Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has Anyone's Reaction To Gluten Changed Over Time?


2ofus2kids2dogs

Recommended Posts

2ofus2kids2dogs Apprentice

Hi everyone. I have been gluten-free for 2-1/2 years. Since being off gluten, I have had very distinctive reactions when I have accidentally ingested gluten. At first, it would happen almost exactly 12 hours from ingestion. I would have severe stomach pain for 6 hours, with severe nausea and some vomiting. At the end of the 6 hours, it was over and done. I would feel a little strange for a few days afterwards. Then, about 6 months ago, it changed to 24 hours after ingestion of gluten accidentally. (Every time I have gotten gluttened has been from eating out or eating at someone elses house). But, the symptoms were still the same.

Over the last 3-4 weeks, I have been havign some stomach issues. Off and on mild stomach pain and frequent bowel movements, but not diarrhea and poor appetite. It dawned on me today that I have eaten out 4 times in the past month or so, eaten at church once and eaten at a friend's house once, and have not been gluttened. Then, I started wondering if these "different" digestive symptoms were actually gluten reactions.

Has this happened to anyone else? Have you had certain symptoms for a period of time and then had your reaction change to something else?

Thanks for your input.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



oceangirl Collaborator

Melissa,

I am almost three years in as well and I think this is happening to me, too, although I'm not certain and I'm too terrified of gluten to deliberately ingest it and test my theory. Others will post but I think I've read others remarking on the same thing.

lisa

ang1e0251 Contributor

It makes sense to me that as your intestine heals it's reaction will also be some different. When you started to react back before you were sick enough to be dx'd, maybe it was like this.

2ofus2kids2dogs Apprentice
It makes sense to me that as your intestine heals it's reaction will also be some different. When you started to react back before you were sick enough to be dx'd, maybe it was like this.

Thanks to you both for posting. I know what you mean about being too scared to ingest it on purpose. You know, these recent symptoms do remind me of what I was feeling before diagnosis. Although, it was all the time, because I was eating gluten all the time.

I appreciate your responses. I really do think that is what is going on. I ate out late Sunday afternoon and my symptoms started about 12 hours later. Yesterday, I just felt off all day and my stomach was a mess. Today, though, I feel pretty much back to normal. This has happened 3-4 times over the past month, but always just for a short period of time and no one else in my family has had any stomach symptoms. I think I'm going to try to start recording when it happens and see if I can find a pattern.

Thanks for your help.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      1

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

    2. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

    3. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    4. - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,173
    • Most Online (within 30 mins)
      7,748

    Mel12
    Newest Member
    Mel12
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.