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Any Celiac(s) From Canada

Gerri

By Gerri
in Introduce Yourself / Share Stuff

Recommended Posts

chrisv Newbie
chrisv
Posted

Hi folks. I'm in Hamilton, Ontario. Thanks for being here.

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  • Replies 133
  • Created
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sophie2020 Newbie
sophie2020
Posted

Hi All,

I've been gluten-free for 5 years, diagnosed in Oz, now living in Ottawa. It took me a couple of years to really feel better - but I did have some improvements almost immediately. So hang in there :o)

Susan:

It must be so tough for kids to not be allowed gluten. It's hard enough for adults! There are lots of really yummy products around, but also a lot that taste strangely akin to sawdust mixed with mud ... not that I've tried sawdust mixed with mud but you get the idea :o)

Sick Kids Hospital in Toronto sells gluten-free food, and also has a really nice recipe section. The choc chip cookies are exactly like Mom used to make, and none of my non-gluten-free friends could stop eating them!

I haven't posted here for a long time, and not sure if it's OK to set a link, but if this one disappears, feel free to PM me and I'll send it to you.

Open Original Shared Link

cheers,

Maggie

sinfield Newbie
sinfield
Posted

Hi folks. I'm in Hamilton, Ontario. Thanks for being here.

I'm from Hamilton too!!! Any good restaurants or bakery that you have found in this area?

adab8ca Enthusiast
adab8ca
Posted

oh i am from Burlington ontario!

there is a bakery/cafe on john street in burlington i mean to try out

www.kindfood.com (i am not affiliated with them in any way, hope putting their website here isn\t a problem!)

  • 2 weeks later...
sinfield Newbie
sinfield
Posted

oh i am from Burlington ontario!

there is a bakery/cafe on john street in burlington i mean to try out

www.kindfood.com (i am not affiliated with them in any way, hope putting their website here isn\t a problem!)

I will have to try that place out!!! I'm always looking for new places to go too!

Also on Plains road east, theres this bakery that is going to open soon; Its www.turtledovesbakery.ca

It sounds like they are going to have some good stuff there :D

mommyto3 Contributor
mommyto3
Posted

Hello to all my fellow Cannucks!!!!

Want to give a shout out from Mississauga, Ontario.

And for anyone in the area, there's an awesome gluten free bakery in Oakville (on Lakeshore) called Voila Gluten Free Bakery. Their stuff is awesome!

Looking forward to sharing with you all :D

lukester Newbie
lukester
Posted

Hello to all my fellow Cannucks!!!!

Speaking of Canucks, I am from Vancouver myself. There are a few bakeries here that sell gluten free goods.

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Deb H Newbie
Deb H
Posted

Hello Everyone!!

I am so excited to find other Canadians to relate to, especially product wise.. I have not met anyone else with Celiac or DH.. So frustrating.. I was just diagnosed this year.. It is very hard to manover in this new world. There is really not alot of info or support here in Oshawa Ontario..

I have met alot of great and helpful people on some online support groups including on here but all are in USA and other countries and not many conversations relate to me other than the actual disease.. I would be so nice to know people I can relate to about stores and restuarants..

PM me anytime..

Huggss Deb

Gerri Explorer
Gerri
Posted
  • Author

I still am not sure, for sure if I am celiac.... Going glutten free (or relatively) has allowed me to get off the drugs, ... I am back on the diet now,(just started a few days ago) and want to insist to my doctor that I get a proper diagnosis. Long story.... I need some support here. Just to stick to the diet, and re-think 20 years of psychobabble.

If your feeling better off gluten, why go back on it. My doctor gave a note stating I must follow the Celiac, diet, for rest of my life. For many years I was following the Gluten free diet (at the time about 50%), and my labs showed low celiac, most doctors would not have gave a positive diagnosis. Also I was told to do a gluten challenge, which landed me in the hospital 3 times during the challenge, this was enough, with the low celiac lab to get my doctor's note.

I am learning to cook gluten free. I don't have regular flour in my home.

My severe sleep apnea, has improved greatly. Now I am mild sleep apnea. I have other health issue some have improved - others worsening. They say once you have one autoimmune, others will following. I am hoping the statement is wrong - the way my health is going I don't think so.

Hope your feeling better

Hugs

Gerri

HSM Newbie
HSM
Posted

LONDON ONTARIO, GLUTEN FREE 1 YEAR 2 MONTHS SO FAR

  • 3 months later...
kerrig Rookie
kerrig
Posted

We had brownies from www.turtledovesbakery.ca bakery and my celiac son who is 10 said they were the best brownies he has ever had....gluten free or not!

punkinrice Rookie
punkinrice
Posted

Hi There! I am in St. John's,Newfoundland, and also newly diagnosed. I have had trouble since childhood, and have been quite symptomatic for the past 13 years...surprise surprise also diagnosed with IBS before they finally figured it out. I tried the gluten free diet a few years ago, and was much better, but didn't really realize how to read the labels, so didn't get 100% better. I found that without the diagnosis I caved to constant criticism, and had "just one piece of pizza" here or there, or "just one slice of birthday cake". I was quite sick by the time I'd had enough and asked for a biopsy...which came back positive. I find this forum to be so incredibly helpful and supportive! Knowing you're not alone and have a world full of friends to ask questions of...who have been there and don't criticize, but sympathize and support. You're in the right place :)

  • 4 weeks later...
Kemmanuel Newbie
Kemmanuel
Posted

Im am from Vancouver Island. There are a few gluten free bakeries and health food stores around that provide gluten-free foods, but I have yet to find a local support group.

  • 4 weeks later...
ewandelm Newbie
ewandelm
Posted

Check out Mex-I-Can on James st.

Really really good Mexican food, resonably priced (usually 12.99 for a plate), and most items on the menu are labelled gluten free. The atmosphere is not that great, and the service is slow, but it is VERY VERY worth the wait.

luckymac Newbie
luckymac
Posted

Hello from Montreal, male 37 years old, just diagnosed last november! uff :P

sandiz Apprentice
sandiz
Posted

Im am from Vancouver Island. There are a few gluten free bakeries and health food stores around that provide gluten-free foods, but I have yet to find a local support group.

I agree with you,I too am from Vancouver Island. Emailed the chapter in Nanaimo and no response.

Twinklebug Newbie
Twinklebug
Posted

Hi,

I'm from Regina, Sask. and new to the site as well.

Now that I've found it, I couldn't live without it. So much helpful info.

over50 Rookie
over50
Posted

I agree with you,I too am from Vancouver Island. Emailed the chapter in Nanaimo and no response.

over50

I am from Victoria and find the Vic chapter very helpful. Also you can access the Celiac Assoc newsletter online,which gives great info and also tells what bakeries, restaurants in Nanaimo are available. I was diagnosed June 2010 and am still struggling with the cursed ailment and not really feeling better, in fact some days I think that I feel worse than before I was diagnosed.

Hope you can contact the Nanaimo chapter, they are very active.

Good luck

  • 2 months later...
CeliacGirl487 Newbie
CeliacGirl487
Posted

12 from Ontario... diagnosed with Celiac in about October 2008... new to Celiac.com.. I find it extremely useful in my everyday life! :lol:

etta694 Explorer
etta694
Posted

Hi from

Southwest prairies..wheat :( and oil. Gluten free for 9ish months. Discovering other food issues now.. like soy and dairy. (but feeling a thousand times better than before)

hockeymomofceliacchild Rookie
hockeymomofceliacchild
Posted

I'm from Newfoundland, Haha.

My brother is heading to Newfoudland sometime this summer for about 12weeks to work. Any suggestions on gluten free eating in NF. I'm sure he would appreciate it :)

hockeymomofceliacchild Rookie
hockeymomofceliacchild
Posted

We are from the little town of Elmvale :) North of Barrie, Ont. My son was diagnosed earlier this year and the only reason he was tested was because I insisted knowing my older brother has DH/celiac for about 10 years. I wouldn't have had a clue otherwise thinking he just had echema...little did I know all the OTHER symptoms that were from celiac. Thanks to this group I have learned A LOT! lol

Welcome fellow Canadians! :)

  • 4 weeks later...
milkmommy Apprentice
milkmommy
Posted

Hi fellow Canadians

Im excited to see other from Hamilton Ontario!!!!!!! Definitely going to check out the food places recommended. I've only been diagnosed for 1 week.

Poppi Enthusiast
Poppi
Posted

Hi, I'm Sara. I'm in Nanaimo. I'm not formally diagnosed but have been gluten free for 4 weeks now and am feeling great. The couple little slip ups and the horrible results have convinced me not to make myself ill for official testing.

collgwg Contributor
collgwg
Posted

hi i am from nova scotia

i am a 42 years old and i went for testing yesterday for celiac

i am trying to go gluten free but its just in so many foods that i did not even think when i bought these sauages for a gluten-free meal, that one of the ingredients is toasted wheat crumbs and i got sick after the meal, im still learning

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      results from 13 day gluten challenge - does this mean I can't have celiac?

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    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

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    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
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