Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Remember When....?


digmom1014

Recommended Posts

digmom1014 Enthusiast

Has anyone else experienced whole periods of time that you can't remember? I have people all the time saying to me, remember when we did this or that....but I don't really remember the incident.

I probably have been gluten allergic my whole life but had the added "brain fog" from the chemotheraphy I had several years ago.

Is anyone elses "brain fog" as bad as mine is? I don't have a problem thinking of the correct vocabulary, remembering my keys, or most short term identifiers. However, whole vacations, funny/tragic incidents, and day to day events are gone from my memory.

It is very fustrating and I find myself pretending I remember in quite a few incidences.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



curlyfries Contributor

Oh, yes........have lost much of my childhood.

I always thought there must've been some reason my mind has blocked it out,,.....even thought about hypnosis. But now I realize that the older I get, some adult memories are being lost, also. It feels like I haven't been present in my own life.

I also pretend sometimes when people ask..........very frustrating.

flourgirl Apprentice

I'm the same way. There are huge chunks of my childhood that are just plain old gone. I also wondered if there was something about it that made me block it all out. It also applies to a great deal of my adult life, just gone. I spent a lot of my life "drifting" if you know what I mean....struggling just to go from day to day without any real goal or plan...going with the flow. How much different would our lives have been if we had use of our full mental capacities? We'll never know. I was always very introspective, my mother used to tell me I had no common sense. When talking to other people I realize that other people remember so much more than I do, somehow I filed all that stuff in the wrong drawers and can't find any of it :D:(

ravenwoodglass Mentor

It is frustrating and at times a bit sad. I did eventually get to the point where I couldn't name day to day things and at times forgot what to do with my car keys, that was really scarey. Thank goodness a lot has resolved but it seems what was locked in there from younger years is forever lost. It is nice to know I'm not alone in this issue. Thanks for bringing it up.

ang1e0251 Contributor

I will have to say I'm optomistic about my memory. It's getting better and better. When asked something, like someone's name, and I get the doink look on my face, in the past I could either never recall the name or maybe in a few days recall it. Now after a few seconds or maybe a minute I can usually recall it. A major accomplishment for me!!

Sometimes I have to remember it "sideways". I have to think of something related to it or an incident where I knew it before. This morning I was commenting on a customer to my DH, to remember his name, I had to visualize him then his wife. Her unusual first name came to mind, then in another second the last name which allowed me to remember his name. That sounds frustrating but when on gluten last year, I wouldn't have remembered it at all. I'm happy with this progress.

I used to feel like I was fighting a battle with my brain and now it feels like we've signed a truce!

harp1 Apprentice
I will have to say I'm optomistic about my memory. It's getting better and better. When asked something, like someone's name, and I get the doink look on my face, in the past I could either never recall the name or maybe in a few days recall it. Now after a few seconds or maybe a minute I can usually recall it. A major accomplishment for me!!

Sometimes I have to remember it "sideways". I have to think of something related to it or an incident where I knew it before. This morning I was commenting on a customer to my DH, to remember his name, I had to visualize him then his wife. Her unusual first name came to mind, then in another second the last name which allowed me to remember his name. That sounds frustrating but when on gluten last year, I wouldn't have remembered it at all. I'm happy with this progress.

I used to feel like I was fighting a battle with my brain and now it feels like we've signed a truce!

It's funny, the B12/Magnesium shots are helping my memory and my over all mood. I feel much more stable mentally. It's a wonderful thing. More confident about my memory. ( for example with my private music students)

digmom1014 Enthusiast

Maybe I should try the B-12/ Mag shots too. I take the oral B-12.

Does a dr. administer your shots?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    2. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    3. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748

    ebrown
    Newest Member
    ebrown
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.