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Newbie - Learning The Ropes

bunnybaby

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bunnybaby Newbie
bunnybaby
Posted

Hi I am new to this forum and to my condition. I was looking for help and info and stumbled on this forum and first I want to say

A HUGE thanks to all of you as I have learned so much reading these posts already and I still have loads to read.

Also sorry if I ask any silly questions along the way.

I do not know if I am celiac or wheat intolerant. I had given up wheat for 6 weeks when I had my blood test done and no way could I go back to eating it for another test it just makes me too ill. It has now been 9 weeks since I gave it up and I am still making loads of mistakes but I feel so so much better.

Right I am off to get reading again! :rolleyes:

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mushroom Proficient
mushroom
Posted
Hi I am new to this forum and to my condition. I was looking for help and info and stumbled on this forum and first I want to say

A HUGE thanks to all of you as I have learned so much reading these posts already and I still have loads to read.

Also sorry if I ask any silly questions along the way.

I do not know if I am celiac or wheat intolerant. I had given up wheat for 6 weeks when I had my blood test done and no way could I go back to eating it for another test it just makes me too ill. It has now been 9 weeks since I gave it up and I am still making loads of mistakes but I feel so so much better.

Right I am off to get reading again! :rolleyes:

Hello bunnybaby, and welcome to the forum.

You are right, there is waaay too much stuff here to be able to read it all! :rolleyes: Just pick and choose the most relevant topics for now, and happy reading. Pipe up with any questions as they arise.

MELINE Enthusiast
MELINE
Posted

Hello !!!! welcome to the forum! This is so good that you are already feeling so much better!! go on with your reading and come back with any "silly" :rolleyes: question you may have! we all did that and still keep doing it!!!!

B)

Meline

bunnybaby Newbie
bunnybaby
Posted
  • Author

:) Thank you both. I am learning so much but I am sure I will have things to ask.

Love Ruth

TearzaRose Explorer
TearzaRose
Posted

Hi, I am new here also! what a Godsend this place is! Just diagnosed two days ago...and February 21st was my first gluten-free day ever.

WOW!!! i felt great all day and again today. I hope it's not a non-related coincidence.

I'm going shopping today for lots of "specialty" items without gluten. I've already found a bunch of "normal" food that doesn't contain gluten, but some bread and crackers would be nice too!

  • 2 months later...
AlexMartin Newbie
AlexMartin
Posted

Hi! I'm new here too. I've had Celiacs for about 10 years now but its always nice to meet others. :rolleyes:

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  • Posts

    • Churro
      Celiac disease symptoms

      By Churro · Posted

      I do eat 4 slices of wheat bread with almond butter. Yes it was a reference to my iron consumption. 
    • trents
      Celiac disease symptoms

      By trents · Posted

      To give you a frame of reference for pretesting gluten consumption necessary to ensure valid antibody testing, here is the current recommendation for those who have been on a gluten free diet: The daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for at least two weeks. Not sure why you mentioned eggs and chicken. They are not sources of gluten. Was that in reference to dietary iron consumption?
    • Churro
      Celiac disease symptoms

      By Churro · Posted

      Thanks for your insight. I've been eating wheat bread at least 5 times a week for several months. I've been eating chicken or eggs 5 days a week for at least a year. 
    • trents
      Celiac disease symptoms

      By trents · Posted

      Welcome to the celiac.com community, @Churro! Several things need to be said here: 1. Your physician neglected to order a "total IGA" test to check for IGA deficiency. If a person is IGA deficient, the results of other IGA antibody tests specific to celiac disease will not be valid. A total IGA test should always be ordered when checking for celiac disease with blood IGA antibody test. You should ask your physician to order a total IGA test. 2. Iron deficiency anemia can also give distorted IGA celiac disease blood antibody tests. 3. If you were already on a gluten-free diet or had been restricting gluten consumption for weeks/months prior to the antibody testing blood draw, then the test results would not be valid. Accurate celiac disease blood antibody testing requires you to have been consuming significant amounts of gluten for a significant time period leading up to the blood draw. It takes time for the antibody levels in the blood to build up to detectable levels. 4. Your low iron levels and other symptoms could be due to celiac disease but could also be caused by lots of other medical issues.
    • Churro
      Celiac disease symptoms

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      Last month I got blood tests done. My iron level was at 205 ug/dL and 141 ug/dL iron binding capacity unsaturated, 346 ug/dl total iron binding capacity, 59 transferrin % saturation. My ferritin level was at 13 so I got tested for celiac disease last week. My tTG-IgA is <.05, DGP IgA is 4.9 and ferritin level is 9. My doctor didn't order other celiac disease tests. In 2021 I was dealing with severe constipation and hemorrhoids. I'm no longer dealing with constipation. I still deal with hemorrhoids but only about once a week. Also, I've been dealing with very pale skin for at least 5 years. Do you think I have celiac disease? 
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