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For Those With H.pylori


foodiegurl

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foodiegurl Collaborator

On top of just being diagnosed with Celiac, I have h.pylori. Well, that was what they were testing for, the Celiac was a bonus ;)

My Dr wants to treat it with the full meds..2 antibiotics 7 times a day for 2 weeks, plus pepto, plus omeprazole..so 14 pills a day total. For someone who HATES taking meds at all. I am allergic to three antibiotics, so it is different then then prev pack (or whatever it is called). i am really weary to do this for many reasons,

1) I have friends who have done this, and still have it after the are done with the meds..so a huge waste of time, and meds adverse effects;

2) Since I am already allergic to 3 antibiotics, I am sure I will have a reaction to one of these as well..and when I do, I won't know which one I am reacting to, and will have to cut out both for any future treatments of anything;

3) Since I have all this tummy stuff going on, I can't imagine such a huge overload of antibiotics is going to do any good for my tummy :(

I am currently taking 1 omeprazole a day, plus a probiotic. I originally complained about reflux, and since taking the omeprazole, it is gone. However, when I go feel tummy issues now, I am not sure if it is the h.pylori, or the celiac (which i never knew i had until this, and never had tummy issues before).

The other day after having a large salad and wine, I had a horrible tummy ache, and am just a 1 week in of being gluten free, so I doubt it is gluten, but maybe it is something with the h.pylori? Does h.pylori cause lower GI issues as well as reflux/heartburn?

I would love to figure out a natural way to control this h.pylori, rather than being so loaded down with meds. Is this something that needs to be totally eradicated, or something that just has to be controlled and balanced?

Thanks??


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ravenwoodglass Mentor

What you might want to do is get a second opinion as far as the H pylori treatment goes. Not all doctors will treat it as it is something that most of us have and it doesn't always cause issues. Since you were diagnosed with both at the same time it is hard to tell if stomach pain is from one or the other. H pylori is usually, as far as I know, associated with ulcers but celiac can be also. You could ask your doctor if it is okay to wait to see if the symptoms resolve on the gluten free diet if taking the antibiotics is not something your system can handle.

mamaw Community Regular

I'm not a pro on this subject to say the least but first off not all probiotics are created equal! We take Dr O'hirra's professional formula. This is the only one that I notice a difference with. Plus you could try kefir. Daily enzymes are good as well.

Now to your salad & wine. Never rule out gluten hiding in strange places.. Just because you just got dx'd doesn't mean a thing.. also some of us are very sensitive to sulphites in wine, MSG among other things.

It can take your body time to adjust to everything that is going on & recoup itself from the past ...

I don't blame you for not wanting to take antibiotics.. it is a choice you will have to make. Do what you feel is right for your body. You know your body better than any doctor..

good luck & I hope you get to feeling better soon

mamaw

YoloGx Rookie

If you are having digestive difficulties, it might be better to avoid raw vegetables (and hot spices, garlic, onions) for now. Ditto with the wine since it may irritate your stomach and/or gut until you heal whatever inflammation you've got. Its best to eat warm (i.e., not cold or hot) food and liquids until you feel better.

Meanwhile I agree with you. Many doctors tend to be antibiotic happy and in your case it doesn't sound like a very good idea since you become allergic to them so easily. Save them for an emergency when they are really needed. Its what I do.

The pepto is a good idea as long as you can handle the salicylates (aspirin).

However meanwhile there are real alternatives like DGL tablets. Make sure they are gluten-free of course. DGL is deglycerized licorice. It won't raise your blood pressure whereas regular licorice root will if taken long enough. It really helps heal the stomach and counteracts the H. Pylori.

Enterically coated Peppermint capsules are said to be excellent as well plus peppermint and chamomile tea. Very soothing. Fennel is good too...

In addition, my old standby of slippery elm and/or marshmallow root can work wonders on both the stomach and the gut. Very soothing of the innards! Takes down inflammation big time. No antibiotics...!!

Further, are you staying away from all the trace glutens? They might still be being ingested somethow and thus continuing to bother you...

Bea

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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