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The Best Crew Ever

Treen Bean

By Treen Bean
in Coping with Celiac Disease

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Treen Bean Apprentice
Treen Bean
Posted

I travel with a touring Broadway show for 8 months out of the year. Eating on the road is very difficult and monotonous for me. Last night, our company threw a Christmas party since we weren't able to go home for Christmas. I was so annoyed because I didn't think I would be able to eat anything. Boy was I wrong! Our props head was in charge of the catering and set up for the party. He took me grocery shopping with him to buy all gluten free crackers and cheese, chips and salsa, veggies and hummus, and fruit. Then, when he set everything up, he made sure all of the gluten filled foods were kept far away from my safe foods. He also made sure that only uncontaminated hands touched the gluten free foods. Then, he went one step further, before I arrived he made an announcement to everyone to be extra careful not to cross contaminate anything due to my food allergies. It was a wonderful party! I was able to eat just like everyone else without any fear of becoming sick! I love my cast and crew!

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Lisa Mentor
Lisa
Posted

Sounds like you have wonderful people around you, people who are used to working together to achieve a common goal.

home-based-mom Contributor
home-based-mom
Posted
I travel with a touring Broadway show for 8 months out of the year. Eating on the road is very difficult and monotonous for me. Last night, our company threw a Christmas party since we weren't able to go home for Christmas. I was so annoyed because I didn't think I would be able to eat anything. Boy was I wrong! Our props head was in charge of the catering and set up for the party. He took me grocery shopping with him to buy all gluten free crackers and cheese, chips and salsa, veggies and hummus, and fruit. Then, when he set everything up, he made sure all of the gluten filled foods were kept far away from my safe foods. He also made sure that only uncontaminated hands touched the gluten free foods. Then, he went one step further, before I arrived he made an announcement to everyone to be extra careful not to cross contaminate anything due to my food allergies. It was a wonderful party! I was able to eat just like everyone else without any fear of becoming sick! I love my cast and crew!

That's really cool! Doesn't it make you feel good when somebody goes out of their way to be nice? :)

YoloGx Rookie
YoloGx
Posted

Wow! that truly is wonderful! A good thing to counteract some of the down political news right now ....

Bea

jlinc Rookie
jlinc
Posted

I always get so uncomfortable when people go out of their way to accomodate me, but it sure feels good, doesn't it?! :)

Treen Bean Apprentice
Treen Bean
Posted
  • Author

My cast and crew are amazing people! It's wonderful how they are always looking out for me. They are always telling me when they discover/see gluten free foods, etc.... I even get surprise gluten free gifts left on my bus seat (everything from gluten-free cheesecake to gluten-free pretzels)!

JNBunnie1 Community Regular
JNBunnie1
Posted
My cast and crew are amazing people! It's wonderful how they are always looking out for me. They are always telling me when they discover/see gluten free foods, etc.... I even get surprise gluten free gifts left on my bus seat (everything from gluten-free cheesecake to gluten-free pretzels)!

Wow! Those guys are awesome!

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kkkkaty Rookie
kkkkaty
Posted

It is no small thing to have people around who are so supportive! I have been counting my blessings lately as I realize I have 3 close friends (couples) who cook wonderful meals for me- they will sometimes call several times while they are preparing to cook and ask me if I can eat this or that and what pans should they use etc. My other friends may not go to such lengths but at least they do not try to push food on me or get mad at me if I don't eat a meal. My husband and boys are also wonderful as well- my youngest now automatically reads labels on foods and will announce if I can eat it or not.

Still a little dicey going to Mom's but she tries hard and always has a basket of gluten free products awaiting every time I visit.

It's disheartening to read of how little support some are getting from family and friends. On the other hand it's great to see the support available here.

ang1e0251 Contributor
ang1e0251
Posted

I'm so happy you are with people that are so caring since you live with them for most of your year. Family members could learn a lesson or two from your crew!

Jenny (AZ via TX) Enthusiast
Jenny (AZ via TX)
Posted

What a wonderful, loving group of friends you have!

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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