Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pretty Sure It's Not Allergies, But My Other Theory Is Sort Of Out There...


IChaseFrisbees

Recommended Posts

Bell Apprentice

AliB, I appreciate your repeated references to the SCD.

I'd been feeling somewhat better on the gluten-free diet, but old symptoms were creeping back in. I was quite sure i wasn't being glutened, so I cut out pretty much all starchy carbs and sugars for a week. As a result i am suddenly filled with energy, my skin looks clearer, and the mental fog has dispersed. I will be looking into the diet a little more carefully now, and am grateful I knew the basics from this site.

I understand that it's important to keep different medical theories in context, and remember that we're not all identical - what works for one person may not work for another, but I can only remember ever seeing you mention the Specific Carbohydrate diet as a genuine response to somebody who had come onto these forums asking for the help of the community, because they'd found that the basic gluten free thing just wasn't enough.

For most of us here, the generally accepted rules about nutrition just don't apply. How could we possibly NOT inform ourselves about the other possibilities?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran
Hey everybody, so from following my food diary this is as much as I've surmised:

Eating 1 apple or orange a day makes me a little gassy, but eating any more than that gives me outright bad digestive symptoms. Eating any carby foods (potatoes, rice, corn...) gives me bad symptoms.

I've been reading "Breaking the Vicious Cycle" and the SCD seems to be the right thing for me, but I also need to address the yeast problem. I was at +1 before I took an antibiotic, so who knows how bad it is now, but the reaction to fruit isn't a good sign.

My question is how do I talk to a nutritionists/naturopath about the SCD? I know docs hate it when you come in and say "wel I read on the internet..." So how can I talk to them without sounding like I'm trying to do their job?

Hi Frisbee,

Look what I found on the internet!!!! :)

This is from Wiki and talks about fructose malabsorbtion. I don't know if it applies to you or not, but I thot it might help you in your research. Lets get those doctors straightened out eh!? LOL I am not real familiar with the SCD myself, can't help you there.

Open Original Shared Link

Fructose malabsorption or Dietary Fructose Intolerance is a digestive disorder[1] of the small intestine in which the fructose carrier in enterocytes is deficient. As a result of this problem, the concentration of fructose in the entire intestine is increased. Fructose malabsorption is found in approximately 30-40% of the population of Central Europe, with about half of the affected individuals exhibiting symptoms.[

Symptoms

This condition is common in patients with symptoms of Irritable Bowel Syndrome and most patients with fructose malabsorption fit the profile of those with Irritable Bowel Syndrome.[9] A small proportion of patients with both fructose malabsorption and lactose intolerance also suffer from celiac disease.

Typical symptoms of fructose malabsorption include:

* Bloating (because of fermentation in the small and large intestine)

* Diarrhea and / or constipation

* Flatulence

* Stomach pain (due to muscle spasms, which can vary from mild and chronic to acute but erratic)

Other possible symptoms of fructose malabsorption include:

* Aching eyes

* Fuzzy head

* Fatigue

* Depression[10] as a result of absorption disorders in the small and large intestines, other substances such as amino acids are not absorbed. Because of missing substances (among others tryptophan), hormones and neurotransmitters cannot be synthesized.

IChaseFrisbees Explorer
Hi Frisbee,

Look what I found on the internet!!!! :)

This is from Wiki and talks about fructose malabsorbtion. I don't know if it applies to you or not, but I thot it might help you in your research. Lets get those doctors straightened out eh!? LOL I am not real familiar with the SCD myself, can't help you there.

Open Original Shared Link

Fructose malabsorption or Dietary Fructose Intolerance is a digestive disorder[1] of the small intestine in which the fructose carrier in enterocytes is deficient. As a result of this problem, the concentration of fructose in the entire intestine is increased. Fructose malabsorption is found in approximately 30-40% of the population of Central Europe, with about half of the affected individuals exhibiting symptoms.[

Symptoms

This condition is common in patients with symptoms of Irritable Bowel Syndrome and most patients with fructose malabsorption fit the profile of those with Irritable Bowel Syndrome.[9] A small proportion of patients with both fructose malabsorption and lactose intolerance also suffer from celiac disease.

Typical symptoms of fructose malabsorption include:

* Bloating (because of fermentation in the small and large intestine)

* Diarrhea and / or constipation

* Flatulence

* Stomach pain (due to muscle spasms, which can vary from mild and chronic to acute but erratic)

Other possible symptoms of fructose malabsorption include:

* Aching eyes

* Fuzzy head

* Fatigue

* Depression[10] as a result of absorption disorders in the small and large intestines, other substances such as amino acids are not absorbed. Because of missing substances (among others tryptophan), hormones and neurotransmitters cannot be synthesized.

That's very interesting...Gosh, I'd like to think it's just yeast that's the problem right now!! I'm going to do another stool test to check the yeast, if it's still excessive than I guess I'll have to assume that's my problem, thank you very much however for bringing this up in case my symptoms don't clear up!

AliB Enthusiast
AliB, I appreciate your repeated references to the SCD.

I'd been feeling somewhat better on the gluten-free diet, but old symptoms were creeping back in. I was quite sure i wasn't being glutened, so I cut out pretty much all starchy carbs and sugars for a week. As a result i am suddenly filled with energy, my skin looks clearer, and the mental fog has dispersed. I will be looking into the diet a little more carefully now, and am grateful I knew the basics from this site.

I understand that it's important to keep different medical theories in context, and remember that we're not all identical - what works for one person may not work for another, but I can only remember ever seeing you mention the Specific Carbohydrate diet as a genuine response to somebody who had come onto these forums asking for the help of the community, because they'd found that the basic gluten free thing just wasn't enough.

For most of us here, the generally accepted rules about nutrition just don't apply. How could we possibly NOT inform ourselves about the other possibilities?

Thanks Bell for your support. As far as the references to the SCD are concerned I have merely been trying to pass on what was given to me and for which I am exceedingly grateful. I came to this site as a raw gluten-free 'recruit' after gluten-free initially removed the awful stomach pain and diarrhea, but frustrated because my digestion could still not tolerate all these supposedly wonderful gluten-free 'goodies', or indeed much at all. The SCD was offered to me as a lifeline, and without it I would still have been struggling.

I am glad that you have had a good response to your little experiment.

Ali.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - HAUS posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

    4. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,427
    • Most Online (within 30 mins)
      7,748

    Bennie Matthews
    Newest Member
    Bennie Matthews
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.