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Celiac Disease In The News


celiac3270

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lbsteenwyk Explorer

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I was dismayed by Ms Edwards negative attitude toward celiac disease. I mean, I'd hardly call it a "death sentence." I also thought she made several misrepresentations about how difficult shopping is, etc. If she's hoping to build her business with this kind of "publicity" I think she'll be disappointed. I actually emailed her and expressed my concern about some of her comments.


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jaimek Enthusiast

What do you guys think of this?

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celiac3270 Collaborator

Yeah...they had about six of these articles (different newspapers/news stations, of course) and I was going to post them this morning, but didn't have time. Will put under my news thread :)

celiac3270 Collaborator

LOL...this is the thread...I didn't look at the title heading..ha, ha... :lol:

celiac3270 Collaborator

Oh, I just saw that I had that article you posted in an above reply, ibsteenwyk

ARTICLES ;)

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celiac3270 Collaborator

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mommida Enthusiast

Both of my kids were introduced wheat/gluten at the proper time to be in that window. Both of my kids are now on a gluten free diet for life.

Laura


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celiac3270 Collaborator

Yes...here are two more articles--sorry, but the past two or three days, almost all of the articles have been similar--on the wheat introduction thing:

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jaimek Enthusiast

So, I just found out that my parents fed me cereal at 2 1/2 weeks!!!! That explains a lot. I told my Mom I was protesting and that I thought she should have to follow my diet since she might have been the cause of it. ha!

celiac3270 Collaborator

Yeah <_<:) and lol in a strange way :lol:;)

celiac3270 Collaborator

I am posting this in both the Celiac Disease in the News thread and the Celiac in Toronto News Today thread because it pertains to communion, but it's also celiac disease in the news...deserves to be in both:

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Article entitled what would Jesus do? ....the question we've all been asking ourselves <_< and that I think we can make a fair assumption about.

Also pasted below since some newspapers knock articles off the internet or make you pay after a few days:

What would Jesus do?

Published in the Asbury Park Press 05/20/05

Holy Communion, a sacrament at the heart of Catholicism, begins as a joyous occasion for second-graders when they join their congregation in receiving the Holy Eucharist at the altar.

But for a little girl from Brielle, that step has been on hold. A year ago, the Diocese of Trenton said her First Holy Communion was not valid because she received a rice-based wafer, rather than a wheat-based host sanctioned by the Church. A medical condition, celiac-sprue disease, prevents her from ingesting wheat-based products

veggf Newbie

Thanks for posting the Duluth News Tribune article about the gluten-free food store/restaurant in Hayward, Wisconsin. The article has a couple of "gluten-free" errors, but is great otherwise. I've eaten food from there when I've been visiting family in the region and it was good. I hadn't had a pasty in a long time.

Guest BellyTimber
:P Who mentioned pasty! (Must learn to make them)
celiac3270 Collaborator

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(The person mentioned here, Chris, is a member at Delphi)

There's another article, but it requires you to register at a newspaper and it doesn't sound much different from the others I've posted.

celiac3270 Collaborator

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Guest BellyTimber

Thanks celiac3270, that's a very interesting article which I missed.

A close reading proves that things aren't as good in the UK as some elsewhere like to say.

With specific regard to coeliac disease notice how many weeks it took to organise a biopsy and how many more weeks it took to get the results.

The latest guidance is that these should happen immediately, but it is scarcely done.

It's commonplace not to get a biopsy at all and no diagnosis either.

The Bradford doctor is exceptionally good compared to most here.

celiac3270 Collaborator

Sure :). A day or two ago I signed up for alerts on "coeliac" as well as "gluten" and "celiac" so that I could also post stuff for those not in North America. I'll try to put something next to those posts, such as UK or Europe or not US or something so they're easier to find:

Oops...this one is for the UK that I got, but it's a job offer, lol, which mentions "coeliac" in it....ugg.

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There was one on embryonic stem cell research and celiac disease, but they won't let me access it since it was published yesterday, not today <_<

Awhile ago, I posted about the San Francisco something article... ;) anyway, they have letters to the editor, now...found out about this from the St. Johns List Serv:

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jenvan Collaborator

My friend found this on our local paper and sent to me. It was so cool she found it! Short article, read till the end and you'll see the connection to Celiac--

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celiac3270 Collaborator

I couldn't open two other articles because they required a subscription or membership. But the one that I could open:

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celiac3270 Collaborator

Open Original Shared Link -- gluten-free beer

Open Original Shared Link -- I read about this a few days ago. A celiac who was bicycling from CA to ME, about 4000 miles, was hit :o:(

celiac3270 Collaborator

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Guess what? Celiac referred to as an allergy? There's another topic on that, so maybe I'll provide a link to this one...

celiac3270 Collaborator

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    • Mari
      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
    • Mari
      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
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