well. It fits nicely into our opiate receptor sites in our brains. That is why it is "comfort" food. It is a drug.

So ride it out, the yucky feelings will pass. It took me a good 6 weeks before I actually started feeling BETTER than I had in MANY years. Some feel better sooner. Hold on!!

OR eat gluten for awhile and get tested.

holy cow that was fast! haha. i don't know if there's any way you can get me on that stuff after i accidently ingested some, but i will prolly slip up come xmas, though i'll try my aunts are cooking and they're just pro, so ill tell them about my special needs. hopefully they'll understand. im gonna keep going gluten free, because im sure my intestines or villi or whatever are still messed up. im sure of that.

mr. moore Explorer
mr. moore
Posted
  • Author

ok i feel like i have the flu and have no energy. is this a good sign?

Anna and Marie Newbie
Anna and Marie
Posted
ok i feel like i have the flu and have no energy. is this a good sign?

It is when your detoxing, I've been like this for six months but it'll get better. I had to stop running for awhile because I was so drained. it hurt to walk up three steps, let alone run a couple miles. I'd advise you to keep going or you'll just have to go through it all again. That would be incredibly painful :D

~Anna

ang1e0251 Contributor
ang1e0251
Posted

This is what you feel like when you get glutened. If you eat more gluten at Christmas, you'll start the detox all over again. Write down what you're eating and how you feel when you eat it as well as later symptoms, then show it to your gastro when you go. It could help him to see the cause and effect of what you're trying to explain to him.

mr. moore Explorer
mr. moore
Posted
  • Author
This is what you feel like when you get glutened. If you eat more gluten at Christmas, you'll start the detox all over again. Write down what you're eating and how you feel when you eat it as well as later symptoms, then show it to your gastro when you go. It could help him to see the cause and effect of what you're trying to explain to him.

well ive been a good week in it. so if i screw up once it's like im screwed?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


DingoGirl Enthusiast
DingoGirl
Posted

You know, you actually might have the flu or some sickness.... 'tis the season... :)

CeliacAlli Apprentice
CeliacAlli
Posted
You know, you actually might have the flu or some sickness.... 'tis the season... :)

Uh..yeah. It may not be the detoxing at all =(.

It is normal to feel that way though........

mr. moore Explorer
mr. moore
Posted
  • Author
You know, you actually might have the flu or some sickness.... 'tis the season... :)

yeah i guess. this is also the season where i've gone full blown hypochondriac! im not even gonna mention the things i thought i had before i got to this website! im gonna try not having anything with aspartame, the stuff in sugar free stuff, and see ho it goes. because from what i've observed on this site, people with bad probles usually are addicted to what's ailing them. and i get cravings for certain chewing gums, in fact i've always chewed sugar free since i got my fillings (6 in all, gotta catch em all!) but i guess nothing is safe! especially after reading the wikipedia on it.

ang1e0251 Contributor
ang1e0251
Posted

All those sugar subs make me sick and give me tremors.

MNBeth Explorer
MNBeth
Posted
well ive been a good week in it. so if i screw up once it's like im screwed?

Hate to say it, but, yeah, pretty much. You really need to do this all the way and very carefully to get an accurate read on whether it makes a difference.

princessnoel Newbie
princessnoel
Posted
i feel so damn crummy right now. 7 days since i've had my favorite comfort food. My bones hurt and i feel like i have a cold. worst is i told a friend that i went three days without gluten, had a cracker and that my stomach hurt and i fell asleep. he was like "well dude thats what happens when you don't have any food in that group for days". i hope this all isn't in my head! i, thinking of quitting. but im gonna see a GI doctor. you woulnd't believe the BS, i have to just TALK to him the first time, so he knows my symptoms, even though all i want is the straight up lab work. im paying the guy to tell him what i already know and i don't like that seeing as how i owe so many doctors money in the first place. should i go and still do it? even though my family probably thinks its all a waste.

My advice is to get this test done: Open Original Shared Link

order the Gluten-sensitivity test for $99. the test comes to you in the mail and you send it back in the mail. the results are emailed to you and you never have to leave your house. the best part is you DON'T have to be on a gluten diet to do it. I did it after 2 months of being off gluten and it came back 99 points positive. Then, after you get this test done (which is more accurate than blood test) you can still go to a GI if you want to. But I've had no need to. I just don't eat gluten and i'm fine. This way i know it's not just in my head.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from...
    2. Scott Adams
      0

      Gluten-Free Peanut Butter Cup Swirl Brownies

    3. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate...
    4. MogwaiStripe
      - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks...
    5. knitty kitty
      - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine. Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes. HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc. Thiamine deficiency inside a cell triggers a...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,257
    • Most Online (within 30 mins)
      7,748
    Gabs
    Newest Member
    Gabs
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Related issues

      By Mari · Posted

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      Airborne Gluten?

      By MogwaiStripe · Posted

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Gluten Issues and Vitamin D

      By knitty kitty · Posted

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Airborne Gluten?

      By knitty kitty · Posted

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.