Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Starting The gluten-free Diet


beautiful.victory

Recommended Posts

beautiful.victory Newbie

I have been having a LOT of trouble with my stomach over the past couple of years; my GP originally thought it was IBS and sent me to a GI last year but I moved before I could make the appointment. My symptoms (extreme fatigue, nausea, stomach aches, constipation, diarrhea, sometimes vomiting with a slight fever) eventually subsided only to emerge again when I went home for Christmas. They've been a lot worse this time around; I am sick with something pretty much every day. I finally got a doctor here to refer me, but she wants me to try the gluten-free diet on top of a lactose-free diet...and I am completely overwhelmed.

I'm not sure where to start. The only thing I can eat in my house at the moment is Thai rice-noodle soup; everything else is frozen solid or has wheat in it. Should I find a grocer and do a major gluten-free food shop? Should I get a cookbook? Do I need to be so severe that I buy new cookware?! I don't have a lot of money, either, and every option seems so expensive. Help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



oceangirl Collaborator

You need to continue to eat gluten until you have a FULL celiac blood panel at the very least. Did this doctor order this for you? It is a combination of 5 tests and will show if your body is reacting to gluten with antibodies. If the doctor has not, DEMAND that it be done. However, you need to be consuming gluten for it to be accurate. Depending on the results, you may or may not decide to go ahead with a biopsy if it is suggested. Many here go by the blood panel alone as it is pretty accurate.

As far as the diet goes, it does not need to be expensive. But your best bet is to eat whole foods you cook yourself: meat, fish, poultry, eggs, veggies, fruits, nuts seeds... Read here. There is a wealth of information archived.

Good luck and let us know what happens!

lisa

mamaw Community Regular

Hi & welcome

I think you should be tested first then go gluten free. If you go gluten free first-- to be properly dx'd you would need to go back on wheat for a period. The doctor who suggests you do this , I believe is putting the cart before the horse... It is hard enough without making a person go back on wheat to get a proper Dx's.

Yes, the gluten-free lifestyle can become pricey but many eat only basic without all the extras. I'm a foodie so I love good gluten-free food so my budget is probably more costly . Also baking at home saves big bucks & is so good.

I tell many to go on a naked diet , foods without marinates, sauces. Add your own.McCormick lists all gluten in any of their spices.

Gluten free has so many options these days & its only getting better.

You also can have fruits & vegetables.

I have a big list of items that you still can use from the mainstream grocery store.

Truly, take a big breath & let this all sink in & decide if you are going gluten-free first or do testing first. Then move on from there. You can't do everything in one day take your time & focus on the task at hand....

If you want my list send me a pm & I'll give you lots of info. I'm a mentor for the gluten-free lifestyle.

blessings

mamaw

beautiful.victory Newbie

The doctor did not request a full-scale celiac test. I had a slew of bloodwork done of a couple of weeks ago, but I think that was just to check my organs and values, etc. Thank you for pointing this out--I didn't even know these tests existed. I will most definitely request them before I start the diet; it seems the most logical way.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams commented on Scott Adams's article in Product Labeling Regulations
      2

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    2. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      nothing has changed

    3. - Scott Adams replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Is it gluten?

    4. - Seaperky replied to lizzie42's topic in Traveling with Celiac Disease
      2

      Trip to Anaheim/Disney

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748

    Bea71
    Newest Member
    Bea71
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.