Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Intestinal Healing


JWood

Recommended Posts

JWood Newbie

About 6 Month ago it was suggested I had Celiacs by my Doctor. I had intestinal symptoms and most telling, rashes on my arm that were especially aggravated when I drank beer.

I cut out gluten products, but cheated a few times on an occasional breaded appetizer at an Italian Restaurant. (It was harder to give up than the beer!) My symptoms improved, my skin began to clear up, and it appeared that did a great job.

I am 27, in good shape. About two weeks ago i made a pact to stop even ingesting the smallest quantity of gluten because I felt I was getting more and more sensitive. I would probably "cheat" very minimally, (maybe one mozzerella stick if that) up until this commitment.

These last two weeks have been brutal since this decision early in the week. My intestines feel like they are in knots.

I did do some drinking on the weekends, but the Sunday after there was never a problem. (I will be cutting out the alcohol for a period of time next to isolate this variable) My job as a business owner also involves a high level of stress the past few weeks (could this be why?) I have been drinking a lot of blueberry juice for the nutrition, and eating lean meats such as chicken.

My diet is the following:

Gluten Free Cornflakers for Breakfest, skim milk, OJ, Vitamin C, Multivitamin, Blueberry Juice. i also tried this Activia Yogurt, however, the intestinal symptoms getting worse occured before this variable.

Lunch: Either I skip lunch or have a Chefs Salad with Chicken Eggs, Spinach, Vegetables, Vinegrette

Dinner: Either Chicken, Potato Pasta w/parm cheese, Steak, Spinach, Rice Pasta

I have recently been reading up on healing the intestines. Do your intestines get worse before they get better? How long does this take. on average, if you can heal your intestines, what can i eventually go back to eating.

I am intersted in peopls experiences, because things have gotten worse when i thought they would get better.

Thanks for reading...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



emcmaster Collaborator

The simple answer is that your intestines aren't going to heal unless you stop cheating and stop ingesting any trace amounts of gluten.

Lisa Mentor

With your removal of most gluten, your system may be becoming more sensitive. It's often recommended that you give up dairy for a while, which will allow your system to heal. A gradual re-introduction is often successful.

If you do have Celiac (no "s"), your system is pretty beat up. Go easy, with simple foods like meat, fish, rice, potatoes, veggies and fruit. Yoplait yogurt is gluten free (aside from the crumbs and cookies), but not sure about Activia.

Get yourself a toaster just for your use and check your meds, vitamins, lotions, lipsticks/balms and shampoos. Review anything that can get into your mouth.

Good luck and hope this was helpful.

Armae Newbie

Hi Jwood, I'm sorry I don't think I can be of much help but I am in a similar position and it has been about the same time since diagnosis for me too, so it would be interesting to see what other people have to say about it.

In my experience at least, I've felt worse before I've gotten better, and I am yet to actually get better! heh

My gastroenterologist told me that the longer you have had undiagnosed, untreated celiac disease, the longer it takes for the intestines to heal, so it can take months for some or years for others, depending on the extent of intestinal damage.

Your diet (sans the beer!) sounds pretty good IMO, especially if you don't skip lunch.

Good luck!

-Armae

chasbari Apprentice

Once I went gluten free I started to feel not worse. When I went very strict paleo I began to feel better. I was crazy hungry at first and, in fact, am going through a patch where I can't get enough to eat regardless. I know that I began to feel everything in my gut once I began gluten-free including raging hunger. It had been about ten years since I had actually felt the feeling of true hunger as I was just constantly bloated. I also encountered intestinal spasms and have, on occasion general pain. I could not tolerate any alternative grains, soy, corn or dairy as I am dealing with leaky gut. I anticipate being able to slowly add things in after I give the gut time to heal. I have lost 20 pounds in the two months and the temptation is always there to dive in to a box of jelly donuts or my wife's chocolate chip cookies but my physical health is getting so much better in spite of all the challenges of dietary compliance. Good luck.

CS

ang1e0251 Contributor

My diet is the following:

Gluten Free Cornflakers for Breakfest, skim milk, OJ, Vitamin C, Multivitamin, Blueberry Juice. i also tried this Activia Yogurt, however, the intestinal symptoms getting worse occured before this variable.

Lunch: Either I skip lunch or have a Chefs Salad with Chicken Eggs, Spinach, Vegetables, Vinegrette

Dinner: Either Chicken, Potato Pasta w/parm cheese, Steak, Spinach, Rice Pasta

A couple of things I noticed. Another poster mentioned dairy. If you drop dairy, take the yogurt along with it for now. Also I know I could not tolerate fruits for several months until I healed some and you are having a lot. I don't know if that's part of the problem but it's worth a test. Like dairy, fruit can often be added back in after awhile.

The biggest red flag to me was the vinagrette. I've read that some have gluten. What are the ingredients?

MaryJones2 Enthusiast

Is Activia gluten-free? I thought they used barley in their natural flavors.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 3 weeks later...
thleensd Enthusiast

Activa is not ok... most of the links I found were old, but many of them indicated that there was either cross contamination or that the flavorings are not ok! So, you should definitely replace that in your diet.

Hang in there! Most of us here have has plenty of trials with patience and frustration!

katerinoula18 Newbie

Activia contains gluten!!! Be careful! This is how I got glutened for the first time after going gluten-free and it took me a week to get over my symptoms.

  • 1 year later...
katharos Newbie

Yoplait yogurt is gluten free (aside from the crumbs and cookies), but not sure about Activia.

When I was comparing yogurts, I noticed that most say "contains live active cultures including . . ." Yoplait was a notable exception. Also, it seems to have too much other chemical junk added for my comfort. I suspect that the finished yogurt is pasteurized to stop further probiotic growth, and you're therefore not actually getting any beneficial microorganisms from yoplait. Just some food for thought.

Asher

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

    2. - Juliane replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

    3. - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

    4. - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,841
    • Most Online (within 30 mins)
      7,748

    Julia Duffee
    Newest Member
    Julia Duffee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free) I add a very tiny amount of margarine less than a teaspoon.  I did no't have any bread    It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms. My lower abdomen feels horrible, my right leg thigh muscle.. very odd. Jaw pain. Burning feet , joint pain , you name it  The anxiety just creeps up into brain fog. I don't think I could explain this to anyone who is unfamiliar.  Also,  I most likely will not remember posting this until I check it.  This is highly unusual for me because I have an excellent memory.  One weekend before I knew anything about celiac I lost an entire weekend from severe brain fog, confusion, pain, etc.  I honestly thought I was losing my mind. When I think back I recall eating a lot of PBJ sandwiches and turkey sandwiches.  Once again did not know about gluten.  I was just too sick to cook. Do people fast during attacks ?? It seems horrible to keep going through this. I hope I'm not causing my own problems... I wonder if I should fast because I'm not eating gluten .  Chicken ,  scrambled eggs no milk , canned carrots,  gluten free low sugar low fat Greek yogurt which I already posted about 😞 Any suggestions I am open... I am bedridden when this happens to me.  Thank you Celiac community. 🙏🏻❤️      
    • Juliane
      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
    • RMJ
      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.