Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A "shrinking" Morbid Obese Person Needing Help...


Tabbiekatz

Recommended Posts

Tabbiekatz Newbie

I have been gluten-free for about 4 months now, just before Halloween 2008. I did a lot of research into this disease and found that it fit ALL my symptoms to a T.

I have an issue with this "gluten-free diet" that I'm on and was wondering if anyone has experienced this...

I am what doctors call "morbid obese". I haven't lost much in the way of pounds yet, but I am expecting it. I've lost inches...lots of inches. I'm down 1 pants size, 1 shirt size (and counting) 1 bra size and 2 shoe sizes...I didn't even know you could loose shoe sizes like this, and this has happened in the past month. The tops of my feet hurt like nobody's business and my hands are about the same. I can feel it in my bones, and I haven't felt them in almost 20 years. Any suggestions from the "gluten free" community?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Watercolor Rookie

Hi Tabbiekatz!

I too am obese (BMI now a bit under 40).

I've been diagnosed and gluten-free about 4 weeks now.

I pee'd a lot the first week, and my clothes are looser.

I'm surprised I don't have a lot of weight loss,

only 4 pounds, because it looks like I've lost 20!

But I'll take it.....

Gemini Experienced

It sounds like what you are experiencing is the LACK of bloating you probably had in your pre-gluten-free days. I was down to 98 pounds the week I got really sick yet I looked about 4 months preggers because of the bloating. You will also lose a lot of water weight because you probably are not ingesting much processed food anymore and that is loaded with salt and sugar. Feet and hands will notice this, first off.

I think once you heal from Celiac, you can count calories and be amazed at how much easier it will be to drop the weight! Good luck!

HouseKat Apprentice
I pee'd a lot the first week, and my clothes are looser.

I'm surprised I don't have a lot of weight loss,

only 4 pounds, because it looks like I've lost 20!

But I'll take it.....

I was surprised how much my urinary output increased when I went gluten-free, all that liquid had been going to my bowels before.

After a year and a half later, my weight on the scale is the same but people are always commenting on my "weight loss" and how good I look now.

Kate

missy'smom Collaborator

This may/may not be relevant but I have nerve damage in my feet from diabetes and was reading that if blood sugars normalize and nerves start to heal, a person can feel alot of pain at first as the healing takes place.

Tabbiekatz Newbie

The water weight makes a lot of since...I've been tested for diabetes more than once in my life. My grandmother had it later on in life and I guess I'm just paranoid at the thought that I'd have it as well. She also had thyroid cancer, and a few other ailments that she suffered from. I'm guessing I got the gene from her.

This may/may not be relevant but I have nerve damage in my feet from diabetes and was reading that if blood sugars normalize and nerves start to heal, a person can feel alot of pain at first as the healing takes place.
Tabbiekatz Newbie

Thanks! I did notice that my kidneys where working again...lol! I do have to watch the sugar intake though. I've been worried about it as of late. I drink way too much coffee for one person. (about a pot a day) and it needs to be sweet. I've tried the pink and blue packets and they make me sick. I'm going to try stevia here soon, but it is so expensive! Maybe I'll grow it this year?

The one thing about my weight is that it is evenly proportioned. I do look a little preggers, but my body (ie..big arms and large legs) just make it look normal (even though I have no behind..lol).

It sounds like what you are experiencing is the LACK of bloating you probably had in your pre-gluten-free days. I was down to 98 pounds the week I got really sick yet I looked about 4 months preggers because of the bloating. You will also lose a lot of water weight because you probably are not ingesting much processed food anymore and that is loaded with salt and sugar. Feet and hands will notice this, first off.

I think once you heal from Celiac, you can count calories and be amazed at how much easier it will be to drop the weight! Good luck!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Tabbiekatz Newbie

It will go faster. My first month, I lost 20 pounds (guessing it's the water weight) and I'm slowly loosing about 1 lb a week. It's amazing how much I eat now. I'm getting the big "double meat" platters at work with baked potato, instead of a big mac and fries. It cost's more, but I feel better for it. Sucks that taco bell puts soy sauce in everything though. I found a really good Mexican drive through I can go to when I don't want to cook, but even that gets old.

I try to eat more grains and veggies than meat though. Potatoes don't help much, but they don't serve rice here at our cafeteria. They do have frito's though :)

Cottage cheese. OMG! if you where ever lactose intolerant before, you won't be anymore...I couldn't get enough of the stuff....I went through 2 buckets (the large containers at the store) a week. It's calmed down now, but the cravings come and go. Listen to your body. It will tell you what you need.

Hi Tabbiekatz!

I too am obese (BMI now a bit under 40).

I've been diagnosed and gluten-free about 4 weeks now.

I pee'd a lot the first week, and my clothes are looser.

I'm surprised I don't have a lot of weight loss,

only 4 pounds, because it looks like I've lost 20!

But I'll take it.....

Watercolor Rookie

Thank God for Mexican food!!!!!

I cook a lot at home, which has made the transition easier.

We're living off of Mexican and Meditteranean food,

since they both have a lot of rice recipes.

I have refused thus far trying the gluten-free pasta and bread.

I'm hoping when I finally break down and try it,

I will have forgotten what glutenized stuff tastes like.

That way I won't be comparing them.

Oh, and I'm diabetic and have polycystic ovaries.

Sucks to be me. Oh, well, we'll always have raspberries...

Watercolor Rookie

Hey Tabbiekatz!, how's it going.

Lost another pound this week, so it looks like we're on the same schedule!

Nancym Enthusiast
Thanks! I did notice that my kidneys where working again...lol! I do have to watch the sugar intake though. I've been worried about it as of late. I drink way too much coffee for one person. (about a pot a day) and it needs to be sweet.
There are a ton of alternative sweeteners out there. Splenda, Truvia, Lo Han, many are made quite naturally and all, IMHO, are better for you than sugar.
ianm Apprentice

I was once morbidly obese and can say that weight loss doesn't happen quite the way you would expect. There would be times when I would lose a lot of pounds but my body stayed the same shape. Then there would be times when my body would change drastically but no pounds came off. I started excersizing a lot and I reached a pont where my body got smaller and the pounds increased. This was from increased muscle mass.

  • 2 weeks later...
Rebecca's mom Rookie

I started on a gluten-free diet in May, 2008, after our youngest daughter was diagnosed with celiac disease (I have since realized that the skin rash that I had been battling for 3 years was DH, even though it didn't itch like most peoples' do). I started out at 275 pounds. I am now down to 237 (38 pounds in 10 months!), but you are right about the "shrinking" that takes place. I, too, am down several clothes sizes, and I look like I have lost MUCH more weight than the scales show. I KNOW that I am going to lose most, if not all, of the excess weight - it may take a few years, but I figure it took a LONG time to put it all on, so I can be patient!

I keep telling everyone who will listen that a gluten-free diet will do the same for them, regardless of if they have celiac disease or not. They can't believe that we (our family) can eat all of these "high-fat" foods, not worry about portions and/or calories, not exercise, and STILL look so good. This is BY FAR the easiest "diet" that I have ever been on, and I couldn't be happier! Best of all, all of my bloodwork numbers are going down (except HDL, which is going up!) - take THAT, all you skinny dieters!

Yes, what you are experiencing is normal, and I have a feeling that you will be like me and find yourself losing most of your excess weight over time. I have read on this forum about people who have lost 100+ pounds without even trying, so there is a lot to this gluten-free "thing". I have been doing a lot of personal research as to the reasons that this is so, and I really think that it boils down to our bodies finally being "full" since our intestines are finally absorbing all of the nutrients that we eat.

Congratulations, and welcome to the "losing" side!

Teresa Koch

Fort Worth, Texas

Tabbiekatz Newbie

Thank you!!! I feel wonderful. I did have to up my vitamin b intake a bit, I was tired and couldn't wake up for a week, not wanting to move. Found out that I was a little anemic, and my regular vitamins weren't doing great. I did a lot of research in what types of vitamins and minerals where in wheat, and it came up primarily to vitamin b. Other than that, I can now feel my ribs, even though I've actually gained 4 lbs last week. There is a scale at work that I use every Monday. Being a woman...I look at it as water weight (you know, for the stranger that visits once a month???lol).

I started on a gluten-free diet in May, 2008, after our youngest daughter was diagnosed with celiac disease (I have since realized that the skin rash that I had been battling for 3 years was DH, even though it didn't itch like most peoples' do). I started out at 275 pounds. I am now down to 237 (38 pounds in 10 months!), but you are right about the "shrinking" that takes place. I, too, am down several clothes sizes, and I look like I have lost MUCH more weight than the scales show. I KNOW that I am going to lose most, if not all, of the excess weight - it may take a few years, but I figure it took a LONG time to put it all on, so I can be patient!

I keep telling everyone who will listen that a gluten-free diet will do the same for them, regardless of if they have celiac disease or not. They can't believe that we (our family) can eat all of these "high-fat" foods, not worry about portions and/or calories, not exercise, and STILL look so good. This is BY FAR the easiest "diet" that I have ever been on, and I couldn't be happier! Best of all, all of my bloodwork numbers are going down (except HDL, which is going up!) - take THAT, all you skinny dieters!

Yes, what you are experiencing is normal, and I have a feeling that you will be like me and find yourself losing most of your excess weight over time. I have read on this forum about people who have lost 100+ pounds without even trying, so there is a lot to this gluten-free "thing". I have been doing a lot of personal research as to the reasons that this is so, and I really think that it boils down to our bodies finally being "full" since our intestines are finally absorbing all of the nutrients that we eat.

Congratulations, and welcome to the "losing" side!

Teresa Koch

Fort Worth, Texas

Tabbiekatz Newbie

Actually, right now I'm fluctuating. I'll loose 5 lbs, then gain it back agian and I don't know how, other than excersize....lol spelling.

But my body is still shrinking, little bits at a time. I can now feel my ribs which I haven't felt in along time and my hair is getting thicker. Believe me, this is a good thing.

Hey Tabbiekatz!, how's it going.

Lost another pound this week, so it looks like we're on the same schedule!

Rebecca's mom Rookie

Oops - read next post.....

Rebecca's mom Rookie

If it helps any, the entire time that I have been gluten-free, my weight has also fluctuated. I figure this is due to losing the "water" weight from fat loss, then gaining some weight back when the fat is converted into muscle mass. I have definitely seen a marked difference in my muscle tone, and I haven't exercised one bit! You will probably find, as I have, that your weight continues to steadily go down, despite the fluctuations.

Incidentally, I have told my husband that I am "conducting a scientific experiment" - I am thinking that a gluten-free "diet" will benefit EVERYONE, and best of all, you get to eat all of the foods that you love. In order to "prove" this theory, I decided to only have one variable. I told my husband that I CAN'T give up my Cokes and sugar, and I CAN'T exercise, because then I will never know WHAT caused the weight loss / muscle tone change.......

Pretty clever, huh?

Teresa K.

  • 4 months later...
mom26boys Apprentice
If it helps any, the entire time that I have been gluten-free, my weight has also fluctuated. I figure this is due to losing the "water" weight from fat loss, then gaining some weight back when the fat is converted into muscle mass. I have definitely seen a marked difference in my muscle tone, and I haven't exercised one bit! You will probably find, as I have, that your weight continues to steadily go down, despite the fluctuations.

Incidentally, I have told my husband that I am "conducting a scientific experiment" - I am thinking that a gluten-free "diet" will benefit EVERYONE, and best of all, you get to eat all of the foods that you love. In order to "prove" this theory, I decided to only have one variable. I told my husband that I CAN'T give up my Cokes and sugar, and I CAN'T exercise, because then I will never know WHAT caused the weight loss / muscle tone change.......

Pretty clever, huh?

Teresa K.

That is great! I need to borrow that one!!! :D

DivasDare Newbie
I was surprised how much my urinary output increased when I went gluten-free, all that liquid had been going to my bowels before.

After a year and a half later, my weight on the scale is the same but people are always commenting on my "weight loss" and how good I look now.

Kate

Hi,

I am newly gluten-free/DF and I've noticed this past week that I have to urinate every hour if not more. I almost thought there was something wrong with me. Thanks for explaining.

summerteeth Enthusiast

Wow - after reading this, I realized that I went down a shoe size... I never realized that that could be from water weight lost after going gluten-free. Weird how you have an "epiphany moment" like that sometimes... :rolleyes:

And that I was urinating more often, too, after my diagnosis. It's weird how you don't think of these things that are so glaringly obvious until months after the fact.

Judyin Philly Enthusiast
I was once morbidly obese and can say that weight loss doesn't happen quite the way you would expect. There would be times when I would lose a lot of pounds but my body stayed the same shape. Then there would be times when my body would change drastically but no pounds came off. I started excersizing a lot and I reached a pont where my body got smaller and the pounds increased. This was from increased muscle mass.

same happened to me

anyone notice that with constant 'd' even tho following strict gluten-free, sf, low oxalate and low night shade eating program.............that................

i don't loose weight when 'd' happens

I've had 'd' for 5 weeks

trying different things with drs............lost 2 pounds in this time

i don't eat much as just can't eat

course selling the house and getting it ready for the market hasn't been easy with eating limitation.

i know for me stress and alot of physical exersertion will make my fibro flare which it has.

it was under control for 5+ years while going gluten-free with the dx.

Always been obese.

hope to hear some feed back on 'd' and holding weight or gaining it.

the closermine powder for Habba syndrome did work for awhile but not now.

another call to Dr. is in order today i know but saw this and wanted to weigh HA in on the topic. :lol:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - MichaelDG posted a topic in Board/Forum Technical Help
      0

      celiac.com support

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • MichaelDG
      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.