Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

York Test Results


judy05

Recommended Posts

judy05 Apprentice

Hi,

I just got the results from my York blood test.I have been advised to avoid cow's milk, yeast, corn, egg whites, and wheat. :(

The foods with no reaction include barley, gliadin(gluten),oats, and rye. :unsure:

I take that to mean I have a wheat (not gluten) intolerance. This next statement is the one that confuses me "Those with wheat intolerance will still experience adverse symptoms from gluten-free products, as the remaining part of the wheat will be effecting them. They may, or may not be able to eat rye, barley, and oats, that are part of the wheat family and as with many other food intolerances, may be able to reintroduce wheat back into the diet after a period of elimination."My question is are they saying that gluten-free products can contain wheat with the gluten protein removed? Can someone explain this to me, I can't quite get my head around it? <_<

Any or all comments will be appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



debmidge Rising Star

don't take the test results as gospel. my husband got similar results and his gastro told him to take with big grain of salt; and quite possibly it could be bogus. go to Quackwatch.com for list of tests that are not considered reliable. This is one of them, as it appears on Quackwatch.

plantime Contributor

I thought York was supposed to be one of the good labs? What test did they run on your blood to come to that conclusion?

judy05 Apprentice

It was a 113 food IgG ELISA In Depth Panel. I'm going to try to follow it because I knew I had a problem with wheat and dairy. I was surprised about the corn, egg whites. Yeast doesn't surprise me because I have an allergy to mold. Corn syrup is in a lot of foods. I did the test because I was having right -sided pain and having trouble losing weight. I have lost 20lbs but I need to lose at least 20 more. My GI doc poo-poo'd it but I need to feel better, I'm still having trouble sleeping and I'll try anything to get better. ;)

KaitiUSA Enthusiast

I've heard York to be a good testing and one of my doctors even recommended me getting one done(before they knew it was celiac) Some doctors just don't like it and are close minded and they will make every excuse in the book not to get it done.

kvogt Rookie

York tests for IgG antibodies. These abate after a period of time of allergen abstinance, so if you have been gluten free, they may be lower for wheat. They don't test for IgA, which is the better indicator of celiac disease as well as EMA and TtG. You know you have a gluten problem (i.e. celiac disease), so continue to stay gluten-free for life. If you only had a "wheat allergy" and not an auto-immune reaction, you might be able to resume wheat after a period of time. The comment about wheat in gluten-free products concerns the use of Codex wheat starch in europe, supposedly safe for celiacs. If you have a wheat allergy, it isn't safe despite its lack of/low gluten content.

judy05 Apprentice

Thanks Kvogt. Your answer makes sense to me. It's funny that I have been gluten-free for over a year and I'm still reacting to wheat, it wasn't as strong as the dairy and yeast but definitely needs to be avoided. I'm going to stay gluten free for life but I would someday like to do an elimination diet for dairy. Thanks for all of the comments, if this test is not valid then why do so many people feel better after avoiding the offending foods?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

I think it is valid :D ...I was recommended by my doc as I said earlier...alot of people have these testings done. I think some doctors exed it off from day one because of their way of thinking.

debmidge Rising Star

Why I feel that York is at least questionnable:

1) My husband was diagnosed IBS since 1977 has never eaten the following in all this time and York said he was sensitive to these foods: Nuts: Cashew, brazil, hazelnut, almond; Lentils (that's a laugh); chili pepper (that's even funnier); garlic. So based on the theory that if you avoid something for a while, you should not get antibodies to it, then the York test is wrong.

2) He also tested posiitve with York for wheat and at that point he was doing gluten-free for 8 months. That one I'll be open minded about. But the other foods have not been consumed by him since 1977; so how can he have anti bodies to something he hasn't eaten in those many years.

3) We did the 113 Food IgG ELISA test on our own. The gastro doctor saw the results and wasn't impressed and told us not to put too much value on them.

I did see this ELISA test spoken about on Quackwatch.com. When someone is ill, it's easy to try anything to feel better and I'd hate to have companies preying on celiacs and promoting things which are questionnable.

To Judy05 only: just a thought - see ob/gyn about your right-sided pain to rule out that type of problem.

plantime Contributor

Judy05, Right-side pain? Have you been tested for gall bladder or appendix problems?

judy05 Apprentice

I've been tested 4 times for GB problems. This usually occurs if I eat too much fruit

I know it's not appendix, I'm a nurse and the pain is not in that area. A long time ago I was diagnosed with dyskinesia which is a spasm in the common duct, there is a procedure to relieve that but it hasn't shown up on my test again. Of course the doctor won't do anything without proof.

I'm not surprised that wheat is still showing up, it's almost impossile to be completely gluten-free, we all have accidents. I know someone who didn't get better for a full 3 years after being diagnosed. I'm not sure how they test, I know some of the foods that I had no reaction to I have never eaten. Maybe they test to see how you would react if you did eat them? I'm amazed how they could test for 113 foods with such a small amount of blood.I'm going to try sticking to the test results for at least 2-3 months. I always knew I had a problem with wheat, dairy, and yeast. The eggs whites and corn were a suprise but they are not uncommon allergens.

debmidge Rising Star

I called York about the test results and asked specifically why a food sensitvity would show up when it wasn't consumed in years.

They told me that they test for antibodies for the food. If you don't consume that particular food, you won't have antibodies for it. I would presume that after not eating something for over 20 years you should not have anti bodies in your bloodstream for that item. That's why I am unconvinced this test is accurate.

My husband has not had those nuts; not even in oil form (as they suggested); he hasn't had lentils since 1978 about; he eats his food plain and at time of test, had not eaten out in restaurant in over 8 mos. Very perplexing to me.

Melanie Rookie

Deb, the life of antibodies vary a lot. Some viral and bacterial diseases we are immune to for the rest of our lives and others we are not. I know they (especially viruses) change rapidly so we have to get yearly vaccines for some and not others, but in general how long antibodies stay around in your body varies a lot so these antibodies could show up for years after not eating the item and contamination especially with nuts is so common that they could help keep antibody levels present in your blood even if we haven't had them in a long time. To explain lifelong immunity, scientists believe that there is some antigen (so some nut proteins or viral proteins) library in the thymus and they periodically cause reactivation of antibodies so we get life long immunity even to things that are not harmful and without exposure. I will try to find out more because I am having the same questions.

debmidge Rising Star

But if we follow the theory, after long term avoidance of the food, the food should be re-introduced and the sensitivity should be gone. I can under stand cross contamination of nut products, but not the lentils. My jury is stilll out on this issue.

Melanie Rookie

I think the sensitivity MAY be gone and not should be gone. It depends on the immune response mounted. Antibodies do cross react so maybe there is some cross reaction going on so your husband has some antibodies that are reacting to their lentil antigen? Just a thought.

They use IgG Elisas to test food allergies in animals all the time. It is standard.

I'm sorry I don't think quackwatch.com is a reliable source.

Melanie Rookie

Open Original Shared Link

They offer IgG and IgE Elisa food allergy testing. Thought that was cool because food allergies are not only mediated by IgG that york tests for.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams commented on Scott Adams's article in Latest Research
      2
    2. - trents replied to Mmoc's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Blood tests low iGA 4 years later digestive issues

    3. - Mmoc posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Blood tests low iGA 4 years later digestive issues

    4. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,160
    • Most Online (within 30 mins)
      7,748

    Emina
    Newest Member
    Emina
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Mmoc! Please include the reference ranges for the IGA and the TTG tests in your next post if you have access to them. We cannot comment much otherwise as different labs use different reference ranges for these tests and also different units of measurement. There are no universal standards as of yet so the raw test numbers are not always helpful. Having said that, if your IGA (what we usually call "total IGA") is low, the TTG-IGA score will be skewed and cannot be trusted. Other kinds of tests for celiac disease would need to be run, particularly those in the IGG family of tests. Perhaps this will be helpful:  
    • Mmoc
      Hi there any advice welcomed. I have had 4 years of symptoms ranging from immune related anaphylactic symptom sudden onset food allergy to peppers/paprika/chilli/capsicum family derivatives. all these allergies fizzled out and following a food challenge test in hospital I reintroduced them a few months ago. Since then my digestive system is a mess. i have since noticed that 4 years ago when testing for iga allergies my iga level was .62 and my ttg was less than .1 (due to symptoms I was probably eating very plainly at that time). should I insist on being retested for celiac? I’ve since read two indicators for celiac include: sensitive to spicy foods when in flare up tooth enamel weakness and symmetrical discolouration patches on teeth which I have had since childhood on my two front teeth     thanks
    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.