Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Was Just Diagnosed


Jamie

Recommended Posts

Jamie Contributor

Hello, I'm Jamie... I was just diagnosed this past Tuesday. I LOVE bread.. I LOVE food.. I am also a hyopglycemic and I crave this stuff especially. I also work out heavily on a daily basis and my go to foods have always been bread. This has been very hard for me. And it has only been a few days. I am going shopping today. If anyone has any suggestions at all.. that would be great... a good tasting bread to buy...every day product names that are already gluten free... recipes.. good cook books.. good web sites.. good gluten free brand names... things to watch out for... I would appreciate any advice right now. My best friend has it.. so she is helping me. And my other best friend's family owns a gluten free restaurant... Cafe Baldo (If you're from NY you may have heard of it).. so I am getting a lot of support already.. which I am thankful for.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MELINE Enthusiast

sorry I can't help you since I don't live in US. But I would like to welcome you....! :rolleyes:

I am sure you will get much help from the others of the forum.

Meline

MySuicidalTurtle Enthusiast

Here are some things my family (Celiacs too) and my boyfriend and I like to get:

Kinnikinnick brand

San-J soy sauce

Amy's rice bowls and Bistro burger

Van's brand waffles

Thai Kitchen brand

Schar brand

Orgran brand

Ener-G brand is getting better

Rice Chex (one version is gluten-free and labeled so)

You are lucky to live near NYC, so many good gluten-free restaurants! Enjoy!

Jeremiah Apprentice
Hello, I'm Jamie... I was just diagnosed this past Tuesday. I LOVE bread.. I LOVE food.. I am also a hyopglycemic and I crave this stuff especially. I also work out heavily on a daily basis and my go to foods have always been bread. This has been very hard for me. And it has only been a few days. I am going shopping today. If anyone has any suggestions at all.. that would be great... a good tasting bread to buy...every day product names that are already gluten free... recipes.. good cook books.. good web sites.. good gluten free brand names... things to watch out for... I would appreciate any advice right now. My best friend has it.. so she is helping me. And my other best friend's family owns a gluten free restaurant... Cafe Baldo (If you're from NY you may have heard of it).. so I am getting a lot of support already.. which I am thankful for.

Chipotle Burrito Bowls, Wendy's and McDonalds Gluten Free List on their website, Hy-Vee and Price Chopper (have a printable list and it's HUGE on their websites of all their gluten free foods) these should get you started, and cover way more than the basics.

candrews Newbie

I was diagnosed 2 years ago and understand how hard it can be, especially at the beginning. There's a really great new book out: "The First Year: Celiac Disease and Living Gluten Free" by Jules Shepard, that has tons of great tips, recipes, and all of the practical need to know tips that doctors don't know. My friend just got diagnosed and said this book really helped her start off--I still learned new things from it even after 2 years eating gluten-free. Also, this author has a really great flour mix that can be used to make all of your old favorite foods (and they actually DO still taste good!) My family orders it online at www.nearlynormalkitchen.com--my favorite thing to do with it is make tollhouse chocolate chip cookies. This flour you just use in any of your favorite recipes and they turn out so much better than other gluten free flours.

Other products that my family (5 out of 6 gluten-free eaters) relies on are:

Ener-G Pretzels

EnviroKids Crispy Rice Bars

Rice Cakes and Peanut butter

LaraBars

Good luck--it's intimidating and frustrating at first, but feeling better is totally worth it!

  • 2 months later...
hannahp57 Contributor

i love glutino, schar, kinnickinikk, gluten free pantry, and pamela's

there are also lots of cook and baking books if you would like to make your own. Roben Ryberg is one of the best i have seen so far. Her first book has one of the best biscuit recipes i have ever had (including regular).

bread was my favorite food before. if you can find schar's white rolls (sold in a 4pack) they are almost like real bread. my husband ddn't even notice they were different until he saw me take a bite of it. haha. so i highly highly recommend them. i think they would be worth the shipping if they arent sold near you.

hannahp57 Contributor

my favorite food was bread to. if you can find schar's white dinner rolls, they are amazing! almost the real thing in taste. my husband couldnt taste the difference at all.

also pamela's glutino kinnickick gluten free pantry cherrydale farms have good mixes.

all the stuff is sort of expensive so that takes some getting used to.

i found an Ian's pizza kit (no gluten, dairy, or soy) and it was very good. i made one mistake and didnt put any seasonings in the crust, when i mixed it so it was a little bland, but the texture and flavor were good and even tasted good the next day. highly recommend that:)

nana's has good cookies.

bakery on main is the best granola ever. my sister and her friends tried to eat all of mine!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



brigala Explorer

Glutino pretzels are very good. All the other gluten-free pretzels I've had come with a funny taste.

Try Annie's Rice Macaroni & Cheese, or the Trader Joe's version. They're very good.

Keep an eye out for specially marked "Gluten Free" boxes of Corn Chex, Rice Chex, Strawberry Chex, Honey Nut Chex, and Chocolate Chex. General Mills is in the process of switching these over to Gluten-Free formulas, but only the gluten-free Rice Chex are available everywhere so far.

The bread cravings should subside over time. Many people with Celiac experience these cravings, and sometimes no gluten-free bread will satisfy it. For some people with Celiac, it seems that gluten creates an opioid-like chemical in the brain, and going off it will be like withdrawal from drugs. My sister experienced this badly. I didn't have too much trouble with it. In the meantime, grab a few mixes and make your own bread. Don't be afraid of it -- it's much easier than making gluten bread. Other than letting your bread rise, it's more like making cake than bread. I like Bob's Red Mill, Pamela's, and Gluten Free Pantry. So far, I haven't found an off-the-shelf bread worth eating, let alone worth paying an arm and a leg for.

Welcome aboard! It's overwhelming at first, but it does get easier as time goes by.

-Elizabeth

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,218
    • Most Online (within 30 mins)
      7,748

    tiffhorn14
    Newest Member
    tiffhorn14
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.