Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kicking Myself.

miss vivian

By miss vivian
in Coping with Celiac Disease

Recommended Posts

miss vivian Newbie
miss vivian
Posted

I am so mad at myself, I actually started to cry. :(

I made these cookies that I thought were gluten free. They weren't They were organic. Yep, they had wheat in them....I ate one half of a bite of one, they were terrible anyway. Then I read the box again. How could I have been so careless?

I have NOT made one mistake in 3 months - and I have been so careful....

I feel okay - other than the fact that I'm depressed as hell. My biopsy came back normal after going gluten free for 5 weeks, so I imagine I will have to figure this as a set back and go from here.

I want to punch something right now I AM SO MAD at myself.

Just wanted to share my experience with you all.....

UGH!

Happy New Year and I hope that you're all doing ok.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AshleyS Newbie
AshleyS
Posted
I am so mad at myself, I actually started to cry. :(

I made these cookies that I thought were gluten free. They weren't They were organic. Yep, they had wheat in them....I ate one half of a bite of one, they were terrible anyway. Then I read the box again. How could I have been so careless?

I have NOT made one mistake in 3 months - and I have been so careful....

I feel okay - other than the fact that I'm depressed as hell. My biopsy came back normal after going gluten free for 5 weeks, so I imagine I will have to figure this as a set back and go from here.

I want to punch something right now I AM SO MAD at myself.

Just wanted to share my experience with you all.....

UGH!

One bite of a cookie isn't the end of the world. It most likely won't even have an effect on your body, so don't stress yourself out!

No point in being depressed and dwelling on something so ridiculous. We all have slip-ups. Just give the cookies away.

Happy New Year and I hope that you're all doing ok.

Mtndog Collaborator
Mtndog
Posted

I'm so sorry- but even after 4 years I STILL make mistakes. It's OK- we're human and celiac/gluten-free is a HUGE learning curve.

Just hope it doesn't make you feel badly.

miss vivian Newbie
miss vivian
Posted
  • Author

Thanks, to both of you for your responses.

I've been so good about not making mistakes - I just can't believe I did this.. I did it to myself!

I threw the cookies away. They were horrible, that's when I took a second look at the box because I was talking outloud, saying how crappy gluten free stuff is... then I saw what it said on the box. Made with organic wheat.

UGH!!! I had a meltdown. But I am going forward from today... I DO feel a slight burn in my stomach, like heartburn - that's what it makes me feel like....

Oh well, onward march...

Thanks again.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Forget the cookie mixes--make from scratch!

This recipe tastes just like regular Tollhouse: Open Original Shared Link (scroll down for the chocolate chip cookie recipe)

They use this flour mix: Open Original Shared Link

I use butter-flavor Crisco for the shortening, but plain shortening works just fine, as does coconut oil (which is solid at room temp). The brown rice flour she uses is very expensive, so I use half Bob's Red Mill (which is a bit gritty) and half white rice flour from the Chinese grocery (cheap and very fine). I didn't have dark brown sugar, and used light brown, and they were still yummy, so it's a very forgiving recipe!

It takes maybe 5 minutes longer than using a box mix, but makes twice as much. I usually double the recipe and keep the dough in the fridge and make a dozen or two at a time, for fresh cookies for the kids every day! I do the same thing with pancake batter. (But don't keep for more than 5 days unless you freeze it, because of the raw egg.)

EmmyLouWho? Newbie
EmmyLouWho?
Posted

You sound like me! I made a mistake this weekend. Actually I had Quaker Rice Cakes. Boy was that a mistake. The sad thing is I had JUST contacted the manufacturer to ask if any of their products were gluten-free (I had just bought their corn meal) and they told me they can

MELINE Enthusiast
MELINE
Posted

I understand you are feeling frustrated but when I make a mistake (in this year I 've had about 10) all the bad reaction go away in 1-2 days (with the help of sleep and water). Don't be so hard on your self! And this mistake definately didn't take you back to day 1. It is just a break and then you keep going. You are human...and yes you will have more gluten mistakes in your life.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


miss vivian Newbie
miss vivian
Posted
  • Author

THANK YOU for all of your stories and support.

I am hoping that they find a cure for us - not so that we can go crazy and eat whatever we want, but at least it can lessen the fear and dread of eating something bad by accident.

:)

MELINE Enthusiast
MELINE
Posted

I don't know how this will sound....Any way, I'll say it . I am not sad that I have celiac. I 've learned that I can have discipline and enjoy my food more and I am happy that it is not something serious / fatal.

I really enjoy it when people tell me "If I had to follow that diet, I couldn't do it. " That makes me proud. "Healthy" people think their life is food. They can't imagine them selves without pizza. That is pathetic.. I don't NEED pizza to live a normal life...! (to tell you the truth there is bad and there is worse. Gluten free is bad.Ok. And I have to follow a candida diet. You don't wanna know how limiteted THAT IS...I couldn't believe it when I first saw what I was supposed to eat. Consider your self lucky. You can have candies, fruits, rice, juices, coffee, sugar, potatos, nuts, cheese.....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      3

      New issue

      Nope its just me because they can eat wheat and when we use same pans I found out last year thanks to you guys and the autoimmune website im learning,we are not to share though clean, same with sponge. I just wish doctors understood. I am with new gi and new pcp but im falling apart because blood work is fabulous.Im so ANGERY.I have reached out to my local...
    2. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      My journey is it gluten or fiber?

      If you haven't noticed a difference yet, bump up your Thiamax. Add in another Thiamax with breakfast and lunch. Increase the NeuroMag as well. You can add in another Benfotiamine, too. Thiamine is safe and nontoxic even in high doses. Taking more is fine. I had to bump mine up several times when first starting. It's a matter of finding what...
    3. knitty kitty
      - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      13

      Insomnia help

      Hello, @hjayne19, About half of the people with Celiac disease react to the protein Casein in dairy the same as to gluten with the inflammation and antibodies and all. Reacting to Casein is not the same as lactose intolerance nor a dairy allergy. Damaged villi are incapable of producing lactAse, the enzyme that digests lactOse, the sugar in dairy....
    4. trents
      - trents replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      13

      Insomnia help

      You may be cross reacting to the protein "casein" in dairy, which is structurally similar to gluten. People assume lactose intolerance is the only problem with dairy. It is not, at least for the celiac community.
    5. Scott Adams
      0

      Can Your Gut Microbiome Predict Celiac Disease Years in Advance?

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,101
    • Most Online (within 30 mins)
      7,748
    Steve Olson
    Newest Member
    Steve Olson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jmartes71
      New issue

      By Jmartes71 · Posted

      Nope its just me because they can eat wheat and when we use same pans I found out last year thanks to you guys and the autoimmune website im learning,we are not to share though clean, same with sponge. I just wish doctors understood. I am with new gi and new pcp but im falling apart because blood work is fabulous.Im so ANGERY.I have reached out to my local representative, in Stanislaus but its just weekly stuff.Im going to need to physical go down there.Any recommendations on what to say and do because this is absolutely ridiculous. If I didn't have my husband though we are really hurting with one income, I would absolutely be one of the homeless population. Thats alarming begging to be heard about a diagnosis that was given as an adult and dealing with this, medical needs to stick to patients regardless of switching insurance or doctor. 
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      If you haven't noticed a difference yet, bump up your Thiamax.  Add in another Thiamax with breakfast and lunch.  Increase the NeuroMag as well.  You can add in another Benfotiamine, too.   Thiamine is safe and nontoxic even in high doses.  Taking more is fine. I had to bump mine up several times when first starting.  It's a matter of finding what works for you.  Everyone is different.   Stick with it.  Some of the health improvements are very subtle and gradual.   Keep going!  You're doing great!
    • knitty kitty
      Insomnia help

      By knitty kitty · Posted

      Hello, @hjayne19, About half of the people with Celiac disease react to the protein Casein in dairy the same as to gluten with the inflammation and antibodies and all.  Reacting to Casein is not the same as lactose intolerance nor a dairy allergy.  Damaged villi are incapable of producing lactAse, the enzyme that digests lactOse, the sugar in dairy.  When the villi grow back, the villi can resume making lactase again.  I react to casein. Keep in mind that part of the autoimmune response to gluten and casein is the release of histamine.  Histamine causes inflammation, but it is also powerful excitory neurotransmitter, causing heightened mental alertness.  Histamine release is what causes us to wake up in the morning.  Unfortunately, excessive histamine can cause insomnia.  Our bodies can make histamine, but foods we eat contain different amounts of histamine, too.  Our bodies can clear a certain amount of histamine, but if overwhelmed, chronic high histamine levels can keep inflammation going and cause other health problems.   I got very weary of playing Sherlock Holmes trying to deduce what I was reacting to this week, so I adopted the low histamine version of the Autoimmune Protocol diet, a Paleo diet designed by a doctor with Celiac, Dr. Sarah Ballantyne.  Her book, The Paleo Approach, has been most helpful.   The low histamine AIP diet cuts out lots of foods that are known to be irritating to the digestive tract.  After a few weeks, when my system was calmer and healing, I could try adding other foods to my diet.  It was much easier starting with safe foods, adding one thing at a time, and checking for reactions than trying to figure out what I was reacting to with so many variables.  I learned to recognize when I had consumed too much histamine from different combinations of foods.  Everyone is different and can tolerate different amounts of histamine in their food.  B Vitamins help us make enzymes that break down histamine.  Vitamin D helps regulate and calm the immune system.  Supplementing with Thiamine helps prevent mast cells from releasing histamine.  Keeping a food-mood-poo'd journal helps identify problematic foods.   I hope you will consider trying the AIP diet.
    • trents
      Insomnia help

      By trents · Posted

      You may be cross reacting to the protein "casein" in dairy, which is structurally similar to gluten. People assume lactose intolerance is the only problem with dairy. It is not, at least for the celiac community.
    • hjayne19
      Insomnia help

      By hjayne19 · Posted

      Hi @knitty kitty  Just revisiting this to get some help. I found after understanding the extent of my anxiety, my sleep got a little better. Flash forward to a few weeks later I have had a few bad sleeps in a row and I feel desperate for a good nights sleep. I understand worrying about it won’t help but one thing I had tied things too was dairy. Initially when I went gluten free I felt great for the first few weeks then started having some stomach pain. So thought maybe I was lactose intolerant. I started eating lactose free Greek yogurt and that did help take the cramping away I guess. Over the last few months I haven’t eaten it every single day and I went a few weeks without it. The last few nights I did have a small amount with breakfast and noticed that was the only new thing I’ve really added to my diet. I had seen a few other posts about this. Is it possible to still react to lactose free? Would this potentially be a dairy allergy? Or something else. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.