Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Confused About Test Results


cdbase7211

Recommended Posts

cdbase7211 Newbie

have been lurking awhile and figured I would ask before I go crazy on google trying to get the info many of you most likely can provide me here:)

I am wondering if my children may have celiac or some type of gluten intolerance.

I have a 7 year old diagnosed with PDD-NOS- his IGA test came back in ref range however his IGG came back high -I was going to try the gluten-free diet but was told by he has been chronically constipated since infancy (dr had me giving him miralax in his bottle) to the point where he needs miralax daily in order to go to the bathroom. he also has a developmental delay (PDD) his speech has improved but regresses every now and then.

My 14 yr old son- same thing with the blood tests - no real gi issues but constantly exhausted- diagnosed ADHD -sleeps all day in school even after sleeping all night- very distracted and impulsive.

my 13 year old daughter- chronic constipation-to the point where she has numerous uti's -uses miralax and suppositories regularly, horrible gas, really horrible gas! frequent headaches like 4x a week- we are waiting her test results from the gi dr.

any suggestions? we are in philadelphia if there are any good dr as well!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lizard00 Enthusiast

Hi and welcome! :)

Do you have a copy of their test results? If you do and could post them, that would help.

I didn't have a lot of GI symptoms. My two major symptoms were headaches and terrible fatigue. To the point where I could take a two hour nap, sleep 11 hours, and wake up exhausted. I never, ever felt rested. And the headaches were getting unbearable. No major GI complaints to speak of. I also didn't test positive on the tests... that's another long story. Took me about 6 months, but I actually got a celiac diagnosis.

Chronic constipation, while seemingly normal for your children, is not normal. The regular use of miralax and suppositories is really not helping them in the long run, as I'm sure that is part of what led you here. The IgG, while not as specific as the IgA tests, do seem to indicate something is going on.

If you are thinking of trying to the gluten-free diet, you don't have to have anyone's permission to do so. But give it at least 6 weeks, longer if you can. If you start to see things resolving, nothing new appearing, even if it's slower than you think, you may have found the problem. Eliminating gluten from their diet is not going to hurt them, just be ready to switch gears if you need to.

I hope your children start feeling better soon. It's hard to see our kids sick... :(

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      ttg iga high (646 mg/dl) other results are normal

    2. - kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      ttg iga high (646 mg/dl) other results are normal

    3. - kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      ttg iga high (646 mg/dl) other results are normal

    4. - kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      ttg iga high (646 mg/dl) other results are normal

    5. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      ttg iga high (646 mg/dl) other results are normal


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,328
    • Most Online (within 30 mins)
      7,748

    Kathy58
    Newest Member
    Kathy58
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • kpf
      And of course I get these results (the ttg iga marked high at 646 mg/dL) on a Friday in my portal, my doctor wasn't in, and now we are in the weekend—leaving me to have to try and figure things out on my own until sometime next week. None of the nurses at the office would talk to me. 
    • kpf
      peptide iga, peptide igg, and ttg igg were all marked normal with limits noted as <15.0
    • kpf
      Gliadin peptide iga was 0.7 U/mL Gliadin peptide igg was <0.4 U/mL IGA TTG was 646 mg/dL (marked high with limits noted as 40-350) IGG TTG was <0.8 UmL
    • kpf
      I can’t figure out how to attach a photo here, but thank you so much for your response. And thank you for the welcome. 
    • trents
      Are you asking if it is typical to only have the ttg-iga be high and the other tests being within normal range? Is so, the answer is it is very common. What other tests were included in the celiac panel? Can you list all tests and include not only the scores but the reference ranges? Different labs use different reference ranges so it is difficult to say much by just looking at the scores. Welcome to the forum, @kpf!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.