Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Swollen Hands After Waking Up


I hate gluten

Recommended Posts

I hate gluten Apprentice

Since going gluten free, I started having swollen hands when I wake up. After an hour or so they are better, they are not swollen huge. I use to get this when I had to much salt. I guess you can say they are more sore than swollen. Just curious if anyone else had this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MLB Apprentice

I get this too, it's not horrible or anything but i notice it every morning. It usually goes away 15 min or so after getting up. I had it before i went gluten free and going gluten-free has not changed it.

ohsotired Enthusiast

I had this too, right after going gluten free. For me it lasted a month or two, and I haven't noticed it since (only been gluten free for about 5 months or so).

For me it was hands first, then my feet started doing it too, but to a lesser degree than my hands.

My hands were just swollen enough that my skin felt tight, and my joints hurt.

My doc tested for a bunch of other auto immune stuff and everything was "normal" :rolleyes: .

No idea why it was happening, but I haven't had it for quite a while. Hope yours just goes away too. I thought I was crazy - and I think maybe my doc did too, because I could never show her. The swelling always went away within 30 minutes of getting up and moving.

I hate gluten Apprentice

Thank god I am not crazy! It is swollen just enough for my ring not to come off but like everyone says it goes away. My doc says it can be a sign of Lupus though. But I do not trust him very much anyway. I told him to please run any test he thought I needed. (Plus a big list of blood test I gave him) I figured I rather get all the test ran at once versus wasting my time with multiple trips and co pays. You should see the list of stuff I had him run. He thinks Im nuts. He told me I was depressed and wanted to start me on antidepressants. WHATEVER. I changed my diet and now I actually feel good, swollen hands and all. Thanks for the replies, its good to know I am not crazy, well.... that crazy.

RiceGuy Collaborator

I also had swollen hands and feet for awhile, and read it can happen from poor digestion of proteins. So I reduced protein intake, and it went away. I've since been able to increase the amount of protein back up to normal without a problem. The swelling coincided with the ravenous appetite, and both seemed to have diminished at the same time, though slowly, over several months.

  • 3 years later...
cavernio Enthusiast

Old post, but this is one of my current concerns too.

I've had tingling and swelling in my hands and feet for a few years now, and it's worse in the morning often, but it still stays all day long.

I'm going to call my doctor today to try and get to the bottom of it. I'm still worried about my kidneys, even moreso when I read about eating less salt and less protein as things that helped others.

I'm pretty sure I've got neuropathy as well, b12 can help these problems, and at the very least I've got various 'carpal tunnel' type pressure points multiple parts of my arms and in my ankles, but I wouldn't think that tingling and pain from that would be up to as much variation from day to day as I get.

I suppose diabetes is a possibility too, I haven't been tested for that in over a year now, and even if I didn't have it before I guess it doesn't mean I don't have it now, even though these are symptoms I've had for awhile.

Anyone else who has gotten this to go away/gotten an explanation as to why?

dilettantesteph Collaborator

I get swollen hands from accidental glutening.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

I've had that in the summer ever since I was pg with my youngest, 5 years ago. I thought it was heat related. hmm

Kamma Explorer

I used to have badly swollen legs, hands and my left side of my face would sag. (Yikes! - I thought stroke!)

Gluten would do it but it didn't disappear until I totally eliminated all salt, msg, processed foods and reduced my intake of protein. All I eat now for animal protein is fish.

cavernio Enthusiast

I stopped eating corn a couple days ago in hopes of this getting better, since I often don't feel too well after I eat nachos or popcorn or tortillas. But that could also be a salt issue. It's too soon to tell yet if that's helping me or not, since it varies so much regardless. But I'm going to stick corn free for awhile now.

If eating less protein does help it, then wouldn't that indicate kidney problems? What else could be the issue with protein? I guess I have been eating more meat since being diagnosed, since meat seems to be chockfull of nutrients.

I do know that last time I fasted, on day 3 my engagement ring was much looser and I was full of energy. (This is the reason why I think corn or something else I'm eating is still making me sick, because I know I have felt better just not eating.) I don't remember if there was any difference in the tingling though.

It definitely has been hot lately, so there I suppose there's a chance it will go away now that I'm gluten-free when fall hits.

It's worse if I'm active the day before too. It makes me think of what people with arthritis say maybe, except it's definitely not just the joints, almost feels like inter-joint.

If it is just gluten...ahh, it's going to be tough figuring out where I'm getting it from.

If I do get the standard gluten reaction to corn I suppose I have to not just avoid corn but make sure I don't get even trace amounts of corn too, huh?

Kamma Explorer

If your corn source was popcorn, tortilla's and nacho's, cavernio, I would suspect the salt and msg content of those products. All of them, excepting the popcorn which would only have salt, would have high amounts of salt and msg.

Regarding the meats, what kind are you eating? Processed meats or are you cooking them yourself? Any kind of sandwich meats, sausage type meats or anything with a coating on it would contain high amounts of salt and msg. It can be hidden as well. I was buying frozen boneless, skinless chicken breasts which only listed three ingredients: chicken and 'flavourings'. When I called up the company to ask what was in the 'flavourings', they said it was carageenan. Hah! That's a natural source of MSG!!!!!

So, MSG can be hidden under alot of names. If you're interested in charting that in your food intake you should check out this website:

Open Original Shared Link

PennyH Newbie

Since going gluten free, I started having swollen hands when I wake up. After an hour or so they are better, they are not swollen huge. I use to get this when I had to much salt. I guess you can say they are more sore than swollen. Just curious if anyone else had this.

When I wake up I can't even move my fingers they are so stiff and painful. It takes a few minutes to slowly limber them up. They are mostly pain free for the rest of the day but by the end of the day they are sore again. I've had this for almost a year and it's the same after 6 weeks of gluten-free diet. I have very painful feet as well. I'm looking for answers, too!

cavernio Enthusiast

I try to eat only local organic meat for personal ethical reasons. That said, I'm sure it has a lot of salt in it, and the sandwich meat I eat I could easily see having MSG, although I would doubt the sausages do. I do like my sausages and sandwich meat. The sandwich meat is just such a nice, fast, easy, grain free, sugar free snack :-(

The tortillas were made from masa harina with lime and corn flour, and the popcorn isn't the bagged, seasoned already stuff (blech), and the nachos are plain corn chips with corn and sea salt and I had been making my own salsa for them. (Well, before going dairy free I would put cheese on them too.)

I do think I may have an MSG issue though regardless.

Thinking about you being pregnant and getting it, I don't know exactly when I started having the hurting hands and feet specifically, outside of the pressure-on-the-nerve type problems, but I do know that when I tried birth control pills for the first time a few years back was when my bloating got really awful, and I think the stiff, tingling, sore hands and feet came not long after that.

Hormonal changes can really screw things up, somehow. I have a cousin who had a growth in her brain that became cancerous only when she became pregnant, and the doctors warned her about it too, so it wasn't just coincidence.

Oh well, if I find anything interesting or new out I'll post again.

Kamma Explorer

I know, I know...I love sandwich meats too. As well as any kind of dried sausage. That was a huge let down when I knew I had to stop eating them.

But, I do feel great!

Do keep an eye on the msg thing and keep us posted. I'd be interested to see if it's part of the swollen limbs issue.

BlueJean Newbie

I have the same problem. Still trying to figure out what is causing it. At my worst, my hands, feet and eyes are swollen every morning. I'm starting to think its salt. Eating gluten free can be challenging and sometimes you choose not so healthy alternatives, at least I do, like chips or processed gluten free foods, which might be high in salt. I always used to blow up big time after eating chinese, but then Chinese food has all three baddies. Right now I'm being very good in the gluten department, but its still not cutting the mustard. I think I need to cut back on salt and possibly look for sources of MSG too. Please let us know if you figure it out.

cavernio Enthusiast

Thought I should post because I remembered stuff I had forgotten.

Waking up this morning, I haven't found anything new but experienced a different type of sensation that I suspect is linked to B vitamin problems causing nerve damage due to the nature of the pain.

It's a variably pulsating pain, not with my pulse but less often and more random, and it hurts quite a bit for a second or so, and then dies down. I remember now that when I started to get that it would wake me up at night, and that was when a doctor prescribed me pain meds for it. They actually worked the couple days I was on it amazingly well, took away all the tingling and swolleness feeling too (unsure if took away any swelling itself, wasn't wearing a ring), but of course there are side effects like fatigue...just what I needed, MORE brain fog, and then I found out it was actually an anti-epileptic and might not be properly approved for neuropathic pain. (I'm very wary of any drugs that involve neurologic stuff since bad experiences with anti-depressants.)

Anyways, since I started taking large amounts of B12 daily that stabbing type pain pretty much disappeared, although not the tingling and soreness and swolleness.

I'm not taking my B12 everyday lately. I had been not taking it daily because I bought one that has B6 in it as well and I'm certain that there's a fairly low dose for toxicity to that which can actually cause the nerve damage instead of fix it. I'll just have to buy a separate pill again is all.

I do know that some nerve damage may not be fixable, if that is truly what it is. What I don't like is the feeling that the tingling may be covering more of my hands and feet than it used to.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

    2. - Jacki Espo replied to CDFAMILY's topic in Related Issues & Disorders
      5

      Covid caused reoccurrence of DH without eating gluten

    3. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      1

      New Celiac Mama in My 30s

    4. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,959
    • Most Online (within 30 mins)
      7,748

    jenny44
    Newest Member
    jenny44
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.