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Is It Really Gluten


katerinoula18

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katerinoula18 Newbie

Hey everyone! So this is week 2 of gluten free for me and while the beginning was super good, this second week is not that good. Im supposing maybe other food intolerances or maybe its not gluten. I was so confused this mornining that i ate a slice of toast to make sure its really gluten (my blood tests were boderline posituve negative after being gluten light for about 2 weeks). Well now i have a migraine, i was so dizzy i had to go sleep and i bloated for a good 2 hours. So gluten IS an issue for sure. Can there be another intolerance like peanut butter (ive been eating a lot of it lately) or is it just my body healing??? Should i do the scd or just continue gluten free and wait 6 weeks? Im depressed:(


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Hey everyone! So this is week 2 of gluten free for me and while the beginning was super good, this second week is not that good. Im supposing maybe other food intolerances or maybe its not gluten. I was so confused this mornining that i ate a slice of toast to make sure its really gluten (my blood tests were boderline posituve negative after being gluten light for about 2 weeks). Well now i have a migraine, i was so dizzy i had to go sleep and i bloated for a good 2 hours. So gluten IS an issue for sure. Can there be another intolerance like peanut butter (ive been eating a lot of it lately) or is it just my body healing??? Should i do the scd or just continue gluten free and wait 6 weeks? Im depressed:(

Don't be down! One week is not long enough to make you better, not by a long shot. You could be going through withdrawal (gluten is like an opioid and yes, you can experience withdrawal from it). Your body is making a big adjustment, and there will be ups and downs, especially in the first month. Stick with it and eat very simply to start with while your body starts healing. It is best initially to eat mostly naturally gluten free foods like chicken, fish, veggies, fruits, rice, preferably things that are easy to digest because your gut has to heal from the damage done by gluten. Depending on the amount of damage done, healing can take months or years. Not to say it will take that long to feel better, but you do need to baby it a bit to start with. It is also often necessary to avoid lactose, or even dairy entirely, at first because the lactase that digests lactose is carried on the tips of the damaged villi in your small intestine. Some people (I am one) can eat the kinds of dairy products that have been cultured where most of the lactose has been pre-digested (yogurt, hard cheese, etc.) while for others they have to give up dairy entirely for a while or they cannot handle the casein (the protein part of dairy). Experiment with dairy and see how it is for you.

Try not to each too much of any one thing or you could develop other intolerances. A little peanut butter every day is okay, but not a jarful! If, after a month, you are still having problems it is time to think of other food intolerances. Keep a food and symptom diary and see if you can relate how you feel to what you are eating, because sometimes the reaction is not always immediate but comes later. If you always feel bad 36 hours after you eat one particular thing, for example, cut that out and see what happens.

Come back and let us know how you are doing; we are here to help!

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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