Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Reassurance


BamBam

Recommended Posts

BamBam Community Regular

I just need some reassurance that the anxieties related with wheat/gluten will go away in time. I've had a rough week and just need some good vibes!

Bambam


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



angel-jd1 Community Regular

Hang in there. Are you having anxiety just from not being sure of what to eat?? Do you have stress somewhere else in your life right now? I guess I am not sure what you mean by anxiety.....

My great grandma always says "this too shall pass". Keep your chin up.

-Jessica :rolleyes:

BamBam Community Regular

I should have been a little clearer - but I guess I am just having anxieties related to always having to check everything I eat and people not understanding and stuff like that. Thanks for asking.

Bambam

angel-jd1 Community Regular

Well I can't say that you will ever have to stop reading labels. I also can't say that people will ALWAYS get it. But you will become more accustom to reading labels and more used to putting up with "stupid" people!! ha :lol:

Here soon you will learn to rattle off a speech to them so that they can become educated on Celiac. You won't even think twice when they don't get it. Just HELP them "get it". I find that easier than expecting them to do it on their own.

Label reading is tricky. I find it best to call the companies myself. That way I am for sure if a product is safe for me. Someone on the board may say that they called and it is safe. I will then go ahead and call on my own just to verify for my own info. I feel safer that way. (maybe obsessive, but hey it's my health ;) )

It gets easier with time.

-Jessica :rolleyes:

celiac3270 Collaborator
Hang in there. Are you having anxiety just from not being sure of what to eat?? Do you have stress somewhere else in your life right now? I guess I am not sure what you mean by anxiety.....

My great grandma always says "this too shall pass". Keep your chin up.

-Jessica :rolleyes:

My mom always says that to me, too! :lol: "This too shall pass."

ianm Apprentice

As far as dealing with idiots there just isn't much we can do. You can lead people to knowledge but you can't make them learn anything. :lol: You just have to hold your ground, it is YOUR body and it is YOUR responsibility to take care of it. If they don't like it then that is THEIR problem NOT YOUR problem.

How long have you been gluten-free? You didn't say in your posting.

In time learning what you can and cannot eat just becomes a habit. As your body heals you will feel better and you will readily embrace the gluten-free lifestyle. I have lost so much and basically wasted the first 36 years of my life because of this disease. To dwell on the past just isn't going to make this go away. My life is so much better now and there is so much to look forward to because I am finally healthy.

It does get better and remember we are only a few mouse clicks away.

Ianm

mela14 Enthusiast

We all need reassurance. That's one of the good things about this board. We've all gone through our own hell and we can all relate.

Hang in there. Things will get better. We just have to learn exactly what our bodies can tolerate. If people don't get it...it's their problem. I just got off the phone with my brother and he said "your number one priority is to yourself". He said to "do whatever you need to get better and don't worry about explaining to others". I guess that's it in a nutshell. It seems so simple when others put it into words...... and yet we get all bent out of shape if we have to explain ourselves to anyone!

Take care of yourself,


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



judy05 Apprentice

I felt really good tonight, I walked into my favorite Denny's restaurant and I realized that most of the waitresses recognized me as having a gluten intolerance. They don't quite remember the term gluten or celiac but my server teased me and said "when you walk in the door we know that we have to clean the grill and get out the clean utensils." As she took my order she asked if I wanted toast and immediately slapped herself in the face and said she was sorry because she realized what she had done. This really made me feel much better because people are starting to get it, even if it is one small step at a time. My sister-in-law is starting to understand and even thinks that she wants to get tested because she has a lot of the symptoms and she read an article about osteoporosis and recommendations that people with this disease should be screened for celiac. My grown children are listening and asking questions because they know how sick I was and seemed to be impressed with the progress I have made. My son said he didn't realize that we could go in a restaurant and tell them how to prepare our food. Denny's have bent over backwards for me, they read labels and let me know

what ingredients they have. Please don't get discouraged, things will get better for us. Just think of yourself as a pioneer helping others to "map out a workable plan "

for others to follow. I figure that there is a reason why I have this and I try to focus on the positives!

ianm Apprentice

I have to travel a lot for work and every Denny's I have eaten at has made an effort to accomodate me. They at least allow me to substitute any bread with something else. Have never had a problem with anything I've eaten at Denny's.

Ianm

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.