Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Join Our eNewsletter:
    Support Our Content
    eNewsletter
    Donate

I Wrote To Oprah Too


mcle8232

Recommended Posts

mcle8232 Apprentice

There is a limit of 2,000 characters so I wrote this letter in 1,942 characters (including spaces) :D

It is a disease that is even more prevalent in America than diabetes yet most people have never heard of it. Celiac disease has been shown to affect an estimated 1 out of every 130 Americans. Still, only 1 in every 4,700 patients leaves the doctor's office with this diagnosis.

You may have gotten food poisoning from salmonella or spoiled food, but for someone with celiac disease this reaction can happen every single time they ingest anything with wheat flour in it. That includes cookies, cake, pizza crust, ice cream cones, and even many things you might not suspect like almost all soups. Gluten is the poisonous protein found in wheat flour, and also barley and rye.

I am a 27-year-old celiac, diagnosed two years ago, but I have suffered with a laundry list of symptoms for nearly half of my life. My goal is to someday soon be able to say "I


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



minibabe Contributor

that would be absolutly amazing if we could be Oprah to do a show on this. it would bring the awareness level up and people would possibily understand alot me. Good luck! :)

celiac3270 Collaborator

Thank you for writing...that would be amazing if she did a show on it--with all the viewers and influence she has...wow...keep us posted if anything comes of it!

rmmadden Contributor

Excellent letter! Let's hope it sparks some interest/publicity on celiac disease.

A few weeks back I wrote to the food network about doing a show on Gluten-Free cooking. Specifically, I emailed the Emeril Live show as I like to watch it and other Food Network shows. I said pretty much the same thing that 1 out-of 133 American's has Celiac but yet most people are clueless. I asked them for some good bread recipe's and other "Tasty Gluten Free" choices.

Let's keep our fingers crossed!

Cleveland Bob :)

Guest barbara3675

On "Yes, Dear" last night, in the opening segment, the brother-in-law said to Greg "you took gluten-free carrot cake without nuts to the office" and Greg said "that is because I wanted to be able to eat some too" It is good to hear glueten-free being mentioned in the natural course of things. We are headed in the right direction here folks. However, if the QUEEN of television did a show on it, that would be supreme. If you hear that she is going to do one, please let me know, because I am working at that time and I would have to make special arrangements to tape it. Thanks....Barbara

bmorrow Rookie

Great letter! I hope that Oprah will become interested in learning about Celiac and decide to do a show. That would increase the public's knowledge and awareness of it faster than anything.

angel-jd1 Community Regular

That's hillarious that "yes dear" said that on their show, a year or so ago they made fun of gluten intollerance. They had a play date with a child who was gluten intollerant and didn't want to go because of that. I'm almost certain it was Yes Dear. Maybe someone else can help me remember for sure.

I hope that your Oprah letter works. We had a huge letter writing campaign to her about 2 years ago. Nothing ever came of it :( Maybe if people keep writing it will eventually make a difference OR she will get sick enough of us and put us on a show :lol:

Good luck!!

-Jessica :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Deby Apprentice

Wow, Oprah's show would be great. Good luck.

The Food Network would be great too, but there would need to be a cook who knew something about gluten-free cooking. I'd be disappointed to have a show cook gluten-free foods that are already safe, like veggies and meats.

celiac3270 Collaborator

Wow...all of this was really interesting to read :) (Yes, Dear, The Food Network, a previous Oprah letter-writing spree...). I never got to take part in the last letter spree....if this one letter (with very good statistics included), doesn't do anything, maybe we should organize another! Write letters every year until we get Celiac Disease on the show! :lol:

mommida Enthusiast

I just wrote to Montel. He may be more sympathetic for Celiacs because of the M.S. Did I read somewhere that a gluten free diet was suggested for M.S.?

I would love to see Oprah, or Montel, cover Celiac. Both are capable of a responsible show with a major impact.

Laura

megzmc3611 Rookie

I saw the episode of Yes Dear this week!

I also noticed that when Greg replied to his brother and law about the gluten-free cake and wanting to be able to have a piece too,

Greg was holding a can of beer (budweiser it appeared to be)!!

So, I guess they are trying but still do not have all the facts of our disease pinned! :)

jcgirl Apprentice

Last night on a re-run of King of Queens, Carrie was wearing a shirt that said Gluten Free with some other writing under it but it was to small to make out. Shows like the Good Morning American and Today would also be great options to get the word, espcially sense many people have them on while getting ready in the morning.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to yellowstone's topic in Coping with Celiac Disease
      3

      Has someone experienced discrimination because of their illness?

    2. - Scott Adams commented on Scott Adams's article in Spring 2026 Issue
      2

      When Home Isn't Safe: Celiac Disease, Cross-Contamination, and the Right to a Gluten-Free Space

    3. - Flash1970 commented on Scott Adams's article in Spring 2026 Issue
      2

      When Home Isn't Safe: Celiac Disease, Cross-Contamination, and the Right to a Gluten-Free Space

    4. - Russ H posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fiber-Metabolizing Bacteria Could Boost Gut Health in Celiac Disease

    5. - suek54 replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      46

      Shaking/Tremors and Off Balance

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,941
    • Most Online (within 30 mins)
      10,442

    Sensible
    Newest Member
    Sensible
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Regarding the discrimination you asked about, it is a lot more easy now to discriminate when you're supposed to answer whether or not you have celiac disease on job applications, and from what I've seen, MANY companies now include this question on their applications:  
    • Russ H
      People with coeliac disease have an altered gut biome compared with those who do not, which may be associated with gut inflammation. Although the gut biome recovers on a gluten-free diet, there are still significant differences at 2 years. In a mouse model of coeliac disease, supplementation with the soluble dietary fibre, inulin, increased the number of beneficial microbes and reduced gut inflammation. Inulin is used by some plants as carbohydrate store, it is a complex polymer of fructose in the same way that starch is a complex polymer of glucose. Inulin cannot be digested by humans but serves as food source for some gut bacteria. Inulin is present in many vegetables but the richest sources are (g/100g): chicory root 41.6 Jerusalem artichoke 18.0 dandelion greens 13.5 garlic 12.5 leeks 6.5 onions 4.3 The Scientist: Fiber-Metabolizing Bacteria Could Boost Gut Health in Celiac Disease    
    • suek54
      Hi Ginger38 Well done you for pushing through the pain barrier of eating gluten, when you know each mouthful is making you poorly.  I went through the same thing not long ago, my biopsy was for dermatitis herpetiformis. Result positive, so 95% certain I have gut coeliacs too. But my bloods were negative, so very pleased I went for the gluten challenge and biopsy.  Hang on in there. Sue
    • Scott Adams
      When symptoms like fatigue, brain fog, or low energy change how we interact, others sometimes misinterpret that as disinterest, rudeness, or negativity—especially if they don’t understand the underlying condition. That doesn’t make their behavior okay, though. You don’t deserve to be treated poorly for something outside your control. Often, it reflects a lack of awareness or empathy on their part, not a fault in you. It can help to explain your condition to people you trust, but it’s also completely valid to set boundaries and distance yourself from those who respond with hostility. Your experience—and your reaction to it—makes sense. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      Being HLA-DQ2 positive doesn’t diagnose celiac disease by itself, but it does mean he has the genetic potential for it, so it absolutely deserves careful follow-up if symptoms or concerns are present. You’re right that celiac is often downplayed, but it’s a serious autoimmune condition—not an allergy—and it can affect the brain, nervous system, and overall health if untreated. Given everything your son has been through, you’re doing the right thing by advocating and asking questions. I would strongly recommend getting a full copy of his records, and if possible, consulting a gastroenterologist who understands celiac disease well so you can get clear answers and, if needed, proper testing and monitoring.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.