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Caveman?


weeza

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weeza Newbie

I wont bore you all with how I got here. Been yrs developing. I have been gluten-free for about a month although I know I had a couple slipups the first couple weeks. My stomach pains are gone, I have more energy, still have some bowel problems with carry over hemmeroinds. Going in for scope for that next week. Anyway.... My biggest problem is distention of stomach and bloating. I am never hungry and have to force myself to eat. I eat small amts. so I don't get too uncomfortable. I was always a big carb eater and still have been eating brown rice and a few other "OK" grains. I have lost 10 lbs, could stand to lose another 30 but my stomach is huge, tight and uncomfortable. My question after further investagating over the weekend is....Would it benefit me to cut out grains and basically do caveman diet? Have any of you done this and seen improvement in distention, and if I eat a wide variety can I meet my nutritional needs this way? Thanks


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wschmucks Contributor

Hi there-- Welcome to the world of Celiac and to the website. I had/ have terrible stomach distension too. When i first started noticing symptoms i thought I was just gaining weight. I started dieting, working out hard, etc and I couldnt understand why i wouldnt loose my gut! I am 5'7, 115 now but was 126 at the time. I have a small frame so 10 pounds is alot on me. I noticed it was all in the stomach too...that followed by other terrible symptoms is what got me to my Celiac diagnosis. I would eat a very small amount of food-- half cut of lintels and rice toast for lunch and feel disgusting-- like i had eated a big mac and fries. This GOES AWAY :-) YAY! BUT-- it takes time. I am only 3 months gluten free and I was able to start eating larger meals probably about a month and a half in or so. It depends on how often you get accidentally glutened. Even now revert to that old feeling at times so its not completely gone, but its getting alot better.

Bloating still bothers me but not any where near like it used to. I take a digestive enzyme (super digest away), Fennel seed pill, probiotics and liquid fish oil (about 10 times more potent than the pills) and those have really helped bring down the inflamation (which is what usually causes the bloating). I also drink alot of apple cider vinegar tea, but i suffer from C so im not sure if it is good to raise the aciditiy of your stomach if you have D. Keep working at it and be patient. It takes a while for us to get all fixed up!

As for the diet-- do whatever makes you feel best. Maybe try out the paelo diet and see if you feel good. I was vegan for a whole year (before diagnosed) and it made me feel alittle bit better, but didnt help with my symptoms over all. If you cant eat alot of food, it might be a good diet just to make sure that what you ARE eating is high in nutritional value. Good luck.

weeza Newbie

Wschmucks-Thanks for the info. I have been hesitant taking enzymes and such because I am so new at reading labels but have found and very knowlegable natural store that my be able to double check ingredients with me. I feel like I look like a turtle with the shell in front. This is a new "adventure" for me but spending 45 yrs just doing whatever, I am now learning how to read my body. Can you imagine never paying attention to your body for 45 yrs. Well live and learn. Thanks again for your help.

chasbari Apprentice
Wschmucks-Thanks for the info. I have been hesitant taking enzymes and such because I am so new at reading labels but have found and very knowlegable natural store that my be able to double check ingredients with me. I feel like I look like a turtle with the shell in front. This is a new "adventure" for me but spending 45 yrs just doing whatever, I am now learning how to read my body. Can you imagine never paying attention to your body for 45 yrs. Well live and learn. Thanks again for your help.

I too am newly diagnosed. Have been gluten free since right before Thanksgiving but was still having problems with foods that are supposed to be safe. Grains and things. I also would eat only because it was time even though I had that bloat all the time. Went Paleo last month and cannot believe how much better I am feeling. I had forgotten what it meant to actually be truly hungry. I am finding that chicked is the only thing that seems to be problematic thus far and I am following it very strictly as I also have rheumatoid arthritis and Sjogrens...which have responded incredibly well to the paleo diet. I find I have to guard vigilently against any soy as well.

Good luck!

Chuck

wschmucks Contributor
Wschmucks-Thanks for the info. I have been hesitant taking enzymes and such because I am so new at reading labels but have found and very knowlegable natural store that my be able to double check ingredients with me. I feel like I look like a turtle with the shell in front. This is a new "adventure" for me but spending 45 yrs just doing whatever, I am now learning how to read my body. Can you imagine never paying attention to your body for 45 yrs. Well live and learn. Thanks again for your help.

It is definetly trial and error, but you can always call the company or look it up online. I google products on my blackberry in stores ALL the time. Let me know if you have luck with the Paleo diet-- I was recently thinking about it too, I just dont know if I could do no sugar or grains...I think I would need one or the other. But if it really helps I'd do anything!

YoloGx Rookie

I have found the paleo diet to be very helpful over the years especially when I don't feel well, although I would also add root vegetables to it...

Bea

Jestgar Rising Star

I'm pretty paleo. I eat rice crackers occasionally, and I won't turn down sushi, if offered :P , but I don't prepare other grains for myself.

I eat root veggies in the winter (I'm not as interested in them in the summer), but I aim for the weird ones - parsnips and rutabagas and maybe beets. Minimal potatoes.


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jerseyangel Proficient

I most definately feel better eating Paleo-ish. Over the holidays, I upped my consumption of grains and sugar and in addition to gaining weight and feeling bloated, my digestion suffered. I had more D and lower abdominal discomfort.

I've gone back to meats, poultry, veggies (except legumes), fruits and nuts (walnuts and almonds), and tea and feel so much better already.

I also limit white potato to once a week or so.

WW340 Rookie

My stomach didn't start getting flat until I gave up grains almost entirely. I am not on a particular named diet, but I mainly eat meat, veggies - cooked and raw, fruit, eggs, cheese, and nuts. I occasionally have rice or a potato. I feel much better eating this way.

I never really had to eliminate dairy. It doesn't seem to bother me. I use dairy based dips with my raw veggies. I rarely eat grain based foods anymore. Once in a while I will treat myself to just a few gluten-free crackers or waffle.

oceangirl Collaborator

Hi!

I eat pretty Paleo as well and whenever I have symptoms again I revert to it religiously. My diet primarily consists of: Fish, meat, chicken, nuts, greek yogurt, cheddar cheese, (not so Paleo) veggies and fruits and I can eat raw sugar in tea; it doesn't seem to bother me.

I eat sweet potato quite often and white potato very rarely. I can tolerate Tinkyada but not rice. (Makes no sense, I know...)

Most common veggies and herbs that work are: swiss chard, romaine, garlic, basil, sweet potoatos, tomatoes, zucchini, summer squash, butternut, winter, and acorn squash.

Most common fruits: BANANAS! I've introduced oranges and grapes and cherries are very good. Strawberries and blueberries which I tend to make into homemade jam. I can also tolerate V8.

All this after almost 4 years and 2 years of that being gluten, soy, dairy, egg, legume, nightshade and citrus free! Now I am gluten, soy and legume free.

Hope this helps!

lisa

YoloGx Rookie
Hi!

I eat pretty Paleo as well and whenever I have symptoms again I revert to it religiously. My diet primarily consists of: Fish, meat, chicken, nuts, greek yogurt, cheddar cheese, (not so Paleo) veggies and fruits and I can eat raw sugar in tea; it doesn't seem to bother me.

I eat sweet potato quite often and white potato very rarely. I can tolerate Tinkyada but not rice. (Makes no sense, I know...)

Most common veggies and herbs that work are: swiss chard, romaine, garlic, basil, sweet potoatos, tomatoes, zucchini, summer squash, butternut, winter, and acorn squash.

Most common fruits: BANANAS! I've introduced oranges and grapes and cherries are very good. Strawberries and blueberries which I tend to make into homemade jam. I can also tolerate V8.

All this after almost 4 years and 2 years of that being gluten, soy, dairy, egg, legume, nightshade and citrus free! Now I am gluten, soy and legume free.

Hope this helps!

lisa

How nice you can eat tomatoes again! Shows you can get better after a while...

Wish I could have cheddar cheese! but it seems to still not be got for me. However yogurt I could almost eat all day...

Bea

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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