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Question About Antibodies

cas has MMMhope

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cas has MMMhope Newbie
cas has MMMhope
Posted

I got a call from my doc. office a few days ago, and this is how it went.

Receptionist - We got some of your blood tests back.

Me - Ok

Receptionist - Your antibodies are at 32, oh and this has to do with your celiac disease

Me - Umm what does that mean?

Receptionist. - I'm not sure, ok bye.

So I'm still very new to all things celiac disease. Can someone enlighten me. Thank you!

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Mtndog Collaborator
Mtndog
Posted

I'm so sorry that this happened to you. Technically, a receptionist should NOT be giving you test results- the doctor should do that with an explanation. I'm not sure which antibody she was referring to based on the number. I hope you get answers soon!

ravenwoodglass Mentor
ravenwoodglass
Posted
I got a call from my doc. office a few days ago, and this is how it went.

Receptionist - We got some of your blood tests back.

Me - Ok

Receptionist - Your antibodies are at 32, oh and this has to do with your celiac disease

Me - Umm what does that mean?

Receptionist. - I'm not sure, ok bye.

So I'm still very new to all things celiac disease. Can someone enlighten me. Thank you!

Welcome. Your in the right place to learn about celiac. What you were told was that your test for celiac was positive. Are you scheduled to see the doctor soon? You can call the office back and ask to speak to a nurse or even to have the doctor call you back. If this was a PCP's office they will most likely refer you to a GI for an endoscopy.

mimommy Contributor
mimommy
Posted

Wow. That was not only abrupt, but really inappropriate. Methinks you should demand that your doctor return from the golf course and interpret your test results for you IN PERSON, with the necessary follow up and referrals. It's one thing to have the receptionist/asst. call with negative labs, but this was rude and dangerous. Sheesh!

Oh yeah--and get copies of your test results to take for your files. Something tells me your relationship with this doc. may be short lived.

cas has MMMhope Newbie
cas has MMMhope
Posted
  • Author
Welcome. Your in the right place to learn about celiac. What you were told was that your test for celiac was positive. Are you scheduled to see the doctor soon? You can call the office back and ask to speak to a nurse or even to have the doctor call you back. If this was a PCP's office they will most likely refer you to a GI for an endoscopy.

So I totally ment to post this in post not pre. :blink:

I found out in Jan that I have celiac disease after the blood test and endoscopy. But when talking to my GI or fam. doc. never once mentioned anything about my antibodies. So the whole 32 antibodies thing is new to me and I have no clue what it even means.

mimommy Contributor
mimommy
Posted
So I totally ment to post this in post not pre. :blink:

I found out in Jan that I have celiac disease after the blood test and endoscopy. But when talking to my GI or fam. doc. never once mentioned anything about my antibodies. So the whole 32 antibodies thing is new to me and I have no clue what it even means.

There is a ton of info. on this on this very website (celiac.com)

https://www.celiac.com/articles/57/1/Interp...ults/Page1.html

and celiac.org. My understanding of it is this...The antibodies appear as your body has an autoimmune response. For instance, if you had been exposed to, say, a virus, your body would produce antibodies against that virus--not necessarily meaning you have the actual virus, only that you have been exposed and are having an immune system resonse. Your test result of '32' is the number of antibodies based on the ratio used as standard for that test. EX: The norm could be 1:20 meaning anything less than 20 would be considered 'normal', but if you had 32 it would be read as 1:32, and could be above normal. You need to find out what test that number represents--tissue transglutaminase, endomysial, etc..

This is my understanding of it, and of course I could be wrong. If any one can explain it better, please help.

cas has MMMhope Newbie
cas has MMMhope
Posted
  • Author
There is a ton of info. on this on this very website (celiac.com)

https://www.celiac.com/articles/57/1/Interp...ults/Page1.html

and celiac.org. My understanding of it is this...The antibodies appear as your body has an autoimmune response. For instance, if you had been exposed to, say, a virus, your body would produce antibodies against that virus--not necessarily meaning you have the actual virus, only that you have been exposed and are having an immune system resonse. Your test result of '32' is the number of antibodies based on the ratio used as standard for that test. EX: The norm could be 1:20 meaning anything less than 20 would be considered 'normal', but if you had 32 it would be read as 1:32, and could be above normal. You need to find out what test that number represents--tissue transglutaminase, endomysial, etc..

This is my understanding of it, and of course I could be wrong. If any one can explain it better, please help.

Thank you! I will go check out that web site right now!

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