Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

7yr Old Daughter Has Symptoms


Wispyshadow

Recommended Posts

Wispyshadow Rookie

I'm really concerned because my daughter just had a check-up and she has dropped from the 75th percentile in height down to below the 3rd percentile. She has always been very thin, she only weighs 37lbs. and has weighed that amount for a year now. She is 7 years old and I am really worried and her pediatrician is concerned that she isn't growing at a normal rate. She also complains of stomach pain daily and says her legs and feet are sore. Each thing has always been addressed seperately and just today I started putting the whole picture together. THey did test her at the pediatricians office for anemia and never called me back with results so I assume that it was normal. I feel that I should push the pediatrician to test her further to see if celiac disease is the culprit. My mother keeps pushing me to just forgoe the Dr. and just go gluten-free without a diagnosis. My insurance will pay for everything and it would be much more helpful to have a diagnosis but I'm really not sure if the Dr. will take this seriously if just blow it off. Any opinions or help would be appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Hi, and welcome to the forum.

I would definitely call the pediatrician and get the results of the test; you should always follow up on results, sometimes they are overlooked. If they were normal then I would request further exploration of why she is not growing because this is a serious issue; express your concern. If you get no joy from him, is there another doctor the family uses who could help? Maybe discuss it with the pediatrician for you. Is there another pediatrician in your area that your insurance covers? Do you have to get HMO referral? Before just going gluten free I think you should push the doctors further.

Wispyshadow Rookie

Thanks for the suggestions. It really is hard right now because due to the holiday all the Dr. offices are closed and she still never called me back yesterday. I started really piecing things together last night and thinking back to when she was a baby. I had another ped in another state where we lived test her stool for fat malabsorption but said she couldn't have celiac disease because she didn't have a big swollen abdomen and the only case he had ever seen that was what they looked like. I had never heard of celiac disease and really had no idea and just had to take the dr's word for it and we just wrote it off that she was just a small child. She has always had either loose stools or constipation and the dr's have just really written it off as just not a big deal. She has been on colace and had to take children's immodium off and on enough that I keep it stocked in the medicine cabinet and she is used to it and asks me for the one she needs when she starts having issues. From looking back and piecing everything together she has been dealing with this since she started eating regular food. I didnt' notice much when she was a baby I'm guessing because I made all of her babyfood from fresh fruits and vegetables at home. I feel so bad that I missed it.

:D:D Good news!! The pediatricians office just called me and wants to see my daughter. She has another appt on Wed next week. Say prayers that we get some supportive answers and help!!!

ang1e0251 Contributor

I'll be thinking of you. Tell the dr you want a full celiac panel run. Listen to what he says but don't take no for an answer. THe old dr may have seen more celiac children, he just didn't recognize it.

mushroom Proficient

I am so glad that you got a response. I agree with Angle that you need to have him run the full celiac panel. I do hope that you get some help and answers.

Wispyshadow Rookie

We went and had blood drawn today and our new pediatrician is really taking this all very seriously. I feel really good about how we are being treated. She is running a full celiac panel, thyroid panel, liver panel, and some other blood tests. She told me she doesn't want to leave a stone unturned. We should have results back by early next week.

mushroom Proficient
We went and had blood drawn today and our new pediatrician is really taking this all very seriously. I feel really good about how we are being treated. She is running a full celiac panel, thyroid panel, liver panel, and some other blood tests. She told me she doesn't want to leave a stone unturned. We should have results back by early next week.

Great news!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,040
    • Most Online (within 30 mins)
      7,748

    marlee h
    Newest Member
    marlee h
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.