Mixed Feelings/information At Appt.

[Roda]

Well I made it to my oldest son's allergist/immunology appointment. I had a topic on him in January about possible gluten intolerance and was considering a trial of gluten free. I won't repeat myself so here is the link......https://www.celiac.com/gluten-free/index.php?showtopic=54964 Anyway, since the my last post on the topic I found out what his problem was. The beginning of March he had a slight fever and complained of his ear hurting. He never complains of earaches so I took him to the ped and to my suprise he had a wopping sinus infection. He has not had one in 2 years. I guess it is easy to forget what things were like when it goes away. He acted just like that when he had chronic sinus infections before finding out about his allergies. I kept him eating gluten in the off chance we had any more blood work done yesterday. I felt I was talking to a brick wall. I updated our medical history for his chart (husband highblood pressure and on meds and me celiac) and the celiac got the NP on the subject. She said wow it is rare to get diagnosed as old as I am since it is mostly caught in early child hood. WOW is this so wrong! I told her it was not all that uncommon and that there was still alot of misinformation out there especially the not so"classic poster child" person. I discussed possible further testing with my oldest and she did not feel it necessary. (I think if we had seen the actual Dr. I might have gotten somewhere) I told her about all his bowel issues until he was four and yes he seems ok with the constipation now, but we watch what he eats. I told her I was like him, minus the allergies, when I was little and now look at me two autoimmune diseases. I also addressed his height and weight. He was 49# and 48 3/4" tall yesterday. It put him in the 25th percentile. He is a very active boy so his weight does not bother me because he burns it off. There are short people in the family so I can't rule that out either. Anyway I could see I was loosing that battle and shut up because I was getting upset, especially since I had no sleep from working all night before. The one good thing that did come out of his appointment was that he is scheduled for a methacoline challenge test in June. When he went initially 2 years ago they diagnosed him with asthma. I did not realize that until he went for a check up at age 7. I have been insistant that he does not have it. They diagnosed him based on a pulmonary function test he had when he was six. I honestly believe he did not understad the directions when he did it then because everyone he has done since has been great. Of course she told me he could have asthma and be asymptomatic. So I guess we will see. The irritating thing my husband is on board with the NP thinking on the gluten intolerance. The only person who is supportive in my thinking about a trial is our NP at the peds office. She is great! She even said she would write a note for school if I needed her to. I think my husband thinks I'm trying to find something wrong with him. If that was the case why would I be insistant he does not have asthma when they say he does? Also I am not even worried about my 4 year old at this time about celiac. He is really starting to take off growing and he is almost done with all his meds. He goes off everthing in May. if he does well for the next six months then we are done with the specialist(same one as the oldest) I'm sorry for the rant I just don't know what to think anymore. Maybe I should just leave things the way they are and see how things go.

[Roda]

For some reason the link does not work in my last post. So here it is again.

https://www.celiac.com/gluten-free/index.php?showtopic=54964

[Woody6]

I my heart of hearts I truly believe Mom's generally know what is best for their babies. Keep up the good work Momma! You want a healthy child. There is nothing wrong with that. Hugs to you and your family.