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Newbie - Learning The Ropes

bunnybaby

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bunnybaby Newbie
bunnybaby
Posted

Hi I am new to this forum and to my condition. I was looking for help and info and stumbled on this forum and first I want to say

A HUGE thanks to all of you as I have learned so much reading these posts already and I still have loads to read.

Also sorry if I ask any silly questions along the way.

I do not know if I am celiac or wheat intolerant. I had given up wheat for 6 weeks when I had my blood test done and no way could I go back to eating it for another test it just makes me too ill. It has now been 9 weeks since I gave it up and I am still making loads of mistakes but I feel so so much better.

Right I am off to get reading again! :rolleyes:

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mushroom Proficient
mushroom
Posted
Hi I am new to this forum and to my condition. I was looking for help and info and stumbled on this forum and first I want to say

A HUGE thanks to all of you as I have learned so much reading these posts already and I still have loads to read.

Also sorry if I ask any silly questions along the way.

I do not know if I am celiac or wheat intolerant. I had given up wheat for 6 weeks when I had my blood test done and no way could I go back to eating it for another test it just makes me too ill. It has now been 9 weeks since I gave it up and I am still making loads of mistakes but I feel so so much better.

Right I am off to get reading again! :rolleyes:

Hello bunnybaby, and welcome to the forum.

You are right, there is waaay too much stuff here to be able to read it all! :rolleyes: Just pick and choose the most relevant topics for now, and happy reading. Pipe up with any questions as they arise.

MELINE Enthusiast
MELINE
Posted

Hello !!!! welcome to the forum! This is so good that you are already feeling so much better!! go on with your reading and come back with any "silly" :rolleyes: question you may have! we all did that and still keep doing it!!!!

B)

Meline

bunnybaby Newbie
bunnybaby
Posted
  • Author

:) Thank you both. I am learning so much but I am sure I will have things to ask.

Love Ruth

TearzaRose Explorer
TearzaRose
Posted

Hi, I am new here also! what a Godsend this place is! Just diagnosed two days ago...and February 21st was my first gluten-free day ever.

WOW!!! i felt great all day and again today. I hope it's not a non-related coincidence.

I'm going shopping today for lots of "specialty" items without gluten. I've already found a bunch of "normal" food that doesn't contain gluten, but some bread and crackers would be nice too!

  • 2 months later...
AlexMartin Newbie
AlexMartin
Posted

Hi! I'm new here too. I've had Celiacs for about 10 years now but its always nice to meet others. :rolleyes:

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    • Russ H
      Concerning GP advice

      By Russ H · Posted

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      Second chance

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      Thats the thing, diagnosed in 1994 before foods eliminated celiac by biopsy colonoscopy at Kaiser in Santa Clara  now condo's but it has to be somewhere in medical land.1999 got married, moved, changed doctor's was with former for 25 years told him I waz celiac and that.Fast forward to last year.i googled celiac specialist and what popped up was a former well known heard of hospital. I thought I would get answers to be put through unnecessary colonoscopy KNOWING im glutenfree and she wasn't listening to me for help rather than screening me for celiac! Im already diagnosed seeking medical help.I did all the appointments ask from her and when I wanted my records se t to my pcp, thats when the with holding my records when I repeatedly messaged, it was down played the seriousness and I was labeled unruly when I asked why am I going through all this when its the celiac name that IS what my issue and All my ailments surrounding it related. I am dea6eoth the autoimmune part though my blood work is supposedly fabulous. Im sibo positive,HLA-DQ2 positive, dealing with skin, eye and now ms.I was employed as a bus driver making good money, I loved it for the few years my body let me do until I was yet again fired.i went to seek medical help because my body isn't well just to be made a disability chaser. Im exhausted,glutenfree, no lawyer will help and disability is in limbo thanks to the lax on my health from the fabulous none celiac Google bay area dr snd team. Its not right.
    • trents
      Concerning GP advice

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      Welcome to the celiac.com community @EssexMum! First, let me correct some misinformation you have been given. Except in the case of what is known as "refractory" celiac disease, which is very rare, it is not true that the "fingers" will not grow back once a consistently gluten free diet is adopted. Celiac disease is an autoimmune condition whereby the ingestion of gluten triggers an inflammatory process that damages the millions of tiny finger-like projections that make up the lining of the small bowel. We call this the "villous lining". Over time, continued ingestion of gluten on a regular basis results in the wearing down of these fingers which greatly reduces the surface area of this very important membrane. It is where essentially all the nutrition from what we eat is absorbed. So, losing this surface area results in inefficiency in nutrient absorption and often to medical problems related to nutrient deficiencies. Again, if a gluten-free diet is consistently observed, the villous lining of the small bowel should rebound. "We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesn't react to the gluten straight away, it will be a build up and then the pains start. " That sounds like unscientific BS to me. But it does sound like your stepdaughter may have a type of celiac disease we know as "silent" celiac disease, meaning, she is asymptomatic or at least the symptoms are not intense enough to usually notice. She is not completely asymptomatic, however, because you stated was experiencing tummy aches off and on. Cristiana gives some good suggestions about ordering "safe" food for your stepdaughter from restaurant menus in Europe. You must realize that as the step parent who only has her part of the time you have no real control over how cooperative her other set of parents are with regard to your stepdaughter's needs to eat gluten free. It sounds like they don't really understand the seriousness of the matter. This is very common in family settings where other members are ignorant about celiac disease and the damage it can do to body systems. So, they don't take it seriously. The best you can do is make suggestions. Perhaps print out some info about celiac disease from the Internet to send them. Being inconsistent with the gluten free diet keeps the inflammation smoldering and delays or inhibits healing of the villous lining. 
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