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Confused About Test Results


cdbase7211

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cdbase7211 Newbie

have been lurking awhile and figured I would ask before I go crazy on google trying to get the info many of you most likely can provide me here:)

I am wondering if my children may have celiac or some type of gluten intolerance.

I have a 7 year old diagnosed with PDD-NOS- his IGA test came back in ref range however his IGG came back high -I was going to try the gluten-free diet but was told by he has been chronically constipated since infancy (dr had me giving him miralax in his bottle) to the point where he needs miralax daily in order to go to the bathroom. he also has a developmental delay (PDD) his speech has improved but regresses every now and then.

My 14 yr old son- same thing with the blood tests - no real gi issues but constantly exhausted- diagnosed ADHD -sleeps all day in school even after sleeping all night- very distracted and impulsive.

my 13 year old daughter- chronic constipation-to the point where she has numerous uti's -uses miralax and suppositories regularly, horrible gas, really horrible gas! frequent headaches like 4x a week- we are waiting her test results from the gi dr.

any suggestions? we are in philadelphia if there are any good dr as well!


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lizard00 Enthusiast

Hi and welcome! :)

Do you have a copy of their test results? If you do and could post them, that would help.

I didn't have a lot of GI symptoms. My two major symptoms were headaches and terrible fatigue. To the point where I could take a two hour nap, sleep 11 hours, and wake up exhausted. I never, ever felt rested. And the headaches were getting unbearable. No major GI complaints to speak of. I also didn't test positive on the tests... that's another long story. Took me about 6 months, but I actually got a celiac diagnosis.

Chronic constipation, while seemingly normal for your children, is not normal. The regular use of miralax and suppositories is really not helping them in the long run, as I'm sure that is part of what led you here. The IgG, while not as specific as the IgA tests, do seem to indicate something is going on.

If you are thinking of trying to the gluten-free diet, you don't have to have anyone's permission to do so. But give it at least 6 weeks, longer if you can. If you start to see things resolving, nothing new appearing, even if it's slower than you think, you may have found the problem. Eliminating gluten from their diet is not going to hurt them, just be ready to switch gears if you need to.

I hope your children start feeling better soon. It's hard to see our kids sick... :(

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    • trents
      @cristiana, I'm thinking the intensity of our response to the same amount of gluten can vary from time to time. Our bodies are a dynamic entity. 
    • Scott Adams
      I'm going to try Jersey Mike's soon--we have one nearby. Thanks for sharing!
    • cristiana
      Hi @trents Two things can happen:  1/ For a very small gluten hit, I will get a slightly sore stomach for a few days, maybe a day or two following the glutening, and (TMI warning) maybe slightly loose BMs with mucus  for a couple of days.  2/ For a substantial glutening, and thankfully it's only happened once in recent years,  I get bad chills, followed by vomiting, and my heartbeat is all over the place and I can hardly stand.  It's pretty extreme.  That happens within about 2 hours of eating the gluten.  I might feel slightly dizzy for a couple of days after the glutening episode. Interestingly I've just been out to a cafe which hitherto has made a big thing about how their french fries are cooked in a separate fryer.  I shared some with a friend and they were served with chilli sauce, jalapenos, cheddar cheese and fried onions.  Definitely not health food!  Anyway,  I'd eaten half when I realised I'd not checked the menu to ensure that this dish is still gluten-free - and it turns out it isn't!!!  They've changed the ingredients and the fried onions are now cooked with wheat.   I came home expecting to feel dreadful as I had no idea how much gluten I have consumed but so far if anything I feel just little queasy.  I think I'd have thrown up by now had there been a lot of gluten in the onions.  
    • trents
      It might be wise to start him on small amounts and work up to 10g. Monitor how he reacts. Some people simply cannot complete the gluten challenge because it makes them too ill. By the way, you can buy powdered gluten in health food stores, at least here in the states you can. With a food scale, it would be easy to measure the amount being consumed in a day. I'm not sure what the intensity of reaction to gluten tells you about what's actually going on with regard to celiac disease. I mean there are some celiacs like me who don't seem to react to minor exposure amounts but who get violently ill with larger exposures. Then there are celiacs who get some kind of reaction to even the tiniest amount of exposure but don't necessarily get violently ill. And how the reaction manifests itself is very different for different people. Some, like me, experience emesis and diarrhea. Others just get brain fog. Others get joint pain. It's all over the map.
    • melthebell
      That's interesting - that's a lot of gluten! I'll be very curious to see how my son responds to the gluten. In some ways, I guess having a strong reaction would tell us something? It's tough navigating this as a parent and having it be not so clear cut ;\
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