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I Wrote To Oprah Too

mcle8232

By mcle8232
in Publications & Publicity

Recommended Posts

mcle8232 Apprentice
mcle8232
Posted

There is a limit of 2,000 characters so I wrote this letter in 1,942 characters (including spaces) :D

It is a disease that is even more prevalent in America than diabetes yet most people have never heard of it. Celiac disease has been shown to affect an estimated 1 out of every 130 Americans. Still, only 1 in every 4,700 patients leaves the doctor's office with this diagnosis.

You may have gotten food poisoning from salmonella or spoiled food, but for someone with celiac disease this reaction can happen every single time they ingest anything with wheat flour in it. That includes cookies, cake, pizza crust, ice cream cones, and even many things you might not suspect like almost all soups. Gluten is the poisonous protein found in wheat flour, and also barley and rye.

I am a 27-year-old celiac, diagnosed two years ago, but I have suffered with a laundry list of symptoms for nearly half of my life. My goal is to someday soon be able to say "I

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minibabe Contributor
minibabe
Posted

that would be absolutly amazing if we could be Oprah to do a show on this. it would bring the awareness level up and people would possibily understand alot me. Good luck! :)

celiac3270 Collaborator
celiac3270
Posted

Thank you for writing...that would be amazing if she did a show on it--with all the viewers and influence she has...wow...keep us posted if anything comes of it!

rmmadden Contributor
rmmadden
Posted

Excellent letter! Let's hope it sparks some interest/publicity on celiac disease.

A few weeks back I wrote to the food network about doing a show on Gluten-Free cooking. Specifically, I emailed the Emeril Live show as I like to watch it and other Food Network shows. I said pretty much the same thing that 1 out-of 133 American's has Celiac but yet most people are clueless. I asked them for some good bread recipe's and other "Tasty Gluten Free" choices.

Let's keep our fingers crossed!

Cleveland Bob :)

Guest barbara3675
Guest barbara3675
Posted

On "Yes, Dear" last night, in the opening segment, the brother-in-law said to Greg "you took gluten-free carrot cake without nuts to the office" and Greg said "that is because I wanted to be able to eat some too" It is good to hear glueten-free being mentioned in the natural course of things. We are headed in the right direction here folks. However, if the QUEEN of television did a show on it, that would be supreme. If you hear that she is going to do one, please let me know, because I am working at that time and I would have to make special arrangements to tape it. Thanks....Barbara

bmorrow Rookie
bmorrow
Posted

Great letter! I hope that Oprah will become interested in learning about Celiac and decide to do a show. That would increase the public's knowledge and awareness of it faster than anything.

angel-jd1 Community Regular
angel-jd1
Posted

That's hillarious that "yes dear" said that on their show, a year or so ago they made fun of gluten intollerance. They had a play date with a child who was gluten intollerant and didn't want to go because of that. I'm almost certain it was Yes Dear. Maybe someone else can help me remember for sure.

I hope that your Oprah letter works. We had a huge letter writing campaign to her about 2 years ago. Nothing ever came of it :( Maybe if people keep writing it will eventually make a difference OR she will get sick enough of us and put us on a show :lol:

Good luck!!

-Jessica :rolleyes:

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Deby Apprentice
Deby
Posted

Wow, Oprah's show would be great. Good luck.

The Food Network would be great too, but there would need to be a cook who knew something about gluten-free cooking. I'd be disappointed to have a show cook gluten-free foods that are already safe, like veggies and meats.

celiac3270 Collaborator
celiac3270
Posted

Wow...all of this was really interesting to read :) (Yes, Dear, The Food Network, a previous Oprah letter-writing spree...). I never got to take part in the last letter spree....if this one letter (with very good statistics included), doesn't do anything, maybe we should organize another! Write letters every year until we get Celiac Disease on the show! :lol:

mommida Enthusiast
mommida
Posted

I just wrote to Montel. He may be more sympathetic for Celiacs because of the M.S. Did I read somewhere that a gluten free diet was suggested for M.S.?

I would love to see Oprah, or Montel, cover Celiac. Both are capable of a responsible show with a major impact.

Laura

megzmc3611 Rookie
megzmc3611
Posted

I saw the episode of Yes Dear this week!

I also noticed that when Greg replied to his brother and law about the gluten-free cake and wanting to be able to have a piece too,

Greg was holding a can of beer (budweiser it appeared to be)!!

So, I guess they are trying but still do not have all the facts of our disease pinned! :)

jcgirl Apprentice
jcgirl
Posted

Last night on a re-run of King of Queens, Carrie was wearing a shirt that said Gluten Free with some other writing under it but it was to small to make out. Shows like the Good Morning American and Today would also be great options to get the word, espcially sense many people have them on while getting ready in the morning.

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      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
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    • BlessedinBoston
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      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

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