Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cold Sores


*lee-lee*

Recommended Posts

*lee-lee* Enthusiast

i woke up yesterday to feel my lip tingling...i've been getting cold sores for 10 years now so i knew what to do. i applied Abreva periodically all day only to discover the one cold sore turned into a cluster of them by nighttime. UGH! then i ran out of Abreva late last night so i'm off to get more.

does anyone else get cold sores and what do you use for them? my lip is burning and tingling and i feel like i'm talking funny so i don't move my mouth too much.

did i get glutened and this is how it's coming out? i don't feel feverish and i'm not overly stressed (i was 2 weeks ago but not so much anymore) so i'm not sure what else would have caused it. stress or too much sunlight usually triggers cold sores in me but since it's been about 2 degrees for the high temp, i haven't exactly been spending much time outside lately!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

A lot of people report mouth sores of one type or another. Sometimes from a glutening, other times from something else. If you haven't been getting them for awhile since going gluten-free, and haven't had anything new in your diet, skin/hair care products, etc, then I'd think it was gluten related. But if you're continuing to get sores at the same rate since gluten-free, then I'd be thinking there's something in your diet or skin/hair care products that is getting you.

*lee-lee* Enthusiast

i usually get 3-4 cold sores on average per year. what's strange though is that i specifically remember purchasing Abreva last January so i know i had a cold sore this exact same time last year (before i was gluten free). the only thing different i've eaten lately is the new Strawberry Chex on Saturday morning. i hope i didn't get glutened from them because they're so good!

fedora Enthusiast

my daughter was get 3 kinds of mouth sores

cold sores, sores in the corner of her mouth, and white sores in her mouth

the PA said the ones in the corner are from a bacteria/ yeast combo

the white sores in the mouth are associated with celiac, which my daughter does not have

the cold sores are herpes. I thought her sores may have been from gluten, I put her on a gluten free trial diet. I ended up getting her sore swabbed and it was positive for herpes.

I would suggest getting your sores tested.

*lee-lee* Enthusiast

i know my sores are cold sores, as a form of herpes. when i had my first outbreak over 10 years ago, i had to go to the dentist and regular doctor because it was so bad. my lips were covered and then they spread to the insides of my mouth and even on my tongue. the doctors confirmed they were legit cold sores and prescribed Denavir (OTC Abreva wasn't on the market yet). it was horrible and thankfully i haven't had an outbreak nearly as bad. i wouldn't wish cold sores on my worst enemy.

jitters Apprentice

L-Lysine works awesome for me to hold off those cold sores. It is an amino acid and you can find it in the vitamin aisle at any store. Its way way cheaper than Abreva (which doesn't work for me anyway). I take two pills in the morning and two at night. Believe it or not its made my acne go away too.

I used to get cold sores when glutened all the time, and once in awhile just out of the blue. Lysine makes them way smaller and they don't scab over and heal faster for the rare times I get a cold sore now.

I should add that the bottle suggests taking one in the morning and one at night- I'm taking two now but am going to lower my dosage to what the bottle suggests. If you're taking any other meds, you might want to ask your doctor about Lysine but everything I've read says Lysine is safe.

EmmyLouWho? Newbie

I dealt with cold sores for the last 15+ years myself! It's a terrible problem to have. Thankfully, since going gluten-free, I had one small one and that was all. The only thing I found that has ever helped me is a product called "Kanka". It numbs the area (temporarily) so at least I'd be able to get through a meal without so much pain. My cold sore that I'm getting over happened a few days after I got glutened. Coincidence? In my opinion, no way.

Hope you find some relief and that you don't experience any more!

*lee-lee* - I didn't think the strawberry chex were gluten-free. I might be wrong but as far as I knew only the plain rice chex are gluten-free. I hope I'm wrong for your sake!

ETA: My cold sores are always inside the mouth, never on my lips so Kanka may not work for coldsores on the actual lip


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 month later...
Nilesrx Newbie
I dealt with cold sores for the last 15+ years myself! It's a terrible problem to have. Thankfully, since going gluten-free, I had one small one and that was all. The only thing I found that has ever helped me is a product called "Kanka". It numbs the area (temporarily) so at least I'd be able to get through a meal without so much pain. My cold sore that I'm getting over happened a few days after I got glutened. Coincidence? In my opinion, no way.

Hope you find some relief and that you don't experience any more!

*lee-lee* - I didn't think the strawberry chex were gluten-free. I might be wrong but as far as I knew only the plain rice chex are gluten-free. I hope I'm wrong for your sake!

ETA: My cold sores are always inside the mouth, never on my lips so Kanka may not work for coldsores on the actual lip

I used to get them all the time...big and bad! I just got one the other day, first in a long time. Valtrex and Abreva work great. Valtrex stops mine almost instantly and what is left I simply keep Abreva on it 24/7. I would definately have your Dr get you a rx for Valtrex 1gm, you take two the instant you feel one coming on. I dont mind them anymore because it wipes it out.

  • 3 years later...
wartburg03 Rookie

I've been getting cold sores since I was 4. I get them on my nose, around my eye, on my lip, and even once in my eyeball! I have had a lot of success with avoiding foids with a high arginine/lysine ratio. This means avoiding foods like nuts, peas, and caramel coloring (plus lots more) as a general rule, but even more so when my system is stressed out. If I do feel one coming on (like right now :( ), I break out the lysine and take 3,000 mg 3-4 times a day. Often that keeps them at bay. I usually take 1,000 mg a day for prevention. Good luck!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,543
    • Most Online (within 30 mins)
      7,748

    Carol Zimmer
    Newest Member
    Carol Zimmer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.