Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Good Information To Read......


Gemini

Recommended Posts

Gemini Experienced

I was looking through the gluten free drug list over Christmas as I was in need of some medication for a cold and noticed that Synthroid had a notation after it saying that all strengths of the drug could no longer be guaranteed as being gluten-free. Not sure why but thought it important to point out to all those taking it. I use Levoxyl myself, which is the generic from of Synthroid, and that is still listed as gluten-free.

Personally, I refused Synthroid in the beginning because it is still overpriced and expensive. I have zero problems with Levoxyl and it works beautifully for me.

The second important note I would like to make is if you can get your hands on a copy of the magazine "Gluten Free Living" this month (it is not a monthly mag), there are 2 excellent articles in it that all Celiacs, especially newbies, should read. One is all about Rx meds and their ingredients and the title is Puzzled by Prescriptions? Why your drugs are probably gluten-free It lists the common inert ingredients used and what to look for as far as what may contain gluten......very helpful article.

The second article is titled May Contain Labels Muddled and Misunderstood You guessed it....all about labeling practices and what the manufacturers mean when they list the "may contain" statement.

Thee is also a story on an Outback Restaurant in Roswell, Georgia that is going way beyond the limit with their gluten-free menu. They have the Bloomin' Onion thing on their gluten-free menu! The assistant manager of the place was talking to a customer there who had requested the gluten-free menu

and the manager ended up in tears because, when the customer described symptoms of celiac disease, the manager realized they fit the symptoms of some health issues she was having. Turns out, she had celiac disease also. Now she is cooking up more and more menu items that celiacs can eat!

They hope to make some available throughout the Outback chain!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jenny (AZ via TX) Enthusiast

Gemini, thanks for the info. I love this magazine, but do not have this month's.

Which gluten free drug list do you use? Is it on the internet or was it something you bought?

Gemini Experienced
Gemini, thanks for the info. I love this magazine, but do not have this month's.

Which gluten free drug list do you use? Is it on the internet or was it something you bought?

Hi Jenny!

The gluten-free drug list is available at: www.glutenfreedrugs.com It's a very comprehensive listing and has saved my butt on a number of occasions when I could not get in touch with a manufacturer. I was surprised that Synthroid cannot guarantee gluten-free status because of the number of people with thyroid disease that was caused by undiagnosed celiac disease......very weird. However, going through the listing you will see how many meds are gluten-free and they are commonly used products also. The one other word of warning are to those with Sjogren's Syndrome, like myself. The vast majority of these I cannot use because pharmaceuticals are notorious for drying out mucous membranes. I have a horrible time with that. I have found that using herbal remedies work just as well without the side effect of making my already dry mouth 100 times worse. I just thought that for those who can tolerate OTC meds, this listing will be of great help. Sorry about not linking directly to the website.....I seem to be having difficulty with that today.

I also like this magazine.....it's better than Livng Without because it deals only with gluten free. They have good recipes and their articles seem to be spot on with correct information that newbies really need to read. It's essential that people learn the correct information about celiac disease, cross contamination and the use of topical products as it relates to the disease. It just makes living this lifestyle so much easier. It's a quarterly magazine and I like that......don't want magazines piling up every month!

  • 2 weeks later...
minton Contributor

OUTBACK in Roswell is my new favorite restaraunt!!!! I live near there!!!! Thank goodness!

wowzer Community Regular
I was looking through the gluten free drug list over Christmas as I was in need of some medication for a cold and noticed that Synthroid had a notation after it saying that all strengths of the drug could no longer be guaranteed as being gluten-free. Not sure why but thought it important to point out to all those taking it. I use Levoxyl myself, which is the generic from of Synthroid, and that is still listed as gluten-free.

Personally, I refused Synthroid in the beginning because it is still overpriced and expensive. I have zero problems with Levoxyl and it works beautifully for me.

The second important note I would like to make is if you can get your hands on a copy of the magazine "Gluten Free Living" this month (it is not a monthly mag), there are 2 excellent articles in it that all Celiacs, especially newbies, should read. One is all about Rx meds and their ingredients and the title is Puzzled by Prescriptions? Why your drugs are probably gluten-free It lists the common inert ingredients used and what to look for as far as what may contain gluten......very helpful article.

The second article is titled May Contain Labels Muddled and Misunderstood You guessed it....all about labeling practices and what the manufacturers mean when they list the "may contain" statement.

Thee is also a story on an Outback Restaurant in Roswell, Georgia that is going way beyond the limit with their gluten-free menu. They have the Bloomin' Onion thing on their gluten-free menu! The assistant manager of the place was talking to a customer there who had requested the gluten-free menu

and the manager ended up in tears because, when the customer described symptoms of celiac disease, the manager realized they fit the symptoms of some health issues she was having. Turns out, she had celiac disease also. Now she is cooking up more and more menu items that celiacs can eat!

They hope to make some available throughout the Outback chain!

wowzer Community Regular

Thanks for bringing up the information on the Synthroid. I am trying to figure out where I am getting gluten and wondering if the Synthroid it the problem. I did try to e-mail Abbott, but they said they could share my information with the world, etc. so didn't send the e-mail. I will have my pharmacist check tomorrow. Does anybody know what strengths contain gluten or if any are safe?

fig girl Rookie

I was looking through the gluten free drug list over Christmas as I was in need of some medication for a cold and noticed that Synthroid had a notation after it saying that all strengths of the drug could no longer be guaranteed as being gluten-free. Not sure why but thought it important to point out to all those taking it. I use Levoxyl myself, which is the generic from of Synthroid, and that is still listed as gluten-free.

Personally, I refused Synthroid in the beginning because it is still overpriced and expensive. I have zero problems with Levoxyl and it works beautifully for me.

The second important note I would like to make is if you can get your hands on a copy of the magazine "Gluten Free Living" this month (it is not a monthly mag), there are 2 excellent articles in it that all Celiacs, especially newbies, should read. One is all about Rx meds and their ingredients and the title is Puzzled by Prescriptions? Why your drugs are probably gluten-free It lists the common inert ingredients used and what to look for as far as what may contain gluten......very helpful article.

The second article is titled May Contain Labels Muddled and Misunderstood You guessed it....all about labeling practices and what the manufacturers mean when they list the "may contain" statement.

Thee is also a story on an Outback Restaurant in Roswell, Georgia that is going way beyond the limit with their gluten-free menu. They have the Bloomin' Onion thing on their gluten-free menu! The assistant manager of the place was talking to a customer there who had requested the gluten-free menu

and the manager ended up in tears because, when the customer described symptoms of celiac disease, the manager realized they fit the symptoms of some health issues she was having. Turns out, she had celiac disease also. Now she is cooking up more and more menu items that celiacs can eat!

They hope to make some available throughout the Outback chain!

Great info! Thanks for mentioning the Outback in Roswell, GA too. I just asked my husband which Outback we had eaten at not too long ago when we were in Atlanta and it was the one in Roswell. We were in the area shopping at Trader Joe's and saw the Outback and i knew they had a gluten-free menu so we stopped in for dinner. I was very, very impressed and was so surprised to see all of the items on their menu that was gluten free! My sister lives near there and we will definitely go back! I felt so comfortable eating there. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,318
    • Most Online (within 30 mins)
      7,748

    Joanne G
    Newest Member
    Joanne G
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      I havesome of the replies to your post(which by the way is a gread piece of writing) and think that it will take lots of time and reading to decide what you are going to do. I would like to give you some practical suggestions. Your anxieties and OCD are a perfectly natural response when your body is sending signals that you have physical problems. The body does not use words it uses biochemistry and electric interactions. Celiac disease is not a killer disease so you are not going to die in the near future if you get glutened.  It can be a disabling problem unless you stay gluten free. For OCD attacks I have used spearmint or peppermint teas to relax. I also sitorlay down , relax as much as possible and review what I have been eating for the last few days and can usually identify that I have been eating too much of something and not enough of other foods that would balance my body. My body may have become too acid when it needs to be slightly alkaline. For me this means eating more vegetables and less starches and proteins. There are some websites that will list acid forming foods and alkaline forming food and many foods that are in between. Just admit that you are anxious about gluten being present in foods and anything that is used to prepare foods or even in your environment. When you eat anything that makes you anxious take a capsule of an anti-gliadin enzyme. I use a brand called GliadinX. It works in the stomach and will break down small amounts of gluten. Look up online the amount of plain water your body height and weight needs every day. Two years ago I was 5' 4" and weighed 100 lbs and needed 48 oz. every day.  Even if you can't drink the full amount if you just drink more water you will notice some improvement in your digestive system.  That's enough for tonight and it's way past my bedtime. Don't hesitate to ask more question or ask for more information.       
    • Scott Adams
      Canker sores can definitely be frustrating, especially when you're already managing a strict gluten-free lifestyle and have been diagnosed with celiac disease for so long. While these painful mouth ulcers aren’t exclusive to celiac disease, they can be linked to nutritional deficiencies—particularly of iron, folate, or vitamin B12 (as @trents mentioned )—which are common in people with celiac, even those who are very careful with their diet. Ongoing fatigue and aches might also suggest that your body isn’t fully absorbing nutrients or that there’s some underlying inflammation. It could be helpful to get bloodwork done to check for these deficiencies, and possibly even a full nutritional panel. Sometimes, new sensitivities or hidden sources of gluten or additives like sodium lauryl sulfate (common in toothpaste) can trigger symptoms like canker sores too. Since your reactions are so severe and you're highly vigilant, it might also be worth considering whether any other autoimmune conditions could be involved, as they can develop over time and overlap with celiac. Consulting with your doctor or a celiac-informed dietitian may help pinpoint the cause and bring relief.
    • knitty kitty
      @Dora77, You shouldn't worry about getting glutened through your skin.  You would have to touch a gluten infested doorknob and then put your hand in your mouth.   I'd be more concerned with your mom's heating up gluten bread in the oven and boiling gluten noodles.  These methods cause particles of gluten to become airborne which would then enter your nose and be swallowed, going into your digestive tract.  I have to avoid the bakery aisle at the grocery store for this reason.  An M95 mask helps. If you get nutritional deficiencies corrected, your immune system will calm down and be less reactive to gluten expose.  Vitamin D helps regulate the immune system.  Thiamine and Niacin help make digestive enzymes which would help digest any accidental gluten exposure.  Thiamine helps Mast cells not to release histamine, an inflammatory agent released as part of the reaction to gluten, and also a neurotransmitter that causes alertness and anxiety, and the flight or fight response.  Pyridoxine will help improve the OCD.  Remember your brain is part of the body.  Vitamin deficiencies affect your brain and mental health as well as the rest of your body.  
    • Jacki Espo
      I do not have evidence other than anecdotal but I am certain when I have gotten these it's the result of eating gluten (back when I did).  I don't get them now that I don't eat gluten. 
    • Dora77
      What really bothers me is if worrying about getting cc‘d from touching the same door knob as others touched is valid. Seems like an extremely unlikely way to get glutened but i read people saying that.    If thats true then theres realistically zero chance i dont get cc‘d in a non gluten-free household unless i Cook Everything myself and wash my hands multiple times in between and store all of my stuff separately
×
×
  • Create New...