Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When Should I Introduce Wheat?


kprince

Recommended Posts

kprince Apprentice

Hi Everyone-

The day I found out I was pregnant, I also found out that I had celiacs. Though out my pregnancy I heard different opinions on when to introduce wheat. Now that my daughter is 2 months, I wanted to go to ( who I belive are the experts) You all and see what you opinion is on when to introduce wheat. I am currently exclusivelt breasfeeding. With my older son, I introduced food at 6 months ( rice, oatmeal and barley) and he is fine thus far. Any thoughts would really help-

Thanks,

Kathy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

Well, I have no children, but my suggestion would be, wait until he can talk. That way he can tell you if something doesn't feel right.

ChemistMama Contributor

I just went to a talk by Dr. Fasano from the U. of Maryland, he's one of the leading celiac researchers in the US. He's actually doing a clinical study right now to see if delaying giving your baby gluten can delay the onset of celiac.

Open Original Shared Link

He presented some preliminary results that suggested that waiting at least a year is best. His results showed the delaying giving gluten seems to delay the onset of celiac symptoms. I tried fo find his results online with no luck. the link above is for the clinical study. They're only 2 years into a 18 year study, so they don't know really how delaying gluten affects at-risk babies. But to be safe, I'd wait awhile.

Kibbie Contributor
Hi Everyone-

The day I found out I was pregnant, I also found out that I had celiacs. Though out my pregnancy I heard different opinions on when to introduce wheat. Now that my daughter is 2 months, I wanted to go to ( who I belive are the experts) You all and see what you opinion is on when to introduce wheat. I am currently exclusivelt breasfeeding. With my older son, I introduced food at 6 months ( rice, oatmeal and barley) and he is fine thus far. Any thoughts would really help-

Thanks,

Kathy

I'm not so much of an expert but I can tell you that I followed the American Pediatric guidelines for my daughter and introduced gluten grains around 6 months of age.... she developed celaic when she was 18 months.

My son is now 6 months old and he has the genetic marker for celiac disease. Because of this we are keeping him gluten free for the foreseeable future, there may be a day down the road that he chooses to test the gluten waters but it will be his choice. The new studies suggest that waiting unilt after 1 year old to children "at risk" of celiac either dramatically delays the onset or possibly prevents the disease all together.

I exclusively breast fed my son until 6 months old I was gluten free for about 1 month to see if that helped with his reflux but it did nothing so I am back on gluten.

kprince Apprentice
I'm not so much of an expert but I can tell you that I followed the American Pediatric guidelines for my daughter and introduced gluten grains around 6 months of age.... she developed celaic when she was 18 months.

My son is now 6 months old and he has the genetic marker for celiac disease. Because of this we are keeping him gluten free for the foreseeable future, there may be a day down the road that he chooses to test the gluten waters but it will be his choice. The new studies suggest that waiting unilt after 1 year old to children "at risk" of celiac either dramatically delays the onset or possibly prevents the disease all together.

I exclusively breast fed my son until 6 months old I was gluten free for about 1 month to see if that helped with his reflux but it did nothing so I am back on gluten.

I did not know you could get your kids tested for the celiac gene/marker. How do you go about doing this?

Jestgar Rising Star
I did not know you could get your kids tested for the celiac gene/marker. How do you go about doing this?

The gene tested DOES NOT indicate celiac disease. It only gives you information about increased risk. It's a lot of money for something that doesn't really tell you anything.

jmjsmomma Apprentice
The gene tested DOES NOT indicate celiac disease. It only gives you information about increased risk. It's a lot of money for something that doesn't really tell you anything.

This confuses me. My daughter had a negative panel but was IGA deficient so we did the genetic test through Prometheus lab in San Diego. Her results came back negative for any celiac gene. Our GI told us that it would be highly unlikely that she would ever develop celiac as she had zero markers. I thought that told me a lot and felt such peace that she would not likely develop celiac (my 5 yo is our only celiac in the family).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

The genes they test for, the DQ genes, have not been shown to be causative, you can have the gene and not have celiac disease. DQ2, however, has been found in higher percentages in celiac disease people. (Pulling these memories out of my head). DQ8 has also been found in higher percentages, but again, not causative.

I'll try to remember to look up some actual studies tomorrow.

caek-is-a-lie Explorer

Wait until at least 6 months of age. It takes babies a few months to grow a proper lining in the gut and introducing gluten before then could increase her risk of getting Celiac later.

Kibbie Contributor
The gene tested DOES NOT indicate celiac disease. It only gives you information about increased risk. It's a lot of money for something that doesn't really tell you anything.

It is a lot of $$ if your insurance doesn't cover it but mine was covered 100% so I figgured what the heck... I think its smart to at least check with your insurance.

Jestgar Rising Star
It is a lot of $$ if your insurance doesn't cover it but mine was covered 100% so I figgured what the heck... I think its smart to at least check with your insurance.

Most insurance premiums are tied to how much the insurance company paid out the previous year. If you work at a large company, you probably won't notice it. If you work at a small company, overusing your insurance will cause the premiums to go up for everyone.

Kibbie Contributor
Most insurance premiums are tied to how much the insurance company paid out the previous year. If you work at a large company, you probably won't notice it. If you work at a small company, overusing your insurance will cause the premiums to go up for everyone.

Finding out if celiac disease is a possibility in the future of a child can dramatically change the course a parent takes with said child. As in our case because of this information we have chosen not to give him gluten for the foreseeable future. I do not consider this "Overusing my insurance" by any means.

B'sgirl Explorer
Well, I have no children, but my suggestion would be, wait until he can talk. That way he can tell you if something doesn't feel right.

I agree with this suggestion. It can be really hard to read the symptoms when they are little. If the baby is gluten sensitive feeding it to her could prevent the absorption of important nutrients and you won't realize it until the damage is already done.

Amyleigh0007 Enthusiast

My daughter is 20 months and has never had gluten. I do not want her to go through the same thing my son did before he was diagnosed. It is a no brainer. The world does not revolve around gluten and I don't feel like I am depriving her of anything.

Amelia01 Rookie

I recently asked the same question to the University of Chicago celiac program (did not receive a reply) and the University of Maryland. Yes, they are just now recruiting for the test program but we are not eligble (we live out of the US). Based on a Swedish study done it was suggested to us by a colleague of Dr Fassano's to start introducing a little bit of gluten starting at 7 months and increasing from there (it was also suggested that we test for the HLA markers).

Of course given any gluten to baby frightens me and I am unsure what I will do.

luvs2eat Collaborator

I fed my babies really carefully and only started them on solid food at 6 mo. I didn't know anything about Celiac (I didn't develop symptoms till I was older), but didn't give them some of the more common allergy foods, like eggs and citrus or milk, till they were a year old. I don't guess not feeding them gluten for that year would have changed anything... one of my 3 daughters is a Celiac.

HiDee Rookie

I asked a similar question a few months ago. Here is the link to the thread about what others recommended to me. My two little kids are both gluten-free and I plan on keeping it that way until they are older and able to make that choice for themselves. It just seems to be the most practical choice as both of us are sensitive to gluten. And research keeps changing with so many conflicting ideas about feeding children that I'm just going with my instincts on this one and keeping them gluten-free like mom and dad. After all, it can't hurt if they don't get it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      nothing has changed

    2. - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

    4. - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

    5. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.