Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Confused About Test Results


cdbase7211

Recommended Posts

cdbase7211 Newbie

have been lurking awhile and figured I would ask before I go crazy on google trying to get the info many of you most likely can provide me here:)

I am wondering if my children may have celiac or some type of gluten intolerance.

I have a 7 year old diagnosed with PDD-NOS- his IGA test came back in ref range however his IGG came back high -I was going to try the gluten-free diet but was told by he has been chronically constipated since infancy (dr had me giving him miralax in his bottle) to the point where he needs miralax daily in order to go to the bathroom. he also has a developmental delay (PDD) his speech has improved but regresses every now and then.

My 14 yr old son- same thing with the blood tests - no real gi issues but constantly exhausted- diagnosed ADHD -sleeps all day in school even after sleeping all night- very distracted and impulsive.

my 13 year old daughter- chronic constipation-to the point where she has numerous uti's -uses miralax and suppositories regularly, horrible gas, really horrible gas! frequent headaches like 4x a week- we are waiting her test results from the gi dr.

any suggestions? we are in philadelphia if there are any good dr as well!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lizard00 Enthusiast

Hi and welcome! :)

Do you have a copy of their test results? If you do and could post them, that would help.

I didn't have a lot of GI symptoms. My two major symptoms were headaches and terrible fatigue. To the point where I could take a two hour nap, sleep 11 hours, and wake up exhausted. I never, ever felt rested. And the headaches were getting unbearable. No major GI complaints to speak of. I also didn't test positive on the tests... that's another long story. Took me about 6 months, but I actually got a celiac diagnosis.

Chronic constipation, while seemingly normal for your children, is not normal. The regular use of miralax and suppositories is really not helping them in the long run, as I'm sure that is part of what led you here. The IgG, while not as specific as the IgA tests, do seem to indicate something is going on.

If you are thinking of trying to the gluten-free diet, you don't have to have anyone's permission to do so. But give it at least 6 weeks, longer if you can. If you start to see things resolving, nothing new appearing, even if it's slower than you think, you may have found the problem. Eliminating gluten from their diet is not going to hurt them, just be ready to switch gears if you need to.

I hope your children start feeling better soon. It's hard to see our kids sick... :(

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to LovintheGFlife's topic in Traveling with Celiac Disease
      1

      Traveling gluten-free in Ireland

    2. - Scott Adams replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Prana Organics no longer GFCO-certified

    3. - Scott Adams replied to cristiana's topic in Related Issues & Disorders
      3

      Healthy diet leading to terrible bloating

    4. - Scott Adams replied to hjayne19's topic in Traveling with Celiac Disease
      3

      Mallorca Guide

    5. - Scott Adams replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      3

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,975
    • Most Online (within 30 mins)
      7,748

    JimmyRu
    Newest Member
    JimmyRu
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Thanks for sharing this! I've always wanted to go to Ireland, and we did include Ireland in a recent top travel destinations article, so it's nice to know that we got that right:  
    • Scott Adams
      That's too bad--this recent topic might be helpful:  
    • Scott Adams
      I had double hernia laparoscopic surgery two months go to repair both an Inguinal hernia (a recent home project injury) and an umbilical hernia (which I had for many years, but fixing it at the same time made sense), and am now more or less fully recovered. Recently on the forum someone mentioned the idea of hernia induced IBS, which I now believe was a real for me, but was a fairly minor issue overall, which got worse after getting the more recent Inguinal hernia. My doctor never mentioned this as a possibility, even though I directly asked him about it during my office visit: Me "can my hernias cause any digestive issues?" My doctor: "No, I doubt that." I still need to learn more about hernia induced IBS, but I realize now that I might have been affected by this to some degree in for a while. 
    • Scott Adams
      Mallorca sounds like a great travel destination! This article may also be helpful--it contains a gluten-free restaurant card that might be handy when eating out:  
    • Scott Adams
      I am so glad you found this forum and shared your journey. Hearing about your experience navigating those major food holidays so soon after your October diagnosis truly highlights your strength and resilience, even through the inevitable learning curves with cross-contamination. It's normal to feel isolated, especially when in-person support seems scarce in your area. Your idea to reach out to your GI and dietitian at NW Medicine is an excellent one, as they often have knowledge of local resources or even virtual networks. It’s wonderful to hear you’ve already secured a connection point with the Celiac Disease Foundation’s Zoom meeting and the podcast—those are fantastic steps toward building your community. Your feeling that celiac can be uniquely isolating is so true, but be sure to know that you are not walking this path alone. This community is here for you, and I sincerely hope that as you continue to reach out, both virtually and through your medical team, you will find more of the personal, local connections you’re seeking. We’re all in this together.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.