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Newbie - Learning The Ropes

bunnybaby

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bunnybaby Newbie
bunnybaby
Posted

Hi I am new to this forum and to my condition. I was looking for help and info and stumbled on this forum and first I want to say

A HUGE thanks to all of you as I have learned so much reading these posts already and I still have loads to read.

Also sorry if I ask any silly questions along the way.

I do not know if I am celiac or wheat intolerant. I had given up wheat for 6 weeks when I had my blood test done and no way could I go back to eating it for another test it just makes me too ill. It has now been 9 weeks since I gave it up and I am still making loads of mistakes but I feel so so much better.

Right I am off to get reading again! :rolleyes:

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mushroom Proficient
mushroom
Posted
Hi I am new to this forum and to my condition. I was looking for help and info and stumbled on this forum and first I want to say

A HUGE thanks to all of you as I have learned so much reading these posts already and I still have loads to read.

Also sorry if I ask any silly questions along the way.

I do not know if I am celiac or wheat intolerant. I had given up wheat for 6 weeks when I had my blood test done and no way could I go back to eating it for another test it just makes me too ill. It has now been 9 weeks since I gave it up and I am still making loads of mistakes but I feel so so much better.

Right I am off to get reading again! :rolleyes:

Hello bunnybaby, and welcome to the forum.

You are right, there is waaay too much stuff here to be able to read it all! :rolleyes: Just pick and choose the most relevant topics for now, and happy reading. Pipe up with any questions as they arise.

MELINE Enthusiast
MELINE
Posted

Hello !!!! welcome to the forum! This is so good that you are already feeling so much better!! go on with your reading and come back with any "silly" :rolleyes: question you may have! we all did that and still keep doing it!!!!

B)

Meline

bunnybaby Newbie
bunnybaby
Posted
  • Author

:) Thank you both. I am learning so much but I am sure I will have things to ask.

Love Ruth

TearzaRose Explorer
TearzaRose
Posted

Hi, I am new here also! what a Godsend this place is! Just diagnosed two days ago...and February 21st was my first gluten-free day ever.

WOW!!! i felt great all day and again today. I hope it's not a non-related coincidence.

I'm going shopping today for lots of "specialty" items without gluten. I've already found a bunch of "normal" food that doesn't contain gluten, but some bread and crackers would be nice too!

  • 2 months later...
AlexMartin Newbie
AlexMartin
Posted

Hi! I'm new here too. I've had Celiacs for about 10 years now but its always nice to meet others. :rolleyes:

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    • Scott Adams
      Malt vinegar

      By Scott Adams · Posted

      Yes, unfortunately malt vinegar can definitely trigger a strong reaction in people with celiac disease. Malt vinegar is typically made from barley, which contains gluten, and unlike distilled white vinegar, it is not considered gluten-free. Even a small amount — especially if you’ve been strictly gluten-free for years — can cause a more intense reaction because your body is no longer accustomed to exposure. Many people report significant symptoms after accidental ingestion, including abdominal pain, diarrhea, fatigue, or flu-like feelings. You’re not alone in that experience. It may help to be especially cautious with salad dressings, chips, sauces, and restaurant foods, where malt vinegar is sometimes used.
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      A diagnosis of Refractory Celiac Disease Type 2 is a lot to absorb, especially if you feel like the severity wasn’t clearly communicated earlier. It’s understandable to feel shocked and frustrated. RCD Type 2 does require close specialist care, often with a gastroenterologist who has experience managing complex celiac cases, and sometimes coordination with hematology because of the immune cell changes involved. Focusing on nutrition is absolutely important — many people benefit from working with a registered dietitian who specializes in celiac disease to help address malabsorption, weight loss, and vitamin or mineral deficiencies. You’re doing the right thing by seeking information and support. Make sure you feel comfortable asking your care team direct questions about your biopsy results, treatment plan, and monitoring strategy — you deserve clarity and a coordinated approach.
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      Malt vinegar

      By KelleyJo · Posted

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      Malt vinegar

      By HelenH · Posted

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