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I Have Good News Regarding My Plight

UnhappyCoeliac

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UnhappyCoeliac Enthusiast
UnhappyCoeliac
Posted

Hello! If anyone remembers this thread:

https://www.celiac.com/gluten-free/index.ph...mp;#entry519602

I was not only Unhappycoeliac but angry one to. Anyone after reaching my wits end of the 'am i doing good' and im i doing bad scenario I vowed to get a blood test. Which I did and I got the results just now and basically everything is healed on well on the way

B12.VitD, folate, thyroid function,calcium, other stuff I have no idea about

Where all basically stuffed as of July last year when I was diagnosed.

I can happily report these are all now normal and I am pumped. My doctor was quite happy and mentioned it shows I had been making an effort I am effectively nutritionally healed of this disease and continuation of the gluten free diet will see the anti bodies go down.

That is the bad the anti bodies where both over 130 at diagnosis and now one is

40 and is 53. They both however need to be under 20.

I am very happy I am healed and most definitely continuing a gluten free diet.

For the battlers out there I have struggled immensely i love food, i suck at controlling temptation and in social situations and other situations I have simply given in. The important thing is getting back on the horse though.

I have maybe had gluten up to 5-8 times (minuscule amounts) in the last 3 months but have managed to recover nutritionally. Once the belt is tightened I will also get the anti bodies down.

Anyone I also coined up my new motto while passing time in the doctors surgery and that is

"if Nutritionally sound coeliac represents just a diet, if not it is a disease"

Anyway all of my 70 or so posts have been mostly getting help and being angry so im glad to post some good news. I think everyone here is really tolerant and i appreciate the mods always moving around my threads and stuff :)

My doctors words on my stuff ups where 'the blood test represent mostly an adheral to the gluten free diet over a long period of time.

And it hasn't been that long even 3 mths ago I was still in shambles not even knowing lollies etc had gluten and actively eating them. Done ranting now I am really pleased. In 3 mths i go back for another test.

I ironically two of my liver enzymes are above what they should be and I have to get a cholesterol test that is the bad news to much fatty diet the doctor suspects

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mushroom Proficient
mushroom
Posted

Good for you! You *sound* ever so much better. We will always be here to keep you on track :blink:

ravenwoodglass Mentor
ravenwoodglass
Posted

This is great news!!!!!! I am so glad things are looking up for you and that you have been able to get a good amount of healing in a short time. Don't go dropping those supplements yet though. :)

flourgirl Apprentice
flourgirl
Posted

This is good news!!! So glad you have something positive to feel good about, a reward for you efforts. It makes it easier to do what you need to do when you can see some results. There is always someone here for you.....which I'm sure you've discovered. Some of us read along, answer sometimes, but not always. Wish you great luck in your continuing efforts.... :)

ang1e0251 Contributor
ang1e0251
Posted

That is great news! You might not know but I think about those who are struggling. I'm always sending prayers your way and hoping that you are working your way toward good health. I'm so glad to hear of your improvement. Kudos!

RiceGuy Collaborator
RiceGuy
Posted

So glad you're doing better! That is wonderful news, and your encouraging words will help others who also struggle.

UnhappyCoeliac Enthusiast
UnhappyCoeliac
Posted
  • Author

Yeh i am getting the hang of it need to get more fruit and vegs in my diet though.

If i understand right alot of the probs with coeliac is due to nutritional deficiency which I no longer have so I am good about this.

Positive I only had celiac for 2-5 mths before diagnosis too at 21. So im in good set if I am still kicing at 80 this will be easier to managae i guess.

There is a vaccine in stage 3 process at the Melbourne hospital atm things will get better in 20 yrs or so i hope

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GottaSki Mentor
GottaSki
Posted

That is wonderful news...thanks for sharing!

caek-is-a-lie Explorer
caek-is-a-lie
Posted

Good for you! Keep up the good work! I think it's normal to be angry for a time about this. I mean, it's not fair, is it? And it's all up to us to eat right but the world makes it so hard to do a good job at staying gluten-free. I used to get angry at myself for accidental glutenings, but I think I'm starting to accept that I'll have no control over it sometimes and, despite my best efforts, it's still going to happen on occasion.

DakotaRN Newbie
DakotaRN
Posted

I'm happy for you. Good job!!! :D

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      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
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