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Newbie - Learning The Ropes

bunnybaby

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bunnybaby Newbie
bunnybaby
Posted

Hi I am new to this forum and to my condition. I was looking for help and info and stumbled on this forum and first I want to say

A HUGE thanks to all of you as I have learned so much reading these posts already and I still have loads to read.

Also sorry if I ask any silly questions along the way.

I do not know if I am celiac or wheat intolerant. I had given up wheat for 6 weeks when I had my blood test done and no way could I go back to eating it for another test it just makes me too ill. It has now been 9 weeks since I gave it up and I am still making loads of mistakes but I feel so so much better.

Right I am off to get reading again! :rolleyes:

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mushroom Proficient
mushroom
Posted
Hi I am new to this forum and to my condition. I was looking for help and info and stumbled on this forum and first I want to say

A HUGE thanks to all of you as I have learned so much reading these posts already and I still have loads to read.

Also sorry if I ask any silly questions along the way.

I do not know if I am celiac or wheat intolerant. I had given up wheat for 6 weeks when I had my blood test done and no way could I go back to eating it for another test it just makes me too ill. It has now been 9 weeks since I gave it up and I am still making loads of mistakes but I feel so so much better.

Right I am off to get reading again! :rolleyes:

Hello bunnybaby, and welcome to the forum.

You are right, there is waaay too much stuff here to be able to read it all! :rolleyes: Just pick and choose the most relevant topics for now, and happy reading. Pipe up with any questions as they arise.

MELINE Enthusiast
MELINE
Posted

Hello !!!! welcome to the forum! This is so good that you are already feeling so much better!! go on with your reading and come back with any "silly" :rolleyes: question you may have! we all did that and still keep doing it!!!!

B)

Meline

bunnybaby Newbie
bunnybaby
Posted
  • Author

:) Thank you both. I am learning so much but I am sure I will have things to ask.

Love Ruth

TearzaRose Explorer
TearzaRose
Posted

Hi, I am new here also! what a Godsend this place is! Just diagnosed two days ago...and February 21st was my first gluten-free day ever.

WOW!!! i felt great all day and again today. I hope it's not a non-related coincidence.

I'm going shopping today for lots of "specialty" items without gluten. I've already found a bunch of "normal" food that doesn't contain gluten, but some bread and crackers would be nice too!

  • 2 months later...
AlexMartin Newbie
AlexMartin
Posted

Hi! I'm new here too. I've had Celiacs for about 10 years now but its always nice to meet others. :rolleyes:

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  • Posts

    • trents
      Seeking advice on potential gluten challenge

      By trents · Posted

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Medications

      By Jmartes71 · Posted

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      Blood Test for Celiac wheat type matters?

      By Scott Adams · Posted

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    • Jmartes71
      Airborne Gluten?

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