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Skin Absorption Of Gluten


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Tallforagirl Rookie
...A person with DH does not necessarily have Celiac...

Actually, a person with DH definitely does have celiac disease. So much so that if you have a skin-biopsy diagnosed case of DH, then it's taken as a diagnosis of celiac disease. No gut biopsy needed.

"Dermatitis herpetiformis (DH) is the skin manifestation of celiac disease. All patients with DH have celiac disease. It is an intensely itchy rash that usually occurs in the same place for each patient. This may be on the hands or fingers, forearms, buttocks or scalp or anywhere on the body. The rash typically consists of very itchy, small red dots that may develop into blisters or pimples. They are intensely itchy.

The diagnosis is clinical and can be confirmed by biopsy. The biopsy, for best results, needs to be taken from just adjacent to a lesion. The biopsy needs to have special immunofluorescence tests performed on it.

Treatment is first and foremost a gluten-free diet. This results in resolution of the lesions and will prevent new lesions. The diet also will prevent the development of lymphoma, that occurs at an increased rate as in patients with celiac disease. Drugs (Dapsone) may help patients recover from a severe episode, but are not a substitute for the diet. Patients with DH are very sensitive to small amounts of gluten."

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ravenwoodglass Mentor
"Dermatitis herpetiformis has also been reported to occur in people with vitiligo, type I diabetes, Sjogren
Lisa16 Collaborator

I was diagnosed by DH biopsy.

I was told this was a definitive diagnosis.

Furthermore, I believe in my ase it is an advanced form of the disease. Once your body takes to depositiing antibodies in the skin (or around the heart), you have been eating and reacting to gluten for quite awhile.

Lisa16 Collaborator

Momma Goose, are you telling me that I was mis-diagnosed (yet again?)

Are you telling me that I can go eat gluten again?

Are you saying that this entire year (+) that I have been gluten free was for naught?

Jestgar Rising Star
Momma Goose, are you telling me that I was mis-diagnosed (yet again?)

Are you telling me that I can go eat gluten again?

Are you saying that this entire year (+) that I have been gluten free was for naught?

I believe what she's saying is that, since the full effects of gluten on the body of someone who cannot process gluten completely are not fully defined, the labels that are applied (gluten intolerant, Celiac Disease, DH, etc.) are inconsistently used. Some people/doctors/sites will call DH celiac disease, others will call them separate disease stemming from one cause, others will say that gluten enteropathy, and perhaps also DH, are secondary to other diseases.

psawyer Proficient
Are you telling me that I can go eat gluten again?

Are you saying that this entire year (+) that I have been gluten free was for naught?

I don't think that she was saying that at all. Leaving aside the question of whether DH and celiac disease are the same or different, the fact remains that the treatment for DH is the strict adherence to a gluten-free diet.

MaryJones2 Enthusiast

This is a worthwile read: Open Original Shared Link


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    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
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