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Questions

Salax

By Salax
in Coping with Celiac Disease

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Salax Contributor
Salax
Posted

I have questions.

1. Celiac Disease is different from Gluten Intolerance, correct? My understanding is that Celiac is a disease that when you get Gluten your body thinks it

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OptimisticMom42 Apprentice
OptimisticMom42
Posted

Ok I'm new to this also but it sounds like everyone's a little different. Maybe due to the extent of the damage to the small intestine. Some celiacs can not tolerate any dairy protein at all (that's me) some are lactose intolerant and some lucky devils can eat all the gluten free ice cream they want too! When my trouble started my family dr told me to use lactaid before meals in which I could not be 100% sure there was no dairy for a few days. It was less terrible but in no way OK. That's when he sent me to the gastro who sent me to the immunologist where I received the diagnosis of celiacs.

Take care, OptimisticMom42

ang1e0251 Contributor
ang1e0251
Posted

1. Celiac Disease is different from Gluten Intolerance, correct? My understanding is that Celiac is a disease that when you get Gluten your body thinks it

happygirl Collaborator
happygirl
Posted
1. Celiac Disease is different from Gluten Intolerance, correct? My understanding is that Celiac is a disease that when you get Gluten your body thinks it

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    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
    • trents
      Is it gluten?

      By trents · Posted

      @par18, no, Scott's use of the term "false negative" is intentional and appropriate. The "total IGA" test is not a test used to diagnose celiac disease per se. The IGA immune spectrum response encompasses more than just celiac disease. So, "total IGA" refers to the whole pie, not just the celiac response part of it. But if the whole pie is deficient, the spectrum of components making it up will likely be also, including the celiac disease response spectrum. In other words, IGA deficiency may produce a tTG-IGA score that is negative that might have been positive had there not been IGA deficiency. So, the tTG-IGA negative score may be "false", i.e, inaccurate, aka, not to be trusted.
    • RMJ
      nothing has changed

      By RMJ · Posted

      This may be the problem. Every time you eat gluten it is like giving a booster shot to your immune system, telling it to react and produce antibodies again.
    • asaT
      nothing has changed

      By asaT · Posted

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
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