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Are These The Right Tests?

beterraba

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beterraba Rookie
beterraba
Posted

These are tests that are still pending:

Gliadin IgA, Gliadin IgG, Transglutamin IgA, Transglutamin IgG, Endomysial Ab IgA, Quantitative IgA

Of course my H. Pylori test came back negative. If I'm above or below any of these ranges, does that prove or disprove celiac?

Thanks!

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happygirl Collaborator
happygirl
Posted

Those are the right tests for Celiac.

The total/quantitative test is not a Celiac test, per se - instead, it looks to see if you are IgA deficient. If you are, then the IgA based tests won't be accurate. If you are IgA deficient, you could have Celiac, but test negative for it.

No one test is perfect for Celiac, but the tTG & EMA tests are newer and generally more sensitive/specific.

  • 2 weeks later...
Ticketlady Newbie
Ticketlady
Posted

When you have these blood tests are they looking for low or high numbers? Here are the numbers I had;

IgA 84 (lab range 81-463)

IgG 1136 (lab range 694-1618)

IgM 54 (lab range 48-271)

My doctor says I do not have celiac disease. I have been having a tough fall and winter with fatigue, brain fog, joint pain, etc. My thyroid TSH was slightly elevated at first but has since come down to a normal range. I have had a lot of blood work. The only other one that came up abnormal was the ferritin level that was very low. Any help of these blood tests would be appreciated.

happygirl Collaborator
happygirl
Posted

Hi ticketlady,

The tests that you posted are not for Celiac. Doctors often run the "IgA" test in conjunction with the celiac tests, but the total IgA is not a Celiac test, itself. How did you doctor determine you don't have Celiac? Did you have any tests run that say things like anti gliadin (AGA), tissue transglutaminase (tTG) or endomysial (EMA)?

Ticketlady Newbie
Ticketlady
Posted

I thought those were the tests I was looking for. She also did Tissue Transglutaminase Antibody (IgA), and Endomysial Antibody Screen both of which she said were normal but did not give me numbers. She was the one who suggested I could have celiac and I want to make sure the proper tests were done and right now from what I read here I don't think I've had the correct tests. I know she has screened me for Lyme, HepC, inflamation, Rheumatoid Arthritis and othe things that I can't recall at the moment.

happygirl Collaborator
happygirl
Posted

The tTG IgA and EMA screen are the two most sensitive/specific tests for Celiac. It doesn't mean you don't have it since you tested negative, but the chances are lower given negatives on both (which is why she doesn't think you have Celiac).

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      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
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