Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Caveman?

weeza

By weeza
in Coping with Celiac Disease

Recommended Posts

weeza Newbie
weeza
Posted

I wont bore you all with how I got here. Been yrs developing. I have been gluten-free for about a month although I know I had a couple slipups the first couple weeks. My stomach pains are gone, I have more energy, still have some bowel problems with carry over hemmeroinds. Going in for scope for that next week. Anyway.... My biggest problem is distention of stomach and bloating. I am never hungry and have to force myself to eat. I eat small amts. so I don't get too uncomfortable. I was always a big carb eater and still have been eating brown rice and a few other "OK" grains. I have lost 10 lbs, could stand to lose another 30 but my stomach is huge, tight and uncomfortable. My question after further investagating over the weekend is....Would it benefit me to cut out grains and basically do caveman diet? Have any of you done this and seen improvement in distention, and if I eat a wide variety can I meet my nutritional needs this way? Thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


wschmucks Contributor
wschmucks
Posted

Hi there-- Welcome to the world of Celiac and to the website. I had/ have terrible stomach distension too. When i first started noticing symptoms i thought I was just gaining weight. I started dieting, working out hard, etc and I couldnt understand why i wouldnt loose my gut! I am 5'7, 115 now but was 126 at the time. I have a small frame so 10 pounds is alot on me. I noticed it was all in the stomach too...that followed by other terrible symptoms is what got me to my Celiac diagnosis. I would eat a very small amount of food-- half cut of lintels and rice toast for lunch and feel disgusting-- like i had eated a big mac and fries. This GOES AWAY :-) YAY! BUT-- it takes time. I am only 3 months gluten free and I was able to start eating larger meals probably about a month and a half in or so. It depends on how often you get accidentally glutened. Even now revert to that old feeling at times so its not completely gone, but its getting alot better.

Bloating still bothers me but not any where near like it used to. I take a digestive enzyme (super digest away), Fennel seed pill, probiotics and liquid fish oil (about 10 times more potent than the pills) and those have really helped bring down the inflamation (which is what usually causes the bloating). I also drink alot of apple cider vinegar tea, but i suffer from C so im not sure if it is good to raise the aciditiy of your stomach if you have D. Keep working at it and be patient. It takes a while for us to get all fixed up!

As for the diet-- do whatever makes you feel best. Maybe try out the paelo diet and see if you feel good. I was vegan for a whole year (before diagnosed) and it made me feel alittle bit better, but didnt help with my symptoms over all. If you cant eat alot of food, it might be a good diet just to make sure that what you ARE eating is high in nutritional value. Good luck.

weeza Newbie
weeza
Posted
  • Author

Wschmucks-Thanks for the info. I have been hesitant taking enzymes and such because I am so new at reading labels but have found and very knowlegable natural store that my be able to double check ingredients with me. I feel like I look like a turtle with the shell in front. This is a new "adventure" for me but spending 45 yrs just doing whatever, I am now learning how to read my body. Can you imagine never paying attention to your body for 45 yrs. Well live and learn. Thanks again for your help.

chasbari Apprentice
chasbari
Posted
Wschmucks-Thanks for the info. I have been hesitant taking enzymes and such because I am so new at reading labels but have found and very knowlegable natural store that my be able to double check ingredients with me. I feel like I look like a turtle with the shell in front. This is a new "adventure" for me but spending 45 yrs just doing whatever, I am now learning how to read my body. Can you imagine never paying attention to your body for 45 yrs. Well live and learn. Thanks again for your help.

I too am newly diagnosed. Have been gluten free since right before Thanksgiving but was still having problems with foods that are supposed to be safe. Grains and things. I also would eat only because it was time even though I had that bloat all the time. Went Paleo last month and cannot believe how much better I am feeling. I had forgotten what it meant to actually be truly hungry. I am finding that chicked is the only thing that seems to be problematic thus far and I am following it very strictly as I also have rheumatoid arthritis and Sjogrens...which have responded incredibly well to the paleo diet. I find I have to guard vigilently against any soy as well.

Good luck!

Chuck

wschmucks Contributor
wschmucks
Posted
Wschmucks-Thanks for the info. I have been hesitant taking enzymes and such because I am so new at reading labels but have found and very knowlegable natural store that my be able to double check ingredients with me. I feel like I look like a turtle with the shell in front. This is a new "adventure" for me but spending 45 yrs just doing whatever, I am now learning how to read my body. Can you imagine never paying attention to your body for 45 yrs. Well live and learn. Thanks again for your help.

It is definetly trial and error, but you can always call the company or look it up online. I google products on my blackberry in stores ALL the time. Let me know if you have luck with the Paleo diet-- I was recently thinking about it too, I just dont know if I could do no sugar or grains...I think I would need one or the other. But if it really helps I'd do anything!

YoloGx Rookie
YoloGx
Posted

I have found the paleo diet to be very helpful over the years especially when I don't feel well, although I would also add root vegetables to it...

Bea

Jestgar Rising Star
Jestgar
Posted

I'm pretty paleo. I eat rice crackers occasionally, and I won't turn down sushi, if offered :P , but I don't prepare other grains for myself.

I eat root veggies in the winter (I'm not as interested in them in the summer), but I aim for the weird ones - parsnips and rutabagas and maybe beets. Minimal potatoes.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

I most definately feel better eating Paleo-ish. Over the holidays, I upped my consumption of grains and sugar and in addition to gaining weight and feeling bloated, my digestion suffered. I had more D and lower abdominal discomfort.

I've gone back to meats, poultry, veggies (except legumes), fruits and nuts (walnuts and almonds), and tea and feel so much better already.

I also limit white potato to once a week or so.

WW340 Rookie
WW340
Posted

My stomach didn't start getting flat until I gave up grains almost entirely. I am not on a particular named diet, but I mainly eat meat, veggies - cooked and raw, fruit, eggs, cheese, and nuts. I occasionally have rice or a potato. I feel much better eating this way.

I never really had to eliminate dairy. It doesn't seem to bother me. I use dairy based dips with my raw veggies. I rarely eat grain based foods anymore. Once in a while I will treat myself to just a few gluten-free crackers or waffle.

oceangirl Collaborator
oceangirl
Posted

Hi!

I eat pretty Paleo as well and whenever I have symptoms again I revert to it religiously. My diet primarily consists of: Fish, meat, chicken, nuts, greek yogurt, cheddar cheese, (not so Paleo) veggies and fruits and I can eat raw sugar in tea; it doesn't seem to bother me.

I eat sweet potato quite often and white potato very rarely. I can tolerate Tinkyada but not rice. (Makes no sense, I know...)

Most common veggies and herbs that work are: swiss chard, romaine, garlic, basil, sweet potoatos, tomatoes, zucchini, summer squash, butternut, winter, and acorn squash.

Most common fruits: BANANAS! I've introduced oranges and grapes and cherries are very good. Strawberries and blueberries which I tend to make into homemade jam. I can also tolerate V8.

All this after almost 4 years and 2 years of that being gluten, soy, dairy, egg, legume, nightshade and citrus free! Now I am gluten, soy and legume free.

Hope this helps!

lisa

YoloGx Rookie
YoloGx
Posted
Hi!

I eat pretty Paleo as well and whenever I have symptoms again I revert to it religiously. My diet primarily consists of: Fish, meat, chicken, nuts, greek yogurt, cheddar cheese, (not so Paleo) veggies and fruits and I can eat raw sugar in tea; it doesn't seem to bother me.

I eat sweet potato quite often and white potato very rarely. I can tolerate Tinkyada but not rice. (Makes no sense, I know...)

Most common veggies and herbs that work are: swiss chard, romaine, garlic, basil, sweet potoatos, tomatoes, zucchini, summer squash, butternut, winter, and acorn squash.

Most common fruits: BANANAS! I've introduced oranges and grapes and cherries are very good. Strawberries and blueberries which I tend to make into homemade jam. I can also tolerate V8.

All this after almost 4 years and 2 years of that being gluten, soy, dairy, egg, legume, nightshade and citrus free! Now I am gluten, soy and legume free.

Hope this helps!

lisa

How nice you can eat tomatoes again! Shows you can get better after a while...

Wish I could have cheddar cheese! but it seems to still not be got for me. However yogurt I could almost eat all day...

Bea

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    2. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    4. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748
    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.