Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Advice


clnewberry1

Recommended Posts

clnewberry1 Contributor

A good friend is going through breast cancer and surgery this week. Tomorrow a bunch of her friends are having a lunch for her. It's at a chinese restraunt. I have not been out to eat since I have gone gluten free. I know most soy sauces are made with wheat.

I don't want to be a bad friend - her problem is way worse than my own in that she has cancer and I only need to be gluten free.

What should I do? Should I go and not eat anything? Should I just say I can't come. I looked at the menu online. I am not sure there is anything gluten free. I will try to call them tomorrow but I really don't know exactly waht to ask.

Thanks,

Crystal


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NicoleAJ Enthusiast

It sounds like the lunch is too important for you not to go, and yet Chinese food except for at a few particularly accommodating places, can be difficult to manage gluten free. I have gone to many a lunch where I don't eat. I eat something extravagant and filling directly beforehand and bring a small snack in case I get hungry, but then I just order a glass of tea or a soft drink and go for the company. Of course people ask questions, and though they may sometimes feel uncomfortable with someone not eating, I don't let it bother me in the least. I just say I have way too many dietary restrictions to make it worth eating out and that I just had a lovely meal of ...[fill in the blank]... so you need not feel sorry for me.

cattriona Newbie

sometimes if you bring something to eat yourself and sneak it out, people don't always notice because they see that you're eating something. plain salads are good if you're desperate. sometimes too i put my own meals together from the menu - ask for certain ingredients from one thing and mix it with another. rice noodles are usually gluten-free, but check with the restaurant. rice noodles and cooked vegetables perhaps? with a little plain meat maybe? just a suggestion

YoloGx Rookie

Depends on how sensitive you are. If you have true celiac sprue I wouldn't eat their food. Otherwise you might be able to talk to the cook ahead of time and have them make something you could eat.

For me, since I am extremely sensitive, I would just bring some Chinese like food of my own to eat on the side. Ask for an extra plate and maybe no one will notice since often people share dishes.

Bea

missy'smom Collaborator

I've joined a group of aquaintances at a Vietnamese rest. and a Chinese rest. and brought my own food both times because I wasn't familiar with the menu and knew that at those particular locations the staff was all non-native English speakers and communication would be difficult, even with dining cards. Everyone was ordering off the menu so they got plenty of business and when it was my turn to order I just said to the waitress that I had multiple food allergies and would be eating my own meal that I brought. They were fine with it. I just set my container on the table. Some in the group didn't understand and thought it was odd, I'm sure, but that's OK. I don't try to make similar things anymore. From the responses that you've seen, there are a number of ways you can approach it. You get to choose what's comfortable and works for you.

Happy Holly Apprentice

I know I'm probably responding too late. I hope the lunch went well and you were able to join your friend and enjoy the company.

In the future, you might order some dining cards from Triumph Dining. I have a set, and they have proven to be invaluable. There are cards for all types of dining: Chinese, Mexican, Vietnamese, French, Japanese, Italian, Thai, Indian, and Greek. The cards explain on one side in English what you can and cannot eat. On the other side, the same message is printed in the language of the dining experience.

I have eaten successfully at a chinese restaurant close to my home a couple of times now. They know I cannot have soy sauce, so they give me white sauce instead. They do not speak very much Englilsh, so the Chinese explanation was perfect.

For Chinese dining, the card states that you should not have egg noddles, wonton skins, egg roll wrappers, pastries, battered or floured foods, imitation crab, bouillon, oyster and hoisin sauces, beer, malt and MSG. It states in large bold letters that soy sauce is brewed with wheat and cannot be used.

The cards even explain that utensils, preparation or cooking surfaces used for foods must not be cross contaminated with any wheat -- the surfaces and utensils must be cleaned.

I carry all the cards in my purse and ask the waitress or waiter to present the card to the chef. Sometimes the waiters or waitress will try to read the cards and decipher on their own what I can or cannot have. I'm just not comfortable when the people in the kitchen don't see my cards, so when this happens, I usually ask for a manager.

Hope this was helpful. :)

clnewberry1 Contributor

Well the lunch turned out good - at least so far.

The Chinese place was closed so the next closest was Applebees. I read that most people have not had good luck with Applebees here. I tried to call the corporate office to see if I could eat anything there or at least get the ingredients of there menu items. It was closed for presidents day.

I called the local place and fortunatly for me a regular customer of this particular Applebees who has Celiac orders the plain chicken breast with a baked potatoe and broccoli. The told me this particular woman has never complained that she has gotten sick. So that is what I ordered. I hope that the chicken was safe - we will see. It didn't taste like there was anything on it but who knows. I took a digestive enzyme just in case in hopes that if there was hidden gluten my reaction would be less severe.

One of my other friends is not going gluten free not for Celiac but turns out we have the same doctor and didn't know it. She is trying the gluten free diet to see if some of her inflamation goes down. She ordered a salad plain.

Thanks for all of the reply's. I am going to look into getting those cards. Thanks so much!!

Crystal


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,902
    • Most Online (within 30 mins)
      7,748

    Patty6133
    Newest Member
    Patty6133
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.