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Celiac Disease In The News


celiac3270

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celiac3270 Collaborator

I get a couple articles every day from a news alert I have for celiac. I think instead of starting a new topic for each article, I'll just post a few articles under here every day. I'll only start new topics for those of great importance/interest:

March 24-25

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  • Replies 112
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Roo Explorer

Thanks celiac3270, those were great!

Keep posting!

Roo

mommida Enthusiast

Thanks celiac3270!

I haven't been to that store in a while and that is big news to me about the new pasta products.

I visited that doctor in Troy and was more than a little disappointed. He explained to me how too many people think they have Celiac when they don't. Very different from the interviews I had read. Well I left the office getting another useless blood test ( gluten free diet ), and a written diagnoses of IBS (no diagnoses and the insurance company won't pay the bill).

Laura

celiac3270 Collaborator

Here is a combination of articles/recipes. I've already posted some of the articles, but I just realized that they came with group of gluten-free recipes :)

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Sorry, nothing else new today <_<

celiac3270 Collaborator

Ooh...I just found another article :)...it didn't come through on my news alert, but it was on Delphi. The woman in the photo, Bobby Coughlin, is the...head?...of the Delphi board. The article is about the low-gluten communion.

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Guest BellyTimber

That was very interesting indeed.

Only:

She was forced to give up her bread-making hobby.

That's a pity as we know there are a number of ways of making gluten-free bread as we know (just got a bit out of practice, myself).

Michael

celiac3270 Collaborator

More news :)

...about the girl whose First Communion was...denied because she wanted to sub. rice wafer for wheat:

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plantime Contributor

celiac3270, how do you get these alerts? Is there a setting on your browser? Something that I can set mine to get?

celiac3270 Collaborator

Another article...lol: Open Original Shared Link

Dessa, I get the news alerts from google. You can set them up so that if the word..."celiac" is used anywhere in the article, they will send it to you...I know there are others, but Google works well, so I'm satisfied with it.

plantime Contributor

Thanks celiac3270! I'm going now to try and set it up!

celiac3270 Collaborator

Open Original Shared Link

Open Original Shared Link

These articles aren't anything...new...but I just post them in case there's anything interesting in them for someone. Also, if someone won't believe you about...the celiac disease and osteoporosis link, you can show them 15 articles on it and ask if all the newspapers are lying :lol: just kidding.

Dessa, did the alert work?

plantime Contributor

Yes, celiac3270, it did! It was very easy to set up, now I am just waiting for new articles to come out so I can read them! Thank you for the info!

VegasCeliacBuckeye Collaborator

"Dark chocolate ringed Isaiah Labay

KaitiUSA Enthusiast

Death?

Since when does celiac cause an immediate death?

Could he be allergic to gluten and a celiac maybe?

plantime Contributor

I saw that in that article, and decided the writer was trying for some drama!

celiac3270 Collaborator

More articles:

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celiac3270 Collaborator

Open Original Shared Link -- very, very, very short

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celiac3270 Collaborator

A small bit in this article on the celiac disease article from last week and about how it should've mentioned some more about the symptoms:

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celiac3270 Collaborator
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celiac3270 Collaborator

A couple more:

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celiac3270 Collaborator

I'm happy to keep doing this if you'd like me to, but just want to know if people want to see the articles or not.....I don't want to keep posting here and bumping it to the front if nobody wants to read it. ;) I don't mind either way...just want to know if this is getting in the way or not. :)

mommida Enthusiast

celiac3270,

Thank you so much for your dedication for providing this forum with more education. I am looking for more information on the gluten test sticks. I read an article on these small portable instant tests to check food for gluten.

Laura

Canadian Karen Community Regular

Hi celiac3270,

I for one check in here all the time for new articles...... Thanks for posting them!

Karen

KaitiUSA Enthusiast

I like to see them too celiac3270 :D Thanks for posting them B)

plantime Contributor

Keep posting the links, celiac3270. I keep checking in and reading them, too!

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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