Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coeliac Vaccine


mick

Recommended Posts

mick Newbie

Coeliac Vaccine goes on clinical trials this week.

worth waiting for. :lol:

  • 3 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



karenhockley Apprentice

Really???? do you know which company is making it?

ravenwoodglass Mentor
Coeliac Vaccine goes on clinical trials this week.

worth waiting for. :lol:

Vaccine? I wonder how they can vaccinate against a genetic condition. Are you sure this isn't just a drug treatment rather than a vaccine. Do you have any links to this information.

DakotaRN Newbie

I'm really curious about this. Do you have any more info?

  • 2 weeks later...
karenhockley Apprentice

I've looked into it and it's an Australian company who is making the vaccine. The first step of the trial started in April with 40 volunteers. This trial will last a total of 11 months and attempt to determine if the vaccine does any harm.

The second trial for this new vaccine will attempt to determine whether or not the vaccine is effective by feeding gluten to the volunteers and then they will undergo a thorough examination.

Their theory is since Celiac disease is the result of an immune response to gluten. The therapy involves repeatedly injecting solutions of gluten at increasing concentrations. The aim is to desensitize the subjects slowly, in a similar way to hay fever and dust allergy desensitization treatments.

I guess only time will tell.

Lisa Mentor
I've looked into it and it's an Australian company who is making the vaccine. The first step of the trial started in April with 40 volunteers. This trial will last a total of 11 months and attempt to determine if the vaccine does any harm.

The second trial for this new vaccine will attempt to determine whether or not the vaccine is effective by feeding gluten to the volunteers and then they will undergo a thorough examination.

Their theory is since Celiac disease is the result of an immune response to gluten. The therapy involves repeatedly injecting solutions of gluten at increasing concentrations. The aim is to desensitize the subjects slowly, in a similar way to hay fever and dust allergy desensitization treatments.

I guess only time will tell.

Gee Wiz, where do I sign up. :o

While I am glad that research continues, I don't think "desensitizing" someone to gluten is the "cure". I wouldn't hold your breath on this one.

Celiac Disease is not an allergy and you can't treat it as such. Injecting gluten into the blood stream will not have the effect that gluten has on the digestive system.

Before we (I) speculate too much, it would be good to have a link to this study, as suggested.

happygirl Collaborator

Here is info (from this site) about the vaccine and trial. https://www.celiac.com/articles/21788/1/Fir...alia/Page1.html


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



karenhockley Apprentice
Gee Wiz, where do I sign up. :o

While I am glad that research continues, I don't think "desensitizing" someone to gluten is the "cure". I wouldn't hold your breath on this one.

Celiac Disease is not an allergy and you can't treat it as such. Injecting gluten into the blood stream will not have the effect that gluten has on the digestive system.

Before we (I) speculate too much, it would be good to have a link to this study, as suggested.

I have to agree with you, I'm not holding my breath! It sound like something they did in the 70's early 80's. I was diagnosed when I was around 9 months old and when I was around 8 the Dr did a biopsy and said that the diet was working and that I should start adding gluten to my diet. 2 years later the Dr said I was in remission! and well they were wrong then! I don't think they'll ever find a way for celiacs to have a "normal" life. I have to say I have 3 children and I life a normal life!

I think that it's great that Celiac is making the news now and hopefully less people will suffer needlessly but when the media or someone who has celiac is discussing it they should be knowledgeable and not give the wrong information. IE. Elisabeth Hassleback!

Serversymptoms Contributor

Not sure if I'm celiac or not yet, though this sounds like great news.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748

    Tara M
    Newest Member
    Tara M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.