Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms With Time.....


1morething

Recommended Posts

1morething Explorer

I've was diagnosed in Oct.08 and been eating gluten free since Nov.08. Although I didn't have major symptoms, occasional bloating and constipation, I've felt alot better since eating gluten-free. I have to admit that I have eaten stuff that I shouldn't have in the past month, but I've had no symptoms what so ever. No Bloating, no pains, no C.

My question is, with time, as the Vili heals, does Celiac go away? Or I've been reading that after eating gluten-free for a while, people get more sensitive? It's difficut for me because of the fact that I don't feel any symptoms, that I want to eat anything and think that it doesn't affect me.

I'm Somewhat confused about all this <_<

Rachel


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gfresh404 Enthusiast
I've was diagnosed in Oct.08 and been eating gluten free since Nov.08. Although I didn't have major symptoms, occasional bloating and constipation, I've felt alot better since eating gluten-free. I have to admit that I have eaten stuff that I shouldn't have in the past month, but I've had no symptoms what so ever. No Bloating, no pains, no C.

My question is, with time, as the Vili heals, does Celiac go away? Or I've been reading that after eating gluten-free for a while, people get more sensitive? It's difficut for me because of the fact that I don't feel any symptoms, that I want to eat anything and think that it doesn't affect me.

I'm Somewhat confused about all this <_<

Rachel

Some people after they fully heal can eat a whole wheat sandwich and feel no ill effects. BUT that does not mean that no damage is being done. Many people are in fact asymptomatic. So, you might not get bloated or constipated, but the damage is still occurring. So, I know it's tempting but you have to stay gluten free!

Celiac does not go away, it is currently a "disease" with no known cure.

ang1e0251 Contributor

Seems to me that allowing an organ to heal then ripping it apart again cannot be good in the long run for you health. You may not have symptoms now but by the time you're injured enough to go back to the diet, the results could be much worse. Not just the little symptoms you had but something much more serious. You have to decide this for yourself but since we don't have a little window where we can look into the intestine we really don't know how much damage is being done.

elsaheff Newbie

This is really interesting to me. I've been going through the same thing lately and I searched the forum for "no symptoms" and this came up.

I have followed a gluten-free diet since November of 2007 and slipped up only a couple of times. On Easter, my boyfriend's mom made a dish that she's made for me before with corn starch and arrow root, but apparently this time she made it with flour and forgot to tell me. I ate it, nothing happened, and now everyone thinks I don't have celiac. I don't really know what to do because I'm afraid to dive back into a "normal" diet, but it's frustrating to have people doubting me as well.

Has anyone ever talked to a doctor about this? I'd love to hear any info on the subject.

Thanks!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    2. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    3. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    5. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,911
    • Most Online (within 30 mins)
      7,748

    Cici123
    Newest Member
    Cici123
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.