Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Celiac(s) From Canada


Gerri

Recommended Posts

chrisv Newbie

Hi folks. I'm in Hamilton, Ontario. Thanks for being here.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 133
  • Created
  • Last Reply
sophie2020 Newbie

Hi All,

I've been gluten-free for 5 years, diagnosed in Oz, now living in Ottawa. It took me a couple of years to really feel better - but I did have some improvements almost immediately. So hang in there :o)

Susan:

It must be so tough for kids to not be allowed gluten. It's hard enough for adults! There are lots of really yummy products around, but also a lot that taste strangely akin to sawdust mixed with mud ... not that I've tried sawdust mixed with mud but you get the idea :o)

Sick Kids Hospital in Toronto sells gluten-free food, and also has a really nice recipe section. The choc chip cookies are exactly like Mom used to make, and none of my non-gluten-free friends could stop eating them!

I haven't posted here for a long time, and not sure if it's OK to set a link, but if this one disappears, feel free to PM me and I'll send it to you.

Open Original Shared Link

cheers,

Maggie

sinfield Newbie

Hi folks. I'm in Hamilton, Ontario. Thanks for being here.

I'm from Hamilton too!!! Any good restaurants or bakery that you have found in this area?

adab8ca Enthusiast

oh i am from Burlington ontario!

there is a bakery/cafe on john street in burlington i mean to try out

www.kindfood.com (i am not affiliated with them in any way, hope putting their website here isn\t a problem!)

  • 2 weeks later...
sinfield Newbie

oh i am from Burlington ontario!

there is a bakery/cafe on john street in burlington i mean to try out

www.kindfood.com (i am not affiliated with them in any way, hope putting their website here isn\t a problem!)

I will have to try that place out!!! I'm always looking for new places to go too!

Also on Plains road east, theres this bakery that is going to open soon; Its www.turtledovesbakery.ca

It sounds like they are going to have some good stuff there :D

mommyto3 Contributor

Hello to all my fellow Cannucks!!!!

Want to give a shout out from Mississauga, Ontario.

And for anyone in the area, there's an awesome gluten free bakery in Oakville (on Lakeshore) called Voila Gluten Free Bakery. Their stuff is awesome!

Looking forward to sharing with you all :D

lukester Newbie

Hello to all my fellow Cannucks!!!!

Speaking of Canucks, I am from Vancouver myself. There are a few bakeries here that sell gluten free goods.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Deb H Newbie

Hello Everyone!!

I am so excited to find other Canadians to relate to, especially product wise.. I have not met anyone else with Celiac or DH.. So frustrating.. I was just diagnosed this year.. It is very hard to manover in this new world. There is really not alot of info or support here in Oshawa Ontario..

I have met alot of great and helpful people on some online support groups including on here but all are in USA and other countries and not many conversations relate to me other than the actual disease.. I would be so nice to know people I can relate to about stores and restuarants..

PM me anytime..

Huggss Deb

Gerri Explorer

I still am not sure, for sure if I am celiac.... Going glutten free (or relatively) has allowed me to get off the drugs, ... I am back on the diet now,(just started a few days ago) and want to insist to my doctor that I get a proper diagnosis. Long story.... I need some support here. Just to stick to the diet, and re-think 20 years of psychobabble.

If your feeling better off gluten, why go back on it. My doctor gave a note stating I must follow the Celiac, diet, for rest of my life. For many years I was following the Gluten free diet (at the time about 50%), and my labs showed low celiac, most doctors would not have gave a positive diagnosis. Also I was told to do a gluten challenge, which landed me in the hospital 3 times during the challenge, this was enough, with the low celiac lab to get my doctor's note.

I am learning to cook gluten free. I don't have regular flour in my home.

My severe sleep apnea, has improved greatly. Now I am mild sleep apnea. I have other health issue some have improved - others worsening. They say once you have one autoimmune, others will following. I am hoping the statement is wrong - the way my health is going I don't think so.

Hope your feeling better

Hugs

Gerri

HSM Newbie

LONDON ONTARIO, GLUTEN FREE 1 YEAR 2 MONTHS SO FAR

  • 3 months later...
kerrig Rookie

We had brownies from www.turtledovesbakery.ca bakery and my celiac son who is 10 said they were the best brownies he has ever had....gluten free or not!

punkinrice Rookie

Hi There! I am in St. John's,Newfoundland, and also newly diagnosed. I have had trouble since childhood, and have been quite symptomatic for the past 13 years...surprise surprise also diagnosed with IBS before they finally figured it out. I tried the gluten free diet a few years ago, and was much better, but didn't really realize how to read the labels, so didn't get 100% better. I found that without the diagnosis I caved to constant criticism, and had "just one piece of pizza" here or there, or "just one slice of birthday cake". I was quite sick by the time I'd had enough and asked for a biopsy...which came back positive. I find this forum to be so incredibly helpful and supportive! Knowing you're not alone and have a world full of friends to ask questions of...who have been there and don't criticize, but sympathize and support. You're in the right place :)

  • 4 weeks later...
Kemmanuel Newbie

Im am from Vancouver Island. There are a few gluten free bakeries and health food stores around that provide gluten-free foods, but I have yet to find a local support group.

  • 4 weeks later...
ewandelm Newbie

Check out Mex-I-Can on James st.

Really really good Mexican food, resonably priced (usually 12.99 for a plate), and most items on the menu are labelled gluten free. The atmosphere is not that great, and the service is slow, but it is VERY VERY worth the wait.

luckymac Newbie

Hello from Montreal, male 37 years old, just diagnosed last november! uff :P

sandiz Apprentice

Im am from Vancouver Island. There are a few gluten free bakeries and health food stores around that provide gluten-free foods, but I have yet to find a local support group.

I agree with you,I too am from Vancouver Island. Emailed the chapter in Nanaimo and no response.

Twinklebug Newbie

Hi,

I'm from Regina, Sask. and new to the site as well.

Now that I've found it, I couldn't live without it. So much helpful info.

over50 Rookie

I agree with you,I too am from Vancouver Island. Emailed the chapter in Nanaimo and no response.

over50

I am from Victoria and find the Vic chapter very helpful. Also you can access the Celiac Assoc newsletter online,which gives great info and also tells what bakeries, restaurants in Nanaimo are available. I was diagnosed June 2010 and am still struggling with the cursed ailment and not really feeling better, in fact some days I think that I feel worse than before I was diagnosed.

Hope you can contact the Nanaimo chapter, they are very active.

Good luck

  • 2 months later...
CeliacGirl487 Newbie

12 from Ontario... diagnosed with Celiac in about October 2008... new to Celiac.com.. I find it extremely useful in my everyday life! :lol:

etta694 Explorer

Hi from

Southwest prairies..wheat :( and oil. Gluten free for 9ish months. Discovering other food issues now.. like soy and dairy. (but feeling a thousand times better than before)

hockeymomofceliacchild Rookie

I'm from Newfoundland, Haha.

My brother is heading to Newfoudland sometime this summer for about 12weeks to work. Any suggestions on gluten free eating in NF. I'm sure he would appreciate it :)

hockeymomofceliacchild Rookie

We are from the little town of Elmvale :) North of Barrie, Ont. My son was diagnosed earlier this year and the only reason he was tested was because I insisted knowing my older brother has DH/celiac for about 10 years. I wouldn't have had a clue otherwise thinking he just had echema...little did I know all the OTHER symptoms that were from celiac. Thanks to this group I have learned A LOT! lol

Welcome fellow Canadians! :)

  • 4 weeks later...
milkmommy Apprentice

Hi fellow Canadians

Im excited to see other from Hamilton Ontario!!!!!!! Definitely going to check out the food places recommended. I've only been diagnosed for 1 week.

Poppi Enthusiast

Hi, I'm Sara. I'm in Nanaimo. I'm not formally diagnosed but have been gluten free for 4 weeks now and am feeling great. The couple little slip ups and the horrible results have convinced me not to make myself ill for official testing.

collgwg Contributor

hi i am from nova scotia

i am a 42 years old and i went for testing yesterday for celiac

i am trying to go gluten free but its just in so many foods that i did not even think when i bought these sauages for a gluten-free meal, that one of the ingredients is toasted wheat crumbs and i got sick after the meal, im still learning

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.