Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Tests Should I Have Done For Celiac?


SLB5757

Recommended Posts

SLB5757 Enthusiast

Hello again!

First I want to say thank you for all the responses, and support on my previous post. I had one more question that I would liek to see if anyone can help with. I live in a small town and I do not think the physicians here are very "up to speed" on Celiac disease or the testing required for it.

I had a celiac test that came back negative a year ago. My doc had sent out bloodwork to an outside facility. I have asked that it be faxed to me so I can be more specific as to exactly what test it was. I also had an endoscopy two years ago - and I do not believe they did a biopsy for celiac at that time since they believed I had GERD. I have called the gastro that I went to to check and see if one was done at that time.

So my question is:

What specific tests should be done to rule out celiac? I have seen "Enterolab" on this board, and "IG something", and the biopsy via scope as being the "gold standard" for detection.

Thanks!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
So my question is:

What specific tests should be done to rule out celiac? I have seen "Enterolab" on this board, and "IG something", and the biopsy via scope as being the "gold standard" for detection.

Thanks!!!

This is the panel that you should begin with:

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

(you should remain on a full gluten diet for many weeks to aid in it's accuracy)

Unfortunately, testing is not as accuracy as we would like at this time. The Serologic Blood panel can rule Celiac in, but it cannot rule it out, as with the endoscopy/biopsy.

SLB5757 Enthusiast
This is the panel that you should begin with:

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

(you should remain on a full gluten diet for many weeks to aid in it's accuracy)

Unfortunately, testing is not as accuracy as we would like at this time. The Serologic Blood panel can rule Celiac in, but it cannot rule it out, as with the endoscopy/biopsy.

I just received the test back from my doctors that was done April of last year. They sent blood to the Mayo Clinic lab. The test that was ordered says Endomysial Abs, S (IgA). It says "negative" and that is the only words listed on the report. No levels as in numbers...just the words "negative".

The report states:

Test requested: Endomysial Abs, S (IgA)

Hi/Lo: Negative

Ref Range: Negative

Perform Site: MCR

My doc who is a CNP - just mailed it to me and said " your test for Celiac disease was negative". I may look into the other tests you have mentioned above. Thank-you.

Lisa Mentor
I just received the test back from my doctors that was done April of last year. They sent blood to the Mayo Clinic lab. The test that was ordered says Endomysial Abs, S (IgA). It says "negative" and that is the only words listed on the report. No levels as in numbers...just the words "negative".

The report states:

Test requested: Endomysial Abs, S (IgA)

Hi/Lo: Negative

Ref Range: Negative

Perform Site: MCR

My doc who is a CNP - just mailed it to me and said " your test for Celiac disease was negative". I may look into the other tests you have mentioned above. Thank-you.

Here is additional information you might find important:

Open Original Shared Link

AWonderTree Rookie

I don't mean to hijack this thread, but I basically have the same question as the topic's starter.

I'm feeling stupid because I'm having trouble understanding which tests weren't done on my report:

Reticulin Abs, S: Negative

Endomysial Abs, S: Negative

Gliadin(Deamidated) Ab, IgA, S: 2.9; <20.0 (Negative)

Gliadin(Deamidated) Ab, IgG, S: <1.0; <20.0 (Negative)

My questions:

  • What do these words and abbreviations mean: Abs, S, deamidated, Ab?
  • Are the first two any of the following (that I've read should be done)?
    Anti-gliadin antibodies (AGA) both IgA and IgG
    Anti-endomysial antibodies (EMA) - IgA
    Anti-tissue transglutaminase antibodies (tTG) - IgA
    Total IgA level.
  • Am I right to think that the last two on my report are "Anti-gliadin antibodies (AGA) both IgA and IgG"?
  • And the rest seem to be completely skipped. Hmmm.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,794
    • Most Online (within 30 mins)
      7,748

    MaryLandry
    Newest Member
    MaryLandry
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Waterdance
      Thank you for saying that. That doctor diagnosed me with IBS with no follow-up so the relationship is already concluded. If I pursue diagnosis further I'll request someone else. 
    • Rejoicephd
      Hey everyone. Thanks again for your suggestions. I wanted to give an update and ask for some follow-up suggestions from you all.  So I did go through all of my food items and stopped eating things that were “gluten free” and switched over to the “certified gluten free” ones (the ones with the g symbol). I also stayed away from restaurants except once and there I ordered something raw vegan and gluten free hoping for the best. I also stayed away from oats and soy and dairy. I've also been increasing my vitamin B complex. I've been doing this for about 12 days and while I know that's not that long, I'm still getting sick. Sometimes having diarrhea. Sometimes getting headaches and having necklaces. Sometimes waking up feeling horrible brain fog. I did go to my GI doc and they did a blood test and found my TtG-IgA was in the negative range (and a lower number than I'd had before). I also had normal levels of CRP. My stool showed no elevation of calprotectin and no pathogens. My GI doc said the symptoms could be related to a gluten exposure or to IBS. I'm keeping a food diary to see if I can narrow down whats going on. I know I have good days and bad days and Im trying to isolate what makes a good day versus a bad day. Generally so far it looks like if it eat something super cautious like raw vegetables that I chopped myself into a salad and almonds, im fine but if I eat something more complex including, say, chicken and rice (even if packaged and certified gluten free or made by me with gluten free ingredients), it may not go so well. I may end up with either a headache, neck tension, brain fog, and/or diarrhea that day or the morning after. Any other thoughts or suggestions? I am planning to start tracking my foods again but I wanted to do it in more detail this time (maybe down to the ingredient level) so are there any common ingredients that celiacs have issues with that you all know of that I should track? I've got dairy, oats, soy, eggs, corn, peas, lentils on my “watch list”. Other things I should add? I'm hoping if I track for another two weeks I can maybe pin down some sensitivities. Appreciate the help and tips. Thank you so much!!
    • trents
      "My GI doctor ruled out gluten celiac entirely because I didn't have skin rash." Are you serious? The overwhelming majority of people with confirmed celiac disease do not have the rash. It's called dermatitis herpetiformis. It is found in only about 10-15% of those with celiac disease: https://www.celiac.ca/gluten-related-disorders/dermatitis-herpetiformis/ If your GI doc is operating on that piece of misinformation, I would start looking for a new GI doc because I wouldn't trust him/her in general. 
    • Waterdance
      Thank you so much for your informative reply. My GI doctor ruled out gluten celiac entirely because I didn't have skin rash. I had a histamine response to wheat and milk by scratch test by an allergist. I'm not always symptomatic but the older I get the worse it gets. I've found through trial and error that I can react to all grains. Buckwheat and corn included. I tolerate some rice but I wouldn't want to eat it every day. Potato is pretty good for me but I can't eat it every day either. I compromise with squash. I tolerate it well. The Best I feel is while fasting. When I'm in pain and discomfort it's easy to fast even long term, it helps. The problem I'm having is I'm great with my diet for 3-6 months then I start to cheat again. When I don't get immediate symptoms I get this foolish false security. I react then go back to my diet. Rinse and repeat. I suppose discipline is my real issue. I'm very tired of perusing a diagnosis. The constant gaslighting and dismissal is exhausting. Thanks for your suggestion of the autoimmune protocol. I will give it a try. Perhaps the guidelines will help me to navigate better.   Thanks again.
    • Scott Adams
      This isn't the first potential celiac disease treatment in the pipeline that failed. There have been others...
×
×
  • Create New...