Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endo And Colonoscopy This Week, But Gluten Free...


dizzygrinch

Recommended Posts

dizzygrinch Enthusiast

Hello all, just thought I would post here. Im suppose to have an endoscopy and colonoscopy this Thursday, unless this problem I have with the paperwork doesnt resolve, but anyway...just wondering if its even worth it? Im gluten free since October, so not sure what they will find if anything. But, Im severaly vitamin d defeciant, my doc seems to think its related to my gut not absorbing the vitamins. does anyone know if something like that is able to be determined by and endo or colonoscopy? btw, I feel 70% better being gluten free, but still, even after taking 50000 iu of vitamin d a week, its rarely showing up on blood tests...weird huh? well, sorry to ramble here...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cat3883 Explorer

I was actually diagnosed by bloodwork and endo in October 2008. My GI says it will take about 2 years for my small intestine to heal completely. So if you have celiac disease it will probably show up in the endo. But it probably wouldnt show up in bloodwork. I actually go back to my GI next month for bloodwork to make sure my numbers have gone down. Good luck to you.

cruelshoes Enthusiast

If a celiac removes gluten from his/her diet, improvement to the villi can be seen in as little as 2 weeks. For some it may take years to heal, but for some it happens much more quickly.

At this point, since you have been gluten-free for 6 months, your biopsy results will most certainly be skewed (presuming you had villi damage to start out with). If the biopsy results are positive, it would be consistent with celiac. But if the results are negative, they do not rule it out. So even if the answer is "no", it can't really be considered a definite "no."

If they are doing the colonoscopy anyway, you can have the endoscopy done because you will be prepped and out. But don't take the findings on villi damage as gospel if they are negative.

Lisa Mentor

Most of us have had digestive issues for years, so it's always good to have, at the very least, baseline tests. And, it might rule out any, more serious concerns.

gfb1 Rookie
[snip... even after taking 50000 iu of vitamin d a week...[snip]

holy crap.

i hope anyone following this regimen is doing it under the advice and watchful eye of a physician. vitamin D is not a toy. it is a fat-soluble vitamin that can be dangerous. while 50,000iu/wk is not necessarily toxic -- it is approx 20% of dosages that have been found to show toxic effects. imo, that's way too close for comfort.

this is getting awfully close to self-medication. also, these pills should NEVER be around where children might find them and should have childproof caps -- not in with the vitamin drawer...

dizzygrinch Enthusiast
holy crap.

i hope anyone following this regimen is doing it under the advice and watchful eye of a physician. vitamin D is not a toy. it is a fat-soluble vitamin that can be dangerous. while 50,000iu/wk is not necessarily toxic -- it is approx 20% of dosages that have been found to show toxic effects. imo, that's way too close for comfort.

this is getting awfully close to self-medication. also, these pills should NEVER be around where children might find them and should have childproof caps -- not in with the vitamin drawer...

Hello, yes, I am getting this prescribed by my endocrinologist. At first she had me on it once a month, no improvement, so for the past couple of months its been once a week. I appreciate your concern, but trust me, I dont go around self-medicating.... this is prescribed by my doc...thanks

mushroom Proficient
holy crap.

i hope anyone following this regimen is doing it under the advice and watchful eye of a physician. vitamin D is not a toy. it is a fat-soluble vitamin that can be dangerous. while 50,000iu/wk is not necessarily toxic -- it is approx 20% of dosages that have been found to show toxic effects. imo, that's way too close for comfort.

My rheumatologist told me that if you are really deficient in D, taking 50,000iu/mth which my PCP prescribed is just maintaining; that you need to fill up the tank first by taking that dosage every week for four weeks, then you can do the top-up every month. (with follow-up tests of course)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,216
    • Most Online (within 30 mins)
      7,748

    Athenablue
    Newest Member
    Athenablue
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.