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Celiac Disease In The News


celiac3270

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lbsteenwyk Explorer

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I was dismayed by Ms Edwards negative attitude toward celiac disease. I mean, I'd hardly call it a "death sentence." I also thought she made several misrepresentations about how difficult shopping is, etc. If she's hoping to build her business with this kind of "publicity" I think she'll be disappointed. I actually emailed her and expressed my concern about some of her comments.


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jaimek Enthusiast

What do you guys think of this?

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celiac3270 Collaborator

Yeah...they had about six of these articles (different newspapers/news stations, of course) and I was going to post them this morning, but didn't have time. Will put under my news thread :)

celiac3270 Collaborator

LOL...this is the thread...I didn't look at the title heading..ha, ha... :lol:

celiac3270 Collaborator

Oh, I just saw that I had that article you posted in an above reply, ibsteenwyk

ARTICLES ;)

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celiac3270 Collaborator

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mommida Enthusiast

Both of my kids were introduced wheat/gluten at the proper time to be in that window. Both of my kids are now on a gluten free diet for life.

Laura


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celiac3270 Collaborator

Yes...here are two more articles--sorry, but the past two or three days, almost all of the articles have been similar--on the wheat introduction thing:

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jaimek Enthusiast

So, I just found out that my parents fed me cereal at 2 1/2 weeks!!!! That explains a lot. I told my Mom I was protesting and that I thought she should have to follow my diet since she might have been the cause of it. ha!

celiac3270 Collaborator

Yeah <_<:) and lol in a strange way :lol:;)

celiac3270 Collaborator

I am posting this in both the Celiac Disease in the News thread and the Celiac in Toronto News Today thread because it pertains to communion, but it's also celiac disease in the news...deserves to be in both:

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Article entitled what would Jesus do? ....the question we've all been asking ourselves <_< and that I think we can make a fair assumption about.

Also pasted below since some newspapers knock articles off the internet or make you pay after a few days:

What would Jesus do?

Published in the Asbury Park Press 05/20/05

Holy Communion, a sacrament at the heart of Catholicism, begins as a joyous occasion for second-graders when they join their congregation in receiving the Holy Eucharist at the altar.

But for a little girl from Brielle, that step has been on hold. A year ago, the Diocese of Trenton said her First Holy Communion was not valid because she received a rice-based wafer, rather than a wheat-based host sanctioned by the Church. A medical condition, celiac-sprue disease, prevents her from ingesting wheat-based products

veggf Newbie

Thanks for posting the Duluth News Tribune article about the gluten-free food store/restaurant in Hayward, Wisconsin. The article has a couple of "gluten-free" errors, but is great otherwise. I've eaten food from there when I've been visiting family in the region and it was good. I hadn't had a pasty in a long time.

Guest BellyTimber
:P Who mentioned pasty! (Must learn to make them)
celiac3270 Collaborator

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(The person mentioned here, Chris, is a member at Delphi)

There's another article, but it requires you to register at a newspaper and it doesn't sound much different from the others I've posted.

celiac3270 Collaborator

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Guest BellyTimber

Thanks celiac3270, that's a very interesting article which I missed.

A close reading proves that things aren't as good in the UK as some elsewhere like to say.

With specific regard to coeliac disease notice how many weeks it took to organise a biopsy and how many more weeks it took to get the results.

The latest guidance is that these should happen immediately, but it is scarcely done.

It's commonplace not to get a biopsy at all and no diagnosis either.

The Bradford doctor is exceptionally good compared to most here.

celiac3270 Collaborator

Sure :). A day or two ago I signed up for alerts on "coeliac" as well as "gluten" and "celiac" so that I could also post stuff for those not in North America. I'll try to put something next to those posts, such as UK or Europe or not US or something so they're easier to find:

Oops...this one is for the UK that I got, but it's a job offer, lol, which mentions "coeliac" in it....ugg.

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There was one on embryonic stem cell research and celiac disease, but they won't let me access it since it was published yesterday, not today <_<

Awhile ago, I posted about the San Francisco something article... ;) anyway, they have letters to the editor, now...found out about this from the St. Johns List Serv:

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celiac3270 Collaborator

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jenvan Collaborator

My friend found this on our local paper and sent to me. It was so cool she found it! Short article, read till the end and you'll see the connection to Celiac--

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celiac3270 Collaborator

I couldn't open two other articles because they required a subscription or membership. But the one that I could open:

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celiac3270 Collaborator

Open Original Shared Link -- gluten-free beer

Open Original Shared Link -- I read about this a few days ago. A celiac who was bicycling from CA to ME, about 4000 miles, was hit :o:(

celiac3270 Collaborator

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Guess what? Celiac referred to as an allergy? There's another topic on that, so maybe I'll provide a link to this one...

celiac3270 Collaborator

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    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
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      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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