Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dairy Free


celiac-mommy

Recommended Posts

celiac-mommy Collaborator

I called to make an appt for the kids' yearly checkup with the gastroenterologist. He called me back to see how things were going and I mentioned that our dd has been complaining of random stomachaches. They aren't consistant and I know she uses them to get out of things sometimes (like chores and bedtime), but I would feel horrible to ignore them and have it actually be an issue. Anyway, he called back again and asked that we completely remove dairy for 3 weeks prior to her appt and then monitor the stomachaches.

I know the obvious substitutions for milk, yogurt, cheese and I will make as much of an effort as I can to diversify the alternate sources--don't want to sub all soy for example. But I need to know what else to look for. Is being dairy/casein free as critical as being gluten-free? Is cc as important? I know for those 3 weeks I will do my darndest to make sure cc doesn't happen, but if this turns out to be the culprit, I need to know (I am SOOOOO praying this isn't the issue!!).

Any help from all you df'ers out there, I would so much appreciate your wisdom. I kind of feel like I'm starting all over again! :huh::huh:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MaryJones2 Enthusiast
But I need to know what else to look for. Is being dairy/casein free as critical as being gluten-free? Is cc as important?

I'm sorry that your son is having issues. It is so frustrating at times. I've been dairy-free for 3+ years and I have to be every bit as careful with dairy as gluten but that isn't the case for everyone. I find a lot of dairy cc in products so you'll need to research the brands and ask the same questions about processes, manufacturing, testing, etc. Lactose is a popular additive to medications so that's something to check too.

AliB Enthusiast

Well, you could be right - it might not actually be the issue - there are so many things that we can potentially be intolerant of, but dairy is certainly a contender.

When I was totally dairy-free (I can tolerate a little now my gut has healed somewhat) I had to avoid it completely or even a small amount would bung me up which was a sure sign it wasn't working through properly. In some people it causes D. My daughter has been trying to get our youngest grandson on DF but it is so difficult - on top of the being small for his age and having some learning delay his symptoms are wiry untameable hair and a fairly regular rash, but then he is not gluten-free and I wouldn't mind betting that is behind it.

Dairy is in so much, as you say, almost more difficult than gluten-free. As it is only for 3 weeks I think you need to try and give it your best shot, then at least you are more likely to know one way or another.

I am wondering if it might be an idea to keep a food diary of everything she eats and drinks to see if a pattern emerges? Reactions, as you know with gluten, don't always happen immediately. At least then if she is still getting the stomach pains whilst DF you may have a little more info to be able to pinpoint the real culprit.

taweavmo3 Enthusiast

I would definately stay away from replacing with soy like you said....it messes up my kids tummies as much, if not more, than dairy. We tried soy milk one night, and we were all up with bad stomach aches.

I think dairy is harder than gluten.....I know with my kids, so much of their "filling" foods were dairy. Most snacks were yogurt, cheese sticks, ice cream, etc. So it was quite an adjustment, but now we are used to it.

Here are a few of our staples:

Almond milk

Apples w/peanut butter & honey

Trail mix w/Rice Chex, raisins/craisins, and marshmallows

Delimex chicken taquitos for a quick snack...the beef ones have milk

Leftovers are essential.....I make huge batches, otherwise I never leave my kitchen!

Muffins and quick breads

For butter, I use Smart Balance w/olive oil. To bake, I use Earth Balance buttery sticks

And as for cheese, I haven't even bothered with replacements. There is only one I have found by Galaxy foods, and it was just okay. It wasn't worth the $5 for 8 slices when you have four kids!

As for ice cream, Purely Decadent makes a rice based ice cream that is pretty good. They also have a coconut ice cream that is supposed to be really delish, but I haven't tried it yet. Good luck with the trial, I hope you are able to figure out the cause of the tummy troubles.

lizard00 Enthusiast

I think dairy free can be harder than gluten-free, too. You really do have to look for it in places you wouldn't ordinarily think. I can't do soy either. In fact, if I had to chose, soy products make me sicker than their dairy counterparts.

I use rice milk for baking and stuff, ghee for butter, and goat cheese for cheese. Although your daughter may not like goat cheese... it's got a very disinct taste. I've recently started using nutritional yeast to add a "cheeselike" flavor. It's different, but adds a nice flavor.

I LOVE the coconut milk ice cream and yogurts. YUMYUM! They even have a gluten-free cookie dough flavor. :wub:

MaryJones2 Enthusiast

Liz's comments made me think of something else. You'll have to figure out the casein vs. lactose thing too. I happen to have issues with both so goat is out for me. I am a teetotaler but everyone has a different tolerance level.

celiac-mommy Collaborator

I'm having a little trouble trying to figure out the total difference between casein vs lactose vs dairy free. I'm thinking she should be all milk-product free for those 3 weeks, whether it's cow/goat/sheep~we eat a lot of specialty cheeses that are goat and sheep. I'm finding it really hard because like taweavmo3 said, my kids also eat quite a bit of dairy, snacks especially. She loves her cheese sticks and yogurt!! I know I can make my bread df, so she can still have that. She eats a large variety of foods and when I talked with her about this she seemed fine with it because she said I can always find substitutions for her. (she's such an amazing kid!) I think the thing that was most devistating for her is not being able to eat my homemade mac&cheese. It's a staple in our house and it's the only thing she ever asks me to make for her.

I don't cook a lot with dairy, so preparing meals isn't much of an issue either, it's the baking and the snacking. Also, it's the label reading. I was online yesterday for about 2 hours trying to plan menus and shopping lists and I agree to what was posted before~I think this is harder than going gluten-free-I think dairy hides in nutritional info more than gluten does! We really didn't have that much of an issue going gluten-free-all in all it was a very smooth transition. I am hoping this will be as well.....

For a milk substitute, which she doesn't drink a whole lot of, I will probably go soy. I know she likes Silk and it will mostly be for cereal anyway. What is the best alternate for baking? I've had rice milk once and wasn't a fan and almond milk didn't really taste to me, but maybe it would be good for cooking...?

Thank you all for your suggestions, I really appreciate it!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MaryJones2 Enthusiast
Open Original Shared Linkfrom the Dairy Council covers casein vs. lactose and might help you out. I tend to associate stomachaches with lactose intolerance and I think that's the easier one to avoid. There are a lot of lactose-free products out there.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - trents replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    3. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

    5. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,362
    • Most Online (within 30 mins)
      7,748

    DPC
    Newest Member
    DPC
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
    • knitty kitty
      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go!  I'm certain you'll feel much better.   Yes, supplementation is a good idea even if you're healing and gluten free.  The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices.  I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well.  I react to casein, the protein in dairy, as well as the iodine in dairy.  My Dermatitis Herpetiformis is aggravated by iodine.   Blood tests for B vitamin levels are notoriously inaccurate.  You can have deficiency symptoms before blood levels change to show a deficiency.  I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral.  Because the B vitamins are water soluble, they are easily excreted in urine if not needed.  It's better to have it and not need it than need it and not have it.   Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing.  Manufacturers add cheap vitamins that our bodies don't absorb or utilize well.  Even normal people can suffer from vitamin deficiencies.  The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy.  The calories are stored as fat in an effort to ration out diminishing thiamine  stores.    It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well.   Not sleeping well and fatigue are symptoms of Thiamine deficiency.   I'm certain Benfotiamine with a B Complex will help you immensely.  Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep.  Better to take them earlier in your day.   Do keep me posted on your progress!
    • NanceK
      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.