Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weird Body Shape.. Help, Horrible Symptoms (pics)


miss-cate

Recommended Posts

miss-cate Newbie

hi everyone,

21 years old, a little frightened.. just wondering if anyone can help me out.. here are my symptoms/clues:

-as a baby, had unexplainable black and blue rash, twice.. (maybe unrelated)

-up untill about age 13, SEVERE stomach aches (would have to sit on the toilet all night long sometimes)

-ALWAYS have had severe brain fog, forgetfullness, nervousness, clumsiness... on a daily basis. this has interfered with every aspect of my life

-white strings coming from my eyes daily, from around age 14

-have always had pretty bad head rushes/dizziness

-since i can remember, i've had anxiety and insomnia.. but cant get up in the morning for some reason, need lots of sleep

-cant stop moving once i get to bed

-never been underweight, but have always been embaressed about my skinny legs and huge gut

symptoms lately:

-cramping in lower abdomen, have been to obg. counless times and cant find anything wrong there

-extremely bloated, especially after a long day at work, people have asked if i was pregnant

-feeling exausted, barely able to move.. its a struggle managing work everyday

-general sick feeling like my health is getting worse all around

-small red dots and pimply marks appearing on my arms from nowhere

-itchy all over

-bruising for nothing... small ones on limbs, that take forever to disappear

-sneezing lots, tickly cough that wont go away

-pounding heart

-tingly hand and toes, small red scabs on knuckles

-the big D word

-frequent urination, like somethings squeezing my bladder.. this feeliing comes and goes depending on the day

another note: my little sis was small a failure to thrive for no reason till age 13, and my mom suffers from heart palps and severe anxiety, has done her whole life.

anyway, if anyone could tell me if you think i could have celiac, it would be GREATLY appreciated... thanks so much, and maybe this pic will help... note: that i have no bum and stick legs

http://i610.photobucket.com/albums/tt190/miss_cate/bad2.webp

http://i610.photobucket.com/albums/tt190/miss_cate/bad.webp


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

You do sound like you could be one of us. Have you had a celiac panel done? If not I would suggest that as a first step before you stop eating gluten.

ang1e0251 Contributor

Not only that but you sound like you and your mom are very low on magnesium. Taking the proper amounts of mag. should help the restless muscles, heart palps, insomnia and some of the anxiety. You can start taking that immediately.

For the rest, I agree that you should have a full celiac panel done right away.

miss-cate Newbie

wow, thanks so much for your input so far, it means alot... when i google my symptoms, it scares the crap out of me with all the possibilities.. you guys are awesome :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,620
    • Most Online (within 30 mins)
      7,748

    Loni75
    Newest Member
    Loni75
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      As Scott said, in order for celiac disease testing to be valid, you need to be eating generous amounts of gluten on a regular basis for weeks or months before the blood draw.
    • Scott Adams
      Based on what you've described, it is absolutely crucial that you pursue further medical exams for Celiac Disease and related conditions with a gastroenterologist. Your symptoms—especially the worsening fatigue, loss of muscle mass, neurological symptoms like migraines, and palpitations, coupled with being underweight—are significant red flags that extend beyond typical IBS. The negative home test is not reliable, particularly given your concern about sample contamination and the fact that you were likely not consuming sufficient gluten at the time for the test to be accurate, which is a common issue. While probiotics like Bifidobacterium Infantis can support gut health, they cannot resolve an autoimmune response to gluten or heal intestinal damage caused by Celiac Disease. Your declining blood test results, even if still "in range," further indicate a trend that needs a doctor's investigation. Please do not hesitate to seek a specialist; a formal diagnosis is the first step toward getting the correct treatment, allowing your body to heal, and finally addressing your weight and overall health concerns. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      I would only add that cross contamination with wheat may still be a possibility, so it's still best to seek out buckwheat that is labeled "gluten-free."
    • Xravith
      Hello, I've been diagnosed with IBS since I was little. I’ve visited many doctors because my intestines have always been very reactive to food. I have chronic swelling, and I struggle to gain weight. This year has been worse than others: I started noticing fatigue, loss of muscle mass, and many digestive problems, especially after consuming products with gluten. My doctor suggested that this might be due to some imbalance of gut bacteria, so I started taking Bifidobacterium Infantis supplements. However, my symptoms have been getting worse every day. I experience nausea, frequent abdominal pain, migraines, and palpitations after eating. I had these symptoms before, but now they are more intense. I thought I might have Non-celiac gluten sensitivity or Celiac Disease, so I took a home test for Celiac, and it came out negative (though there may have been an error—I was nervous and accidentally contaminated the sample with air bubbles). Based on your experiences, should I pursue further medical exams for Celiac? I’m worried about being underweight and about my blood test results, which, even if still within normal ranges, have been declining each year.
    • itsdunerie
      Dang......did it again and yeah I should admit I am 63 with clumsy phone thumbs. I started feeling better quickly and a doctor a year later said I had to eat  poison (gluten) every day for a month so he could formally diagnose me and NO FREAKING WAY. I couldn't then and can't imagine putting my body through that crap (no pun intended) on purpose ever again.  Why ingest poison for a month to have some doctor say Hey, All you Have To Do Is Never Eat poison Again.. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.