Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin Deficiency


diannalynn0711

Recommended Posts

diannalynn0711 Rookie

I recently had my doctor order a series of blood tests. I've been gluten-free for 5 years going on 6. When I was first diagnosed I had really low levels. They seem to all be fine now, but my Vitamin D and Folic Acid are low now. When I was diagnosed we went through a lot to find out which vitamins were gluten-free and which ones had the right dose. It has been so long since I have had to take any vitamins, I'm not sure which ones are gluten free anymore and if I can get these 2 on their own. Ive tried a multi-vitamin and had a reaction to it, so I am afraid of taking those again. :(

Does anyone take these supplements, what brand and what store did you get them at?

Thanks. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elonwy Enthusiast

I take Nature Made Liqiud softgel Vitamin D. Says gluten free right on the bottle. I too am super low in vitamin D, as I never go outside, and all the food that is fortified with it is cereals and bread and gluten things I don't eat.

diannalynn0711 Rookie

That's the same situation that I am in. With being lactose intolerant, I can not have milk to get a lot of vitamin D like everyone else. It has been so long since I have looked for them that I am not sure which ones to look at and all I have around here is a walmart. I am willing to drive to get any supplements since I know that I need them.

Where did you buy your supplement at?

Thanks :)

Bosque Rookie

I was just tested last week and was found to have a low D as well. My doc prescribed 50000 iu of D once per week for 12 weeks, then a retest. I forgot to check with the pharmacy if the script was gluten free!! :o

elonwy Enthusiast

I bought my vitamins at Walgreens. Taking the vitamin D has caused a drastic improvement in my health.

chatycady Explorer
I recently had my doctor order a series of blood tests. I've been gluten-free for 5 years going on 6. When I was first diagnosed I had really low levels. They seem to all be fine now, but my Vitamin D and Folic Acid are low now. When I was diagnosed we went through a lot to find out which vitamins were gluten-free and which ones had the right dose. It has been so long since I have had to take any vitamins, I'm not sure which ones are gluten free anymore and if I can get these 2 on their own. Ive tried a multi-vitamin and had a reaction to it, so I am afraid of taking those again. :(

Does anyone take these supplements, what brand and what store did you get them at?

Thanks. :)

Freeda vitamins - online is where I purchase mine. It is gluten free, lactose free, starch free, etc. etc. etc.! Shouldn't cause you any trouble. I didn't any any luck with purchasing them locally. THey all have something in them that I react too. Good luck!

diannalynn0711 Rookie

Thank you so much for all your information! This really helps! I decided to not go back to the doctor that did the tests because he wasnt at all familiar with the disease. So I'm on my own with finding the supplements. Thankfully I have a wal-greens where I moved to recently!!! That is a relief.

Thanks again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



daveray Newbie

Hi

I have had both low levels of both vitamin D and Folic Acid. I bought supplements at Trader Joe's. They were very helpful and have a large list of gluten free products.

Good Luck

l

I recently had my doctor order a series of blood tests. I've been gluten-free for 5 years going on 6. When I was first diagnosed I had really low levels. They seem to all be fine now, but my Vitamin D and Folic Acid are low now. When I was diagnosed we went through a lot to find out which vitamins were gluten-free and which ones had the right dose. It has been so long since I have had to take any vitamins, I'm not sure which ones are gluten free anymore and if I can get these 2 on their own. Ive tried a multi-vitamin and had a reaction to it, so I am afraid of taking those again. :(

Does anyone take these supplements, what brand and what store did you get them at?

Thanks. :)

pele Rookie
I was just tested last week and was found to have a low D as well. My doc prescribed 50000 iu of D once per week for 12 weeks, then a retest. I forgot to check with the pharmacy if the script was gluten free!! :o

Those prescriptions are for D2 which may not stay in the body long enough to help. My friend was just retested after a year on 50,000 units of D2 weekly, and her Vit D level was still extrememly low.

The non-prescription Vit D is D3. It is available over the counter at pharmacies and natural food stores in 5000 and 10,000 unit capsules and drops, and is usually gluten-free. Getting out in the sun works, too!

Here is a link to a journal article about D2 and D3.

Open Original Shared Link

mushroom Proficient
Those prescriptions are for D2 which may not stay in the body long enough to help. My friend was just retested after a year on 50,000 units of D2 weekly, and her Vit D level was still extrememly low.

The non-prescription Vit D is D3. It is available over the counter at pharmacies and natural food stores in 5000 and 10,000 unit capsules and drops, and is usually gluten-free. Getting out in the sun works, too!

Here is a link to a journal article about D2 and D3.

Open Original Shared Link

This post confuses me greatly. It was and is my understanding that the over-the-counter Vit D is D2 and the prescription kind, the kind you need, is D3, cholecalciferol, which is what my doctor has prescribed for me. Maybe it's different where you're from.

pele Rookie
This post confuses me greatly. It was and is my understanding that the over-the-counter Vit D is D2 and the prescription kind, the kind you need, is D3, cholecalciferol, which is what my doctor has prescribed for me. Maybe it's different where you're from.

D3 is the over-the -counter kind. D2 is prescribed by (some) doctors. D3 is the kind that works. D2 does not. Ask your pharmacist what kind you are taking. I wonder which kind produces the most profits for drug companies!!

mushroom Proficient
D3 is the over-the -counter kind. D2 is prescribed by (some) doctors. D3 is the kind that works. D2 does not. Ask your pharmacist what kind you are taking. I wonder which kind produces the most profits for drug companies!!

My doctor said she was prescribing D3 for me as the over-the-counter kind did not work, and it says Cholecacliferol Strong 50,000iu on the bottle. I rechecked the article you referenced and here is a quote from it:

"The project was conducted during the month of July, 2003. Subjects were randomly assigned to receive 1) no supplement (the seasonal effect, control group), 2) one tablet labeled to contain 50,000 IU (1.25 mg) ergocalciferol (the vitamin D2 group), or 3) 10 tablets labeled to contain 5,000 IU (125

ang1e0251 Contributor

I also take fish oil for Vit D. We buy it at Walmart or Sam's.

SimSabalim Newbie

I take two Carlson Solar D Gems 4000 Iu daily. I've had really good results with taking high doses of vitamin D; approaching 10,000 Iu.

pele Rookie
My doctor said she was prescribing D3 for me as the over-the-counter kind did not work, and it says Cholecacliferol Strong 50,000iu on the bottle. I rechecked the article you referenced and here is a quote from it:

"The project was conducted during the month of July, 2003. Subjects were randomly assigned to receive 1) no supplement (the seasonal effect, control group), 2) one tablet labeled to contain 50,000 IU (1.25 mg) ergocalciferol (the vitamin D2 group), or 3) 10 tablets labeled to contain 5,000 IU (125

  • 1 month later...
Roda Rising Star
D3 is the over-the -counter kind. D2 is prescribed by (some) doctors. D3 is the kind that works. D2 does not. Ask your pharmacist what kind you are taking. I wonder which kind produces the most profits for drug companies!!

I do understand that the D3 is a more bioavailable form of vitamin D. I have been taking the prescription which is classified I believe as the D2 ergocalciferol. I have been taking one 50,000 iu capsule a week since mid January. I just had my levels checked again in April. My levels went from around 17 to mid 40's. So yes for me it has worked. I am going to finish out the rest of the script and then probably maintain on an over the counter D3 supplement of about 1,000-2,000 iu daily.

mushroom Proficient

I read just the other day (sorry I can't give a reference--think it was on Yahoo news ) that the "experts" have now reached the conclusion that D2 is just as good as D3. :huh: I just wish they'd make up their darned minds.

Roda Rising Star
I read just the other day (sorry I can't give a reference--think it was on Yahoo news ) that the "experts" have now reached the conclusion that D2 is just as good as D3. :huh: I just wish they'd make up their darned minds.

Amen to that! :P

Roda Rising Star
I read just the other day (sorry I can't give a reference--think it was on Yahoo news ) that the "experts" have now reached the conclusion that D2 is just as good as D3. :huh: I just wish they'd make up their darned minds.

I googled this and found the article. Here is the link. It tells you at the end which journal it was published in.

Open Original Shared Link

mushroom Proficient

Thanks for doing the leg work on that Roda. I guess I was too tired (or too lazy!)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      CT with contrast.

    2. - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      2

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,398
    • Most Online (within 30 mins)
      7,748

    Megannnnn
    Newest Member
    Megannnnn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JoJo0611
      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast. 
    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.