Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm On The gluten-free Diet, But Am I Missing Something..


LoisArbuckle

Recommended Posts

LoisArbuckle Rookie

Hey guys,

It's been a while since I've posted.

I've been on the gluten-free diet since last Oct. After about a month I saw a big difference in my health. I immediately stopped having the bloating, vomiting, and acid reflux that usually came right after eating gluten. Over the past 2 weeks I've seen some problems coming back - acid reflux, vomiting, stomach pain and gas, constipation, and most annoying of them all, leg pains that linger for hours. Lately, we've been eating out a lot and you guys know how much of a gamble that is so..

My question is - should we strictly be eating the foods that are naturally gluten free (meat and veggies) and foods labeled gluten free rather than going out and assuming the chips at the mexican restaurant are gluten-free because they should be made of just corn?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mindwiped Rookie

You know the old line about assuming things, right? The Mexican restaurant chips are probably contaminated, since if they fry in house, they probably use the same fryer for the chimichangas, which have wheat tortillas. You really need to ask the server/manager anywhere you go out to eat, and never assume its safe, just because you think that it is. If the chips are made in house, they may be dusting the work surface with wheat flour, and you'll never know if you don't ask. I know, I keep saying 'if you don't ask...' but that's where you're probably getting contaminated.

MaryJones2 Enthusiast

I think you'll feel better if you are more diligent about what you eat when you eat out. Just because something should be gluten-free doesn't mean it is and you wouldn't know without quizzing thoroughly. You know how it goes. The chips could be fried in the same fryer as the flour tortillas, etc. Even meat and veggies are suspect because they could be cooked on the same grill unless you request otherwise.

elonwy Enthusiast

In addition to the things mentioned, some mexican places use soy sauce in their fajitas, etc. So there's a hidden source of gluten that may not have been considered. Corn tortillas made in house are sometimes prepared on a floured surface to keep them from sticking. Eating out is always a gamble, and even though its a pain in the butt, it is important to always be diligent. I find these help, as they are specific to cuisine and list ingredients that you and the server/kitchen staff might not think of when discussing gluten.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,071
    • Most Online (within 30 mins)
      7,748

    witeferet
    Newest Member
    witeferet
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Maybe celiac but maybe NCGS that was misdiagnosed as IBS morphing gradually into celiac. Is NCGS a new category to you? It shares many of the same GI symptoms with celiac disease but does not damage the small bowel lining like celiac.
    • knitty kitty
      Thiamine has antifungal properties.  The body uses thiamine to keep bacteria and yeasts from overgrowth in the digestive system.   Fluconazole use can cause thiamine deficiency.   Supplementing with thiamine in the form Benfotiamine would be beneficial as Benfotiamine promotes intestinal healing.   Thiamine and the other B vitamins tend to be low in Celiac due to malabsorption.  Talk to your doctor about supplementing vitamins and minerals.
    • Scott Adams
      Welcome @Natalia Revelo, your experience is profoundly difficult and, sadly, not entirely unique within the celiac community. It's the frustrating reality of "silent" or ongoing damage that isn't captured by the MARSH score alone, which only measures active villous atrophy. Your normal biopsy suggests your diet is preventing the classic autoimmune attack, but it doesn't mean your gut has fully healed or that other issues aren't at play. The inflammation from your newly discovered milk and egg allergies is a huge clue; this constant allergic response can create a low-grade inflammatory environment that severely hampers nutrient absorption, effectively creating a "leaky gut" scenario independent of celiac damage. This is likely why your iron stores deplete so rapidly—your body is both unable to absorb it efficiently and may be losing it through inflammation. While the functional medicine path is expensive, it's clearly providing answers and relief that traditional gastroenterology, focused solely on the gluten-free diet and biopsy results, is missing. To move forward, continue the gut-healing protocols your functional doctor recommends (perhaps exploring alternative options to glutamine that won't irritate your cystitis), maintain your strict avoidance of all allergens and irritants, and know that true healing is a multi-faceted process. You might seek a second opinion from a different gastroenterologist who is more knowledgeable about non-responsive celiac disease and the complex interplay of food allergies and micronutrient absorption, but your current path, while costly, seems to be leading you toward the steady health you need.
    • knitty kitty
      Have you had a DNA test to look for Celiac disease genes?  If she doesn't have any celiac specific genes, look for another explanation.  If she does have Celiac genes, assume they are turned on and active Celiac disease is progressing.  All first degree relatives (mother, father, siblings, children) should be genetically tested as well.   Sometimes blood tests are ambiguous or false negatives if one has anemia, diabetes or thiamine deficiency.  Certain medications like antihistamines and steroids can suppress the immune system and result in false negatives or ambiguous results on antibody tests.  
    • Heatherisle
      That was just the visual report, so need to wait for confirmation or otherwise from the results. They did take a biopsy from the upper end of the duodenum(D1). D2 looked unremarkable on the camera. Just wish we didn’t have to wait so long for the results as she’s naturally a very anxious person. But thanks so much for taking the time to answer me
×
×
  • Create New...