Avg Years Lost Or Cut Short By This Disease Any Studys?

[UnhappyCoeliac]

Wondering if there is any sort um respected estimation about how many years of your life your likely to lose from this disease?

Diagnosed at 22 here. Had not symptoms to late 21 really but I think gee maybe somewhere between 5-10

[ravenwoodglass]

There is actually a bit out there if you try a search using the words mortality and celiac,

This first is from the NIH, It is an excellent site to do a search of many things related to celiac. I typed celiac, mortality and NIH in a search engine. The most important thing to note is the first snippet I have bolded it. The important thing is dietary compliance. When we are compliant with the diet our risks of death from the related disorders is no higher than the regular population.

You were diagnosed pretty quickly, you should have no reason not to expect to have a long and healthy life.

Open Original Shared Link

"West et al [2004] found no significant difference in mortality rates between affected individuals on a gluten-free diet and controls [Farrell & Kelly 2002, Green & Jabri 2003, Treem 2004, West et al 2004, Alaedini & Green 2005, Catassi et al 2005, Green 2005, Hill et al 2005, NIH Consensus Committee 2005]."

Also from the NIH page about half way down:

"Morbidity and mortality. The clinical spectrum of celiac disease is wide, from a lack of symptoms to severe malabsorption syndromes. The manifestations of untreated celiac disease can include vitamin and mineral deficiencies, anemia, osteoporosis, infertility, neuropsychiatric conditions, secondary autoimmune disorders, and certain malignancies including non-Hodgkin

[tarnalberry]

ravenwood gave you some great articles to read - and I highly encourage you to do so.

I'll give you the short summary/approximation based on the assumption that you don't have a ton of complications from it taking a decade to diagnose you:

Follow the gluten free diet properly, and your life expectancy is the same as the average population.

Don't follow the gluten free diet, and your life expectancy is about 10 years less than the average population.

[UnhappyCoeliac]

thanks for the terrific posts

"The elevated mortality risk for all causes of death combined reflected, for the most part, disorders characterized by immune dysfunction."

This study isnt quite so promising

[ravenwoodglass]

  UnhappyCoeliac said:

thanks for the terrific posts

"The elevated mortality risk for all causes of death combined reflected, for the most part, disorders characterized by immune dysfunction."

This study isnt quite so promising

The results of not following the diet are the cause of the elevation in immune dysfunction. If you follow the diet and you stick with it your chances of developing the related disorders is decreased. If you have not already developed any of the disorders associated with noncompliance and you stick with the diet chances are you are not going to develop them. You may even find you are healthier than most in the long run.

[UnhappyCoeliac]

THANKS for the reply's people giving me a goal and something to work towards.

Yeh I am still getn the hang of it very much not completly gluten free but trying.

My new strat is simply meat gluten-free bread veggies and fruit, this way cross contaimination is hard and its hard to get fooled by certain foods if i dont have them

[ravenwoodglass]

  UnhappyCoeliac said:

THANKS for the reply's people giving me a goal and something to work towards.

Yeh I am still getn the hang of it very much not completly gluten free but trying.

My new strat is simply meat gluten-free bread veggies and fruit, this way cross contaimination is hard and its hard to get fooled by certain foods if i dont have them

Good strat. I find a rice cooker that has a steamer helpful also if you tolerate rice. Wild rice is nice for variety. I like stuff that just cooks itself and rice cookers do that pretty quickly.

The gluten free life is hard to get the hang of but you'll get there. Hopefully before long you will feel better than you remember feeling in a long time.